Archive for October, 2009
Tuesday, October 27th (Home Away from Home)
by Phillip on Oct.27, 2009, under The Story
Sunday I went out to the house and checked on its progress and when I got there, the stone layers had just finished one of the front faces and was setting up to start on the second and final. On the inside, the second coat of paint was applied and almost all the doors were hung. On Monday, I was able to lock into a 30-year fixed rate loan at 4.875% for 60 days. Now the heat is on that they finish. I drove the truck on Sunday and it’s running great. It will come in handy when I start hauling my hand bike around provided the VA approves it.
I left Monday afternoon for the VA in Augusta, GA and the drive went relatively well however I ran into a bunch of stimulus new road construction and traffic in and around Atlanta. I was ready for the pillow to stop my head from falling about 100-miles before getting here. Since my appointment(s) here span several days, the VA Hospitality department provided me a room with a full kitchen suite at a local hotel with free wireless services to beat! Today Tuesday was a very busy day and 4pm got here too quick. I am having my new standing chair reevaluated by my physical therapist from when I was here as an inpatient and tweaking some things on it. Since this is the first chair of this type they’ve ordered from this company, they’re particularly interested in the good & bad points I’ve found. Basically it’s a great chair in the way of being able to stand spontaneously but the metric wheel hubs aren’t interchangeable with US wheels, it is wider, heavier and less maneuverable than the US made titanium chairs, fabric (seat upholstery and belts) are inferior quality are just a few of the negative points why I don’t use it as much as I’d like. Mostly because of the wheels but I’m going to have a local bike shop in Huntsville modify them with some new interchangeable parts my PT ordered today.
I also had to see my doctor to have a consultation for her to write me two letters of recommendation and necessity for getting a hand cycle and HISA home modification grant. The weight limit for the bike is 250 lbs. so I had to get an updated weight in my records since the last one I had was in January. Since the wheelbase on my manual chair was too wide, they had to weigh me using the hoist like I were a sack of potatoes. My weight was 234 but I’d just finished a big breakfast. Next I have to do the assessment interview with the Recreational Therapist that’s scheduled for tomorrow morning. Since she was the one who submitted my name for the US Paralympic Training Camp, I feel the interview will go well. The one thing going against me is the right shoulder pain I’m being treated for so I will need to write a summary of my physical activity then keep a training log until I come back for my annual exam in January and do the final trial of transferring into and out of the demo hand bike. I have a long day ahead of me for Wednesday to start off with 7am clinical work-ups before getting on to the rest of my business here.
Saturday, October 24th (A Long Week)
by Phillip on Oct.24, 2009, under The Story
- House4 10-23-09
- House3 10-23-09
- House2 10-23-09
- House1 10-23-09
This has been a loooooong and tiring week! I’ve achieved a couple new personal bests at the gym on both Monday and Wednesday evenings. I’m now doing an hour on my two aerobic machines which is my limit as far as my butt goes so now my goal is to accumulate the most amount of calories expended during this period. When I started, I would shoot for 160 calories in 30-35 minutes but now I’m into the mid to upper 300’s. My goal is to break into the 400’s but that may take some time to build up to because now when my hour is up I am totally wiped out with barely enough energy left to push the chair back to the car. My legs have been exceptionally active this week and making sleep difficult once again causing me to begin a lost sleep debt once again. Between work, gym and the new house, I’m pretty much busy from dawn to midnight.
Sunday I went to visit a new neighbor I will have who is an expert in home automation so I went to visit him at his home that’s about two blocks from mine and looked at his system. It gave me some additional ideas to consider. After the visit, we went down to my house and walked around to get a feel for the system’s layout and also to look to verify the pre-wiring of the doors & windows for sensor installation. I went for a pre-surgical psychological assessment on Tuesday which was a requirement by the surgeon’s malpractice insurance provider. The assessment was very long and almost as thorough as the psych eval I took to enter into the Special Operations Aviation Regiment known as the “Nightstalkers”. I had to take a written questionnaire that consisted over 350 questions some of which were utterly ridiculous in which I responded with an equally ridiculous answers that were never discussed during the interview. I will admit it was a very in-depth view into the looking glass.
Monday I leave out to the VA in Augusta for several days for a series of tests to check on my condition. It was just four days ago that marked the two year point since my accident and because I was so busy, I never really had time to reflect the moment and the progress I’ve made until now. I guess it’s just as well. I also plan on starting the ball rolling on getting a hand bike so that I can start participating in local events. For the next several weeks I will be moving along at a fast pace until Thanksgiving. The following week I will be at the Opryland hotel in Nashville to attend an International User’s Conference for Black Hawk helicopters.
Monday, October 19th (The Smart Home)
by Phillip on Oct.19, 2009, under The Story
Yesterday when I was at the house, I noticed they did the initial coat of paint, installed the doors and put up the trim. They weren’t as far along in the process I’d hoped they’d be but with all the rain we had last week, I think the days ahead of schedule was eaten up. I dedicated this weekend to finish the planning and resourcing for the Automated “Smart” Home system I plan to install. As luck would have it, I met another former Army Vet who also works on Redstone Arsenal that lives only two blocks from my new home being built and installed his own Smart Home system. I met him and his wife and was invited to see the system he built for their home. He also accompanied me to get a look at my home and review my plans and now I feel more confident about the project I’m about to undertake the moment I close on the house. Below is the list of capabilities I will automate, manage and control from my iPhone/iTouch:
1. Indoor/Outdoor Light Controls
2. Intercom System
3. Climate Control with Indoor/Outdoor Temperature Humidity Sensor
4. Front & Back yard Water Sprinkler Control System
5. Closed-Circuit TV Surveillance System
6. Door Strike Release
7. Security Sensors (Doors & Windows)
8. Entertainment System
a. AM/FM/CD/DVD/USB XM Radio Multi-Room Audio System
b. HDTV
c. DVR
d. Bluetooth/DVD/VCR Home Theater
9. Garage Door Openers
10. Window Shades
11. Fireplace & Blower
12. Remote Garage Door Opening
13. Remote Car Starting
I had a nice and relaxing weekend and that came to a screeching halt once I rolled into work and turned on my computer. Tonight at the gym will be another hour long aerobic session on the Nu-Step recumbent machine
Wednesday, October 14th (Surgery #1 Done)
by Phillip on Oct.14, 2009, under The Story
Yesterday I had my first surgical procedure to check my candidacy for a baclofen pump implant and it was quite a bit different than I had imagined. I took my 6am anti-spaz meds but skipped the noon dose so I can evaluate the effectiveness of the new stuff I was to be given later that afternoon. At 3pm on Tuesday, I was prepped and brought into the HSV Spine & Neuro Center’s surgical room quickly remembering how cold it is in these places. I transferred from the gurney onto the operating table then over onto my belly. The site right above my left rear hip bone was cleaned then the doctor explained how he was going to numb the insertion point first then insert the long sharp needle directly into the lumbar section of my spinal cavity and inject a trial pain medication then close up and also that it may hurt a bit. I told him I won’t feel any pain but my lower body will and it will react proportionate to the pain stimulus and somebody better be ready to hold me down. With that, the first needle went in and it went deep. My left leg jumped violently and everything from my mid-section down felt as it was electrocuted. Again it didn’t physically hurt but remember nerves work off of electric activity and it seemed as if I was given a jolt of 89 gigavolts!
Within minutes afterwards I was wheeled into the recovery room and was connected to more monitoring equipment with the same eerie beeps and tones I hoped to never again hear in my life. Shortly after, I began to feel the euphoric onset of narcotics bring about and my rigor-mortis spasms that I’d been fighting with for the past six hours were gone. The strange thing was that I could feel the electrical agitation in my legs welling up like I do before a spasm explodes but the spasm never came. It was like when you have the hiccups and right before it hits, you can feel it building to a crescendo right before it busts loose… but it doesn’t. Entering my tiny little recovery area a familiar angel appeared with a big giant beautifully warm smile. It was my favorite NICU nurse Stephanie from when I was her patient nearly two years ago when all this began. She gave me a big giant bear hug and told my attending nurses they better take good care of me. About a year ago, she and some of her colleagues transferred over from the Neuro ICU to the Tennessee Valley Pain Center located in the new Neuro & Spine Center building. I was asked if I’d like anything to drink but I wasn’t thirsty when the nurse rephrased the question and said I had to show I could drink liquids. When she offered me a Mountain Dew, the deal was done.
The doctor came in and we discussed the procedure and what I was feeling. He instructed me to take note of the effect over the next 24-hours then released me to go home. Curtis dropped off his wife Melisa to drive me home and we talked about the progress of my home the entire way. I have to go back in a week for a follow-up and discuss the next step. Later last night the pain in my back by the fracture site began coming back but the spasms were still quiet. I went to bed not taking my evening anti-spaz meds and fell asleep quickly. I woke up about 2:30am having to pee then watched a little late night news. I fell back asleep somewhere shortly after 3:00am. It wasn’t long after that I was woken up by a serious of bad leg spasms requiring an immediate dose of anti-spaz meds. I fought them for another hour while sweating and writhing like I was going through detox or something so I took a Vicodan tablet that helped me get the last few hours of sleep I had left. Luckily today was a work from home day because I was in no shape to be able to get it together enough leave the house. I started feeling better by later in the afternoon so I went to the gym and had a killer workout. Time to go to bed… phillip
Saturday, October 10th (I Killed Frankenstein)
by Phillip on Oct.11, 2009, under The Story
- Breakfast Nook
- Front & Garage Entrances
- Living Room
- Kitchen
The week’s pace slowed down enough for me to catch my breath a bit and with the four day weekend I have I think I will be ready to hit the ground running by Tuesday. This week I stepped up my exercise program on the ergo recumbent cycle and ergo hand cycle to one hour at a 300-cal burn. My swimming is coming along better too as my strokes are smoothing out. I need to find my swim workout bag that has my goggles and other training equipment. I’ve lightened up my original manual standing wheel chair by removing every non-essential piece possible. This afternoon after the Alabama – Ole Miss football game I plan to go on a wheelchair ride down at the park that has a 3-mile walking trail. The weather is nice and temps are in the mid-sixties. During my physical therapy on Tuesday, I was nearing the end of a really good session using the Frankenstein system when the back system came apart causing me to lurch forward in a flash. The metal bolt in the back sheered and luckily I was between the parallel bars or it would have been stop, drop and roll. It should be fixed by next week.
This Tuesday afternoon will be my first trial for the baclofen pump implant. The procedure will take about two hours and begin with the surgeon going into my lumbar spinal region like an epidural and insert a catheter threading it up to the T4/5 region between my shoulder blades. From there he will inject a pain medication to see how I react and if it works well enough to achieve the desired results. I tried reducing my intake of my anti-spaz meds slowly and increase the frequency and quantity of standing and E-stim bike but a few hours afterwards the legs would start spazzing bad enough to interfere with my transfers and interrupting my sleep. The dosage went back up to the max prescribed amount. My suspected mid-left calf ulcer and rope burn filet are healing very well albeit slow. Ever since moving to Northern Alabama, during this time of the year I would start getting sinus infections that would eventually become upper respiratory infections needing injections of steroids and antibiotics in order to get back to health. I didn’t have this problem in 2007 or 2008 but this morning I felt the onset when I woke up and after a conversation with Curtis, he recommended taking Mucinex before it takes hold. He said his doctor at the Shepherd Center recommended it.
I am looking into the Bruno modifications for my truck to now lift my wheelchair into the bed of the pickup after transfer to the truck seat as shown on http://www.bruno.com/pul-1100.html and a hydraulic topper system to protect the chair from the elements while driving as shown on http://www.bruno.com/pcl-1900.html. I need to get an estimate on how much it will cost so it may be a while before being able to do this. The max weight limit is 350 pounds so the motorized standing chair at work will be too heavy to use. The house is coming along well and the drywall is done on the inside and now the bricklayers have started on the outside. I went by Richard’s Lighting yesterday and selected all my interior & exterior lights and found the $2,400 builders credit was impossible to stay within. I ended up shelling out a little over $1,200 to close the purchase. I will do a walkthrough with my personal carpenter to look at the house and take measurements of the master and guest closets then the laundry room to build up customized shelving systems. I’m also looking for local fence builders to offer me quotes on building me a six foot privacy fence for the yard because the home builder’s cost was unreasonable. I’ve chosen the GE Profile front loading washer and dryer and also the GE 25.4 cubic foot refrigerator but I’m hoping to be able to pick up a good deal on them on Black Friday (the day after Thanksgiving). I’m now working on my “smart home” automated system. More on that later as I better define what I plan to control.
Saturday, October 3rd (Remember Those Who’ve Gone Before Us)
by Phillip on Oct.03, 2009, under The Story
- Setting Up RG30
- Preparing to Stand
- Getting Legs to Lock-In
- Doing the Frankenstein Shuffle
- Getting Tired
- Julia & I Sep 27th, 2009
I feel like I’ve been going 1,000 mph for the past several weeks like I’m trying to hold onto the tail of a hurricane. As long as I don’t spontaneously combust, I will be able to ride this out. This week was the frame-walk at the house marking a major milestone in the construction process. There were only a couple of changes needed however the vision as imagined on paper is becoming clearer to the eye every day. The brick, stone and mortar has been delivered and placed around the house and the drywall was delivered yesterday to be hung beginning Monday. This week I will need to go select all the interior/exterior lighting. At this pace it looks like meeting the December 23rd closing date will easily be made barring any major catastrophes.
I had my first consultation yesterday with Dr. Roberts from the Tennessee Valley Pain Center here in Huntsville, AL reference the surgical implantation of the Baclofen pump. On October 13th, I will return for a test to go through the lower lumbar region to see if the delivery method will be effective and also to determine which medication will be most effective before committing to implanting the pump as a solution to address my pain and spasticity. My goals are to eliminate the need for oral medication, have better control of the spasms and pain and enhance the quality of life. Given that, Dr. Roberts is optimistic they are achievable. Yesterday was also my bi-weekly massage and I was more in need of one than probably at any other time. My muscles were equivalent to a spaghetti and meatball dinner where the meatballs needed to be flattened out and mixed back into the spaghetti muscle fibers. The massage was so good that I ended up resting in bed for eleven hours and feel a million times better now.
My physical therapy this week consisted of Tuesday working with the Frankenstein feet and Friday getting back into the wheelchair drills. I used the manual standing chair which seemed more difficult than my original titanium chairs. My therapist will be changing up my therapy visits to start touching on several weak areas I have trouble with still. My last post touched on a suspected ulcer that developed on my outer left calf. It is healing at a snail’s pace. Any type of skin breakdown takes much longer to heal and is way more prone to infection due to the terribly impaired blood circulation. Given this, I was horrified when I found on my skin check the other night the deep rub burn I received from the different band I used to keep my legs together and not flailing wildly while on the Nu-Step exercise machine. I had no indication this was happening at the time during my hour long exercise routine on this machine.
This upcoming week doesn’t appear yet to be as full-throttle as the past several weeks have been. I don’t have any more trips planned for the next couple of weeks. Things are going relatively well and I continue to work hard to gain as much or as little as I can or at least not regress. The pictures I’ve included are of my Frankenstein PT workout. I will usually go up and back for approximately 45-minutes and stop once midway to drink some G2. The other picture is of the nice lady I met on the airplane flying back home from a weekend trip I took in July whose name is Julia. We’ve since remained in contact and meet occasionally for dinner or a smoothie at Starbucks. Her friend Teen who was also on the same flight took on the Pepsi Challenge to make Bolivian salteñas that turned out great!
It was this day back in 1993 that we lost several members of the 160th Special Operations Aviation Regiment (Night Stalkers) and Army DELTA FORCE soldiers during an intense battle in Mogadishu, Somalia. I’ve lost a lot of friends and fellow soldiers throughout my 23 year Army career and as each one left, each took a little part of me with them and I think of each one of them often. It drives me to not waste the precious gift of more time I’ve been given that many in this world we all knew once have been denied. As I continue to make the most out of what life has to offer in my daily struggles, I proudly do so in their memory. Night Stalkers Don’t Quit… Ever… phillip
















