History
Sunday, September 6th (Weekend Update)
by Phillip on Sep.06, 2009, under The Story
I had the day off of work on Friday which worked out well because I had a day full of personal appointments. I started the day by having to clean up a nasty hairball Bob left me sometime during the night. I’m kind of perplexed about this because the entire week I was gone, he didn’t throw up a single time but when I’m here he averages one per day. I’m not sure what that’s all about. After HAZMAT clean-up was done, I fixed myself a hot green tea and a bowl of Cheerios then jumped in the shower. I made it to my appointment with my hair engineer Denise on time and she cleaned up the rock star mop I was wearing on top of my head. I came home to do a session on my stim-bike as a warm up to my PT appointment scheduled for 3pm. When I arrived for my appointment, I already had a good sweat going that carried into the Frankenstein boot scootin’ boogie I was about to endure. I am getting better at doing laps up and back on the parallel bars but my left foot doesn’t lift up and step out as well as the right. The therapist says that’s common but it would be much more efficient if they both worked as advertised. Either way, I get a good cardio & strength workout by the end of the session.
After my therapy session, I had enough time to cool down and make it to my massage appointment that I always look forward to beginning right as the previous session ends. Although my back hasn’t been hurting much these past two weeks, it was still all knotted up and needed lot of kneading like lumpy bread dough. I didn’t take my anti-spaz meds before my session because my legs felt really loose but when she commenced to do her reflexology on the bottom of my feet, she would hit a nerve bundle that would cause my leg to do a Bruce Lee super technical karate kick. I asked her how someone without a spinal cord injury would react when she hits that spot and interestingly she said they usually wince in pain. That makes sense then why my leg would jump out like that as an autonomic response similar to when the doctor inserted the needle into my toe to inject the Lidocaine before my toenail procedure.
The massage sessions have to be the quickest hour on the planet but I got up and head out to meet Julia and Teen over at Starbucks for a snack and coffee. Teen is the chef over at the Huntsville Botanical Gardens and made me a batch of Bolivian salteñas during the week. She calls them Bolivian Dim Sum but I always compared then to Bolivian Hot Pockets. Well, they are beef with raisins, olive, peas, potato and hardboiled egg encased in a doughy exterior. They are very difficult to make; so much that my Bolivian ex-wife wouldn’t even make them. She’d rather prepare a seven course meal instead. When I bit into the first salteña, I immediately transcended back to the streets of Bolivia and remembered the little pastry shop I use to buy them from they turned out that good! We all then left Starbucks and caravanned to see the progress on the house and low & behold the roof was done like Jesus (pronounced Hay Sus) the foreman said. Ironic a carpenter named Jesus. This week they should work on the HVAC, electrical and plumbing.
Last night I went to visit Curtis and Melisa and Curtis seems to be doing much better these days. He had a motorized ball pitcher he was launching at the boys to practice their fielding and hitting. I thought this was great. He and I went to his garage and did a little maintenance on my wheelchair and filled the tires with air. Later in the afternoon while sitting on his porch, one of my tires blew and I was like “oh crap”. Curtis had a spare wheel that fit my chair and I said to him “this couldn’t have happened at a better place”. Immediately his son quipped, “you could have popped your tire in a tire store”. True as it may, I was thinking of all the places this would have been a disaster. I need to add a tube repair kit to my backpack soon. Melisa prepared a great dinner and afterwards plopped down on the couch to watch the Alabama football game. Melisa positioned the coffee table perfect for us then lifted both Curtis’s and my feet up onto the table and placed pillows beneath them. I was thinking to myself, does it get any better than this? Life for the moment was gooooooood.
I haven’t had an episode of incontinence in several days or nights lately. This morning’s IC was about 750-800cc and not a single drop went into the leg bag. I think it’s time to go without the “external catcher now” however I will carry a change of clothes with me in the car for just in case. I’m heading out to the theater in a bit to catch a movie. Tomorrow I’ve been invited to go to my friend Kevin Mobley’s house for an outdoor grill out and I’m really looking forward to that. Well, time to finish folding all the clothes I’ve washed and get into some of them and head out the door… phillip
Thursday Night, September 3rd (Results)
by Phillip on Sep.03, 2009, under The Story
Today I received my test results from the lab and all was negative so now it’s time to do some more intrusive tests. My MRI showed normal wear and tear of the shoulder for someone who’s had an active life such as my own. An orthopedic surgeon could probably go in and smooth things out but I need to consult with one to get their opinion. Today I went to the house at lunch and there were about 15 non-English speaking Mexicans all over it like ants on a cupcake during a picnic. They were a really good bunch of hard working guys and I joked around with them a bit. They made a plywood path for me from the street to the garage so I could get into the house. They assigned an “escobador” (man with a broom) to me to sweep a clean path for me so the loose nails wouldn’t pop my tires. Everything was being built according to the plans and I could visualize where everything would be. The roof will be done and felted tomorrow so next step will be to call in the plumbers and electricians.
I later had my doctor’s appointment to go over my results. I then went to my next appointment to get fitted for the truck mods I had done. We had to do some final seat tuning and hand control adjustments. After I was comfortable with the set-up, I drove my truck home while they followed behind driving my minivan “Christine” and another chase vehicle. The moment was really surreal because the last time I sat in my truck was the morning I drove it to the racetrack with my bike and Kari in the back. My goal now is to make some new happy memories with my truck. I didn’t work out tonight and I was really fatigued so I took a four hour nap until now. Friday is my day off so I will start off by seeing my hair engineer to get shaped then do my PT appointment to be followed by my bi-weekly massage. Saturday is the first BAMA game of the season. On Saturday afternoons from here on out until Christmas in Alabama the streets will be desolate… phillip
Wednesday, September 2nd (Dr’s Follow-Up)
by Phillip on Sep.02, 2009, under The Story
I had a UA done Monday as I reported but it was negative so my Physiatrist sent me to have blood drawn and another UA to include a culture sensitivity test. When I go to the VA next week, I am going to do another cholesterol test. After my last check in June, I’ve joined Weight Watchers and have really changed my diet and eating habits to include massive amounts of veggies and nearly no red meat. I am now down to 230 lbs vs. whatever it was when I was last weighed at the VA in June (240’s). My goal is to reduce or possibly eliminate my need to continue on the statins. Additionally all the X-Rays on my right shoulder have been negative to include the standard shoulder series and the weighted arm series to check for AC separation. I have an appointment this morning to do a MRI. The cortisone injection given directly into the AC joint worked for only 24-hours before the pain caused by aft rotation of the arm returned. As always, I bring copies of the radiology reports and lab results with me to the VA when I go for my appointment so that my primary SCI doctors has a complete picture of what I get done here in Huntsville. I had a big day yesterday with 1-hour in the stander, aggressive PT session in the Frankenstein Feet, 1-hour stretch session in the gym and wrapped things up with an hour on the stim-bike when I got home last night. When I woke up at 3am to do my IC, I pushed down on my bladder and felt nothing so I reset my alarm clock for 4:30am. When the final wake-up alarm went off at 6:30am, I felt like Father Time was playing a cruel trick on me. One good thing to note of all this is that my pain level has been low for the past ten days… phillip
Tuesday, September 1st (Dr. Appt Update)
by Phillip on Sep.01, 2009, under The Story
Good news and bad news from my visit to the Urologist yesterday. The test for Urinary Tract Infection (UTI) was negative but now I can’t explain the neurogenic bladder causing the incontinence and intense fatigue normally brought on by a UTI. Here’s some pix of the construction. I’ll be posting more as construction progresses… phillip
Saturday Night, August 29th (Week In Review)
by Phillip on Aug.29, 2009, under The Story
This past week was a really busy one and has certainly taken its toll on me but I’ll get into that later. Monday morning began with final prep, loading the car and a long drive to St. Louis to attend the annual Utility Helicopter User’s Conference at the Hyatt Regency hotel directly across the street from the famous Arch – Gateway to the West. The trip took seven hours on the dot and the weather was in the mid to high 70’s. The drive was uneventful until I came upon the psycho trucker. Some 18-wheeler passed me on my left then slowed alongside another truck blocking the road. I thought they were communicating with one another or something. As the mad trucker pulled away and into the right (slow) lane, I proceeded to pass on the left. As I was almost at the halfway point, he quickly came over on me causing me to slam on my hand brake so as to not get run off the road. It was obvious to me it was intentional. I have no idea what in the world would possess him to do something like that.
I made it to the hotel without any further incidents, got checked in and headed to the reception sponsored by Sikorsky Aircraft Corp. The buffet was great and full of jumbo shrimp, crab balls, prime rib and other palatable treats. The room was very nice but getting to it was a workout because of the plush carpet but by the end of the trip, I was rolling over it with seemingly less effort. The conference is sponsored by the Utility Helicopter Project Office here at Redstone Arsenal, AL and it brings the users from the field together with key individuals from the project office and third party vendors who provide equipment and/or support services. It functions as a collaborative effort to share information and is truly a worthwhile event. I’ve been going to these since 2001. It was good to see so many of my friends and former co-workers from when I was in the Army.
The day would usually begin with a 7:45am continental breakfast then on to the meetings. During the breaks, everyone would file out of the conference room to visit all the exhibits in the hall next door. Some of the exhibits have large power requirements in order to provide product demos so large thick cables would traverse across the carpeted floor and secured with tape. I remembered my lesson from last year when I was not paying attention and hit one of these cables dead on and my wheelchair came to an abrupt halt nearly dumping me onto the floor to my front. I popped a wheelie and easily navigated the obstacle. The rotating between exhibits, conference lectures and sidebar meeting last until 4pm then that would be the end of the “business” day. Around 5-5:30pm, were the catered vendor socials and sometimes where the real business deals are made.
The days began for me much earlier than I am accustomed to but since it was only an elevator ride downstairs vs. a drive into work facilitated the earlier starts. On the second evening, there was a tailgate party in the park just two blocks from the hotel prior to the baseball game sponsored by Utility Helicopters with assorted Budweiser beer products, Subway sandwiches and White Castle burgers. I didn’t go to the game so I went back to the hotel and organized my days’ notes and catch up on the multitude of emails that arrived during the day. I got to bed at a fairly decent hour and dozed off to sleep. This is where the trip for me started to take a bad turn.
As customary, I woke up to my preset alarm clock at 3am to do my IC and catch some news highlights before falling back to sleep. When I woke up at 6am, the bed was soaked and I was in utter disbelief. This has not happened since I was a little boy. I went ahead with my normal morning rituals as my coffee was brewing. When all was done and I was dressed and heading out to the door, I looked down and noticed I had leaked out again and it was a lot. This happened once before this year when I was visiting my mother and found the Tetracycline I was taking was causing the incontinence condition. I went to the bathroom to do another IC and there was about 350-400 cc’s which was more than I expected. I only had one glass of wine the night before and didn’t drink anymore of my G2 sports drink at night than I normally do. I hadn’t changed my medication and by now not only was I getting concerned but I was very puzzled. Luckily I had thought to pack a bag of the condom catheters at the last minute before leaving the apartment. They were leftover from my Maryland trip. I had to jump into the shower and not only wash me off but my wheelchair and seat cushion too. This really sucked.
The conference ended Thursday at noon as did my scheduled teleconferences by 3pm so I decided to stay and leave Friday morning to avoid getting caught on the road after dark on the tail end of the long drive. My drive back home seemed to pass very quickly because I was in phone conference calls nearly the entire trip. I stopped in Nashville to have lunch with my friend Debbie from High School. Through facebook, we discovered we were both going to be there the same day so we coordinated to meet again as we did in the spring. It was great to see her again and the hours just clicked away as we just talked and talked about our lives since high school. We parted before getting caught up in the evening Nashville rush hour traffic. The rest of the trip went well and I got back to the apartment by 6pm giving me enough time to meet my friends Julia and Teen for dinner at a Thai restaurant on the other side of town. As I was draining my leg bag and performing an IC, I sprung a leak that required me to do a HAZMAT clean-up eating up all the reserve bank time I had to not have to rush to meet them at the restaurant by 7pm.
Midway through dinner, I had a severe pain in my back calling me to enact Vicodin relief act. I try not to use this or the sleeping pills unless absolutely necessary but the pain was such that I couldn’t even eat. After this very nice dinner, I came home and finished unpacking my car, got my mail, played with Bob then turned on the home computer to download my personal email that had accumulated during the trip. I got to bed somewhere around 1am but not to get out of bed until that same time 12 hours later. I was really wiped out and more so than I thought. I finally rolled out of bed, got some breakfast, took a shower and tended to things around the apartment when I was overcome by fatigue around 5pm so I laid down to nap a little while but slept until about an hour ago at 9pm. I didn’t feel like going out so I decided to write my weeks’ post thinking now I’m going to be awake all night for having slept nearly the entire day. About ten minutes ago, I start feeling sleepy again so I’m going to end this here and go back to bed. I am still having the incontinence problem and now with this excessive fatigue, I need to go see a doctor Monday morning. Something is definitely not right. Since I didn’t get by the house today to check on the weeks’ progress, I’ll go tomorrow and get some new pix. Hopefully the roof is up by now. Wishful thinking… phillip
Sunday Night, August 23rd (Weekend Update)
by Phillip on Aug.23, 2009, under The Story
The weekend was nothing less than totally relaxing. It started for me late Friday afternoon with my bi-weekly Swedish massage and that was the right touch at the perfect time. All the pain I entered with was extracted and left behind. I stayed in bed and rested almost until noon then got up and piddled around the house then went to work some more on the website and putting out the change notice. As a matter of fact, I don’t think Bob the cat nor I even got dressed at all! Again Saturday night I slept great but got up a little after 9:30am to start getting my things ready for the road trip to St. Louis tomorrow morning. According to MAPQUEST, the trip will take approximately 6 hrs. 44 mins. however since I’m driving by myself, it will most likely take about 8½ to 9 hours. I would of much rather flown but we’ve been having trouble with the Defense Travel System and trip reimbursements that I couldn’t book a flight until my last trip to Binghamton gets settled. I would have cancelled but there are a couple really important meeting I really need to attend. I went by the lot this afternoon to take some pictures and it looks like all the sub-terrainian plumbing was set and footings set so concrete can be poured early in the week. The approximate 3,200 sq. ft. floor plan is so large that the amount of yard remaining is much less than it looks on paper. It looks as if I will probably be going to the VA in Augusta the following week. The distance from St. Louis to Augusta is too far to make in one day by myself. Gotta finish packing and get to bed early. Here’s some pix of the construction. I’ll be posting them as construction progresses… phillip
Thursday Night, August 29th (Hump Day)
by Phillip on Aug.20, 2009, under The Story
Monday turned out to be a really busy day and milestone making too. I brought the new motorized standing chair into the office and found it to be quite refreshing to be able to take standing breaks every so often. Whenever I would engage the standing mode, my buddies would call out “Transformer Phil”. I also realized after the first try that the high speed mode is not a good idea in the tight hallways. If someone would enter the hallway from an office door while I’m ripping up the tiles in Mach 0.? they would seriously get pounded as if they were caught short during the running of the bulls in Spain. Maneuverability in my cubicle was not too bad. Later we had a working lunch meeting at the Beauregard’s on 72 where we ended up waiting 45 minutes for the food to be brought out. So much for their commercials for fast lunch service. I spent this time waiting in the standing position taking advantage of the long wait. I like having this capability whenever the opportunity presents itself. When I went into the bathroom to do my IC, this proved to be a more difficult challenge than I expected. It was a tight confined area with insufficient area to maneuver within. It reminded me of the days trying to hold a steady hover over a listing ship, underway, between antennas, at night under goggles, bare feet, in the snow, uphill, both ways.
Yesterday was our work’s offsite/organization day held at the Rustic Lodge on the southernest part of Redstone Arsenal along the Tennessee River. The meetings were very informative and were paused at mid-day for the barbeque. I ate more than I should but it was too good not to. After the work session was over, we went to the bowling alley to launch some balls down the lane. I didn’t have to rent any shoes. I selected a light ball to use and made my way to our lane and it was my turn at bat. I rolled up the the no cross line, got a good grip of the ball with my right hand and gripped the wheelchair with the left to stabilize myself and threw my first ball from the wheelchair. It rolled pretty slow and didn’t get 1/3 down the lane before it became one with the gutter. I thought to myself, “dang, that’s the same thing that happened to me when I played wii bowling”. I got my ball out of the ball return shoot for another attempt thinking that last try was a fluke and this one will get some serious pinnage and a may be able to salvage a spare out of my turn. Again I got into the counter-brace position, leaned over and launched the ball down the lane with all the power from my right gun knowing this time it will get the job done. BAM!!! It hit the gutter at about the mid-point. This isn’t working out like I envisioned I thought to myself.
As I waited for my next turn on the line, a launch ramp was found and brought over for me to try. I was not the kind ov bowling I’d ever seen before but it would get the job done. When my turn came around, I positioned this metal launch & aim device, the heaviest ball was brought over for me to use because if the ball is going to roll slow, it better have some meat on it. When I got the number one pin zeroed in on my imaginary boresight, I gave it a little push and down it rolled. It hit a little kicker on the left rail near the bottom that caused it to veer off to the right. I don’t remember how many pins went down but I knew I will need to make a little left “Kentucky Windage” correction for my second a last ball this frame. The ball was too heavy and awkward for me to carry off the ball return chute and balance on my lap as I try to align myself behind my new bowling weapon so it was brought over for me and placed on the top of the rocket launcher. This went on throughout the rest of the game until my co-worker Will came over and offered some advice to try and put a spin on the ball before it launches. Trying his tried & true method used by his kids resulted in a string of gutter balls so I went back to my own technique. I ended up not having the lowest score of the day but not the best either. Overall I had a good time; more so from the dynamics of the group than anything else. I look forward to the next time. I sucked but I wasn’t much better than when I was ambulatory either. As a matter of fact, my scores were pretty competitive between sitting AND standing.
After leaving the bowling alley, I drove to the gym for my workout. I called my father and was talking to him on speaker as I drove when I grabbed my apple and took a bite out of it. When I bit in and took a chunk into my mouth, it was way too soft and I spit it out but a small piece of the skin was stuck to the back of my throat and caused it to spasm shut preventing me from breathing easily. As I tried unsuccessfully to cough it out because my ab muscles don’t contract as strong as was needed to forcibly cleanse the irritant, my breathing stopped. All the while my father was calling out my name on the speaker not knowing what was going on and the tone of his voice notably growing more and more concerned. My past military training automatically kicked into gear and I relaxed instead of succumbing to a panic attack. I was able to inhale and exhale very easily through my nose so now the major problem was solved. Now it was a matter of how to be able to clear my throat and at least tell my father I was ok. Slowly I was able to clear my throat but I could only imagine what it must have sounded or felt like from his end. Once I was able to relay to Pops that I was ok in a feeble and broken voice, I kept working on that little piece of apple skin stuck to the back of my throat. When it was finally all cleared, Dad made me promise not to drive, talk to him on the phone while eating an apple again!
I was called by both the manufacturer and the VA that my ne magnesium manual standing wheelchair arrived to the VA this week and they will call me when it’s ready for pickup. That’s two long road trips within a two week period. The other is a Utility Helicopter User’s Conference in St. Louis all next week. This is the same conference as last year where I learned how to go up and down escalators in my chair. I had a doctor’s appoint today and afterwards I got on the scale hoping not to of at least gained any weight, especially after yesterday’s BBQ and to my surprise, I lost five pounds! I did it again to confirm the reading and the next one was a couple of tenths even lower so I left the clinic today a happy camper. I’ve increased my aerobic workouts from 33 minutes now to 45. I shoot for as many burned calories as I can get within the time I set. If I can maintain a consistency in both my aerobic machines, I’ll eventually work up to an hour but I’ll have to take a break midway to do a pressure relief lift for my tush. Afterwards I went and had a Starbucks smoothie down the street a couple of blocks from the gym. On a good note, I cracked the code I think on this weight issue and have lost five pounds…phillip
Sunday Night, August 15th (Weekend Update)
by Phillip on Aug.16, 2009, under The Story
Friday was a real busy day for me but I was able to move pretty far ahead on the house. I went in to do the final review of the house plans with the builder’s site foreman and many of the items I’d requested that needed modifications except one so I signed all that needed to be and was told the next step was to start getting all the materials on order and permits in place. The groundbreaking should happen within the next 1-2 weeks. Next event will be the frame walk. I took a long nap in the afternoon to try and recover from this weeks’ trip. I had an appointment earlier in the week on Tuesday and had a cortisone injection into my right shoulder and the doctor said I should feel the full affect in approximately 48 hours. After 24 hours, my shoulder felt as good as ever but come the 48th hour, the cortisone started wearing off and now today it feels as if I never had an injection at all. I have another follow-up on Thursday so on the Plan B. I have a special interest in this medical care bill being addressed in Congress and the Senate but nobody knows how the veterans would be affected. If anyone out there knows how the Veterans Administration or the Federal Blue Cross Blue Shield will be impacted, I’d really like to know.
Saturday morning I slept in late and really enjoyed chipping away at my sleep deficit in hopes my pains will diminish but Saturday was not the day this was going to happen. In fact, just the opposite occurred. Too sore to exercise, I spent the day doing office work and on the web-site here at the apartment. This morning I slept in again but this time feeling better rested and with less pain. I took my anti-osteoporosis pill, drank a bunch of water then got in the stander for about 1 hr 20 min and watched the season finale of So You Think You Can Dance. Those kids are amazing. I ate a palm full of almonds after getting down from the stander and got a massive case of the hiccups. They didn’t last too long but they were bigger than I’ve had since the accident. I then had breakfast and did dishes then hooked myself to my stim-bike and did an hour session while watching motocross previously recorded on my DVR. Usually within about 30 minutes I start a pretty good sweat.
The afternoon was spent folding two weeks’ worth of laundry while watching NASCAR. One of the really difficult things for me to do is fold king sheets. The maid didn’t get them dried before she left last week so after I finished them, they’ve been sitting in a heap on the floor developing crisp wrinkles not even a Marine could get out in time for an inspection so I just dampened a washcloth and tossed everything into the dryer y voila… no more wrinkles My friend Julia came over and brought me some homemade soup and fold them for me when they were done. I broke down my folding wheelchair today and put everything into the back of the mini-van because tomorrow I’ll be bringing the motorized standing chair with me so I can start standing during the day. The pictures I’m posting tonight are of a homemade tryke I saw in the monthly PVA (Paralyzed Veterans Administration) magazine. I need to find someone local who might be able to fabricate something like this for my Harley. Well it’s late and I have a long day tomorrow of getting caught up at work…phillip
Thursday Night, August 13th (“I’m a dot”)
by Phillip on Aug.13, 2009, under The Story
Our first stop was the army aviation museum. It’s hard to really appreciate where we in the community have evolved to unless you can understand what we started with in the past. There were quite a few helicopters in the museum I’ve flown that are now long retired and on display. This was my first trip to Ft. Rucker since my accident and it was nice to see folks that I’d had working relationships with both while in the army and also as a retiree working for the government. My room at the Holiday Inn Express was very nice and huge. There were even looped curtain extenders that easily facilitated the opening and closing of the curtains. I thought this was an excellent detail and it was the first time I’d seen anything like this in all my travels. Our actual first stop yesterday was at the restaurant in Daleville just outside the gate to the base was a place called “Trifecta”.
In my day there as a young, skinny, Q-Tip’d looking Warrant Officer Candidate wannabe pilot, this restaurant was known as “Larry’s Pit BBQ” and was always standing room only for lunch. Their lunch special is the gyro sandwich where you have to eat half the meat first before you can even fold/roll it in half. The thing is huge! I couldn’t eat anything for the rest of the day to include dinner I was so full. Chris did all the driving and Daniel (our co-ops) was getting me up to speed on the latest technology ideas. Did you know that kids in schools now have “mosquito” ringtones on the cell phones because the high pitch level these sound waves make are undetectable by the majority of adults when their phone(s) ring? Amazing! They are engineering seniors at the University of Alabama – Huntsville so they keep me up to speed on this kind of stuff.
The trip, although fast and furious, was very fulfilling in many ways. The best part was having lunch today with my two favorite ladies (and former Black Hawk helicopter pilots) Lettie and Dana. Although the trip from Huntsville to down south L.A. (Lower Alabama) is nearly five hours, little do they know… yet… I’d drive twice that to see them On the way back home, I received a call from the realtor that my final house plans are ready for signing tomorrow morning and all of the deficiencies I noted were approved and corrected. That’s it for now. I promised a new special friend of mine I’d meet her for coffee when I came back so I’m a dot. BTW, that means when an aircraft departs and gets smaller and smaller as it gets further away, it looks like a dot…phillip
Tuesday Morning, August 11th
by Phillip on Aug.11, 2009, under The Story
The weekend went very well as I was able to capitalize on a clear schedule to allow me to rest and that is what I did a lot of. I woke up Monday morning with a fully charged set of Energizers. Curtis came over to the house Saturday for a visit and to check out my new motorized standing chair and although he’s about 5” taller than me, it got him standing pretty well with about a 20 degree bend in his knees. This was the first time in over a year he’s stood in an upright position and he had no complications. He is now looking into getting a standing chair too. Curtis, his wife Melisa and I bounce a lot of ideas and information off of each other and it really has been helpful. They are both very resourceful.
On Sunday, I went to the builder’s office and spent the entire afternoon going over the house plans centimeter by centimeter. I found some more discrepancies that need to be either corrected or explained so by this Friday the final plans should be ready for signing. I spent all the rest of my weekend working with Webmaster Scooter Magee in enhancing this website. I don’t know HTML code very well but I’m learning and this site will just keep getting better. I had an appointment yesterday at the Spine and Neuro center of Huntsville to consult with the neurosurgeon Dr. Tao about the baclofen pump implantation. He didn’t recognize me but as soon as I heard his voice, it sent a chill down my spine. After a short dialogue, he appeared to remember and I told him that to this day the thoracotomy procedure he performed on me in the first surgery is the most painful problem I’ve had. I don’t believe I will have him perform this procedure on me for the simple fact that he only implants the device and does not perform the maintenance of refilling and regulating the device afterwards. I want a specialist who not only will implant the device but will maintain it afterwards and who too will have to live with this with me.
I went upstairs to the Pain Clinic on the 4th floor to check on my appointment that fell through with a Dr. Roberts who meets my requirement so I am to be contacted shortly for my initial consult with him. They had me scheduled for a consult on August 7th but never contacted me to advise me of that. I also stopped by the physical therapy section of the Spine and Neuro center and was shocked to see that not only do they not have any therapy equipment for quad/paraplegics but neither were their therapists experienced in this type of care. I was shocked without the awe. I need to get on to work. My team has been working very hard for weeks on preparing to present the after action review briefing on the first simulator to go through the complete testing cycle. As the Air Force would say… “I’m a dot!” (I’ll explain this on my next post… Phillip
Friday, August 7th (TGIF)
by Phillip on Aug.07, 2009, under The Story
Since Wednesday, my pain has reached a level not felt since I was in the ER for reasons unbeknownst to me. I had to take a pain killing, anti-inflammatory muscle relaxing cocktail to keep from becoming bedridden for the day. It helped to dull the sharp pain but it was still at a level where I had to cancel my physical therapy appointment that day. The level of pain was so intense that it felt like I had a broken back and it was to the point where it was making me nauseas. Today I am feeling better enough to go to my physical appointment knowing I have my bi-weekly massage scheduled directly following my PT. I also reported that my doctor instructor instructed me to discontinue my blood thinning injections. It’s been seven weeks now and I can still see my ankles although they are a little chunky by the end of the day. My left leg is noticeably bigger than my right.
My draft house plans are finally ready for my initial review so I went in Thursday to the builder’s office to do a quick review since they will not provide the to me to review at my leisure. I found a bunch of deficiencies that need to be reworked so this weekend I will have a chance to continue reviewing the drawings. I was given the closing date also which is now set for Dec 23rd. I am coordinating with the R&R Mobility in Conyers, GA where I bought my Honda minivan from, to come pick up my Ford F250 pickup truck and bring it back to their shop and adapt it with a seat that comes out & down and hand controls so I can drive. Since I am unable to even get into the truck to drive it the five hours to get it there, they will come to my apartment and pick it up on a Jerry-Lift for $500. I’ve tried several times to coordinate with Southern Mobility Transport here in Madison, AL but they keep blowing me off and not responding back when the say they will.
I wrote last week that my legs were doing so well that I was going to back down on my Baclofen anti-spaz meds and I did for about two days before discovering that wasn’t such a good idea. I’m back to the max strength I was prescribed. I wrote that I went to visit Curtis and Melisa Fox last weekend and I was really happy to see Curtis doing so much better and in such good spirits. He does a great job as the home supervisor while his wife executes her role as Sergeant of Arms with flawless provisions to their little troopers. I haven’t made much progress in finding a baby kitten to entertain Bob and I but I’m sure it won’t be much longer.
We still continue to work on the website to make it better. If you have any suggestions on how to make it better or just want to drop me a line or two off the website, you can do so by directing your email to: Phillip.M.Sherwood@us.army.mil and I’m usually pretty good at responding in a timely manner. I don’t have any plans for the weekend yet except to continue reviewing the house plans so I will probably get some more needed rest and hit the movies again.
“So much has been given to me; I have no time to ponder over that which has been denied” Helen Keller
Tuesday Night, August 4th (Oh the irony!!!)
by Phillip on Aug.04, 2009, under The Story
I start this post tonight trying to remember when was the last time in my life I’ve ever been this busy with work and life. I’m certainly not complaining because the contrary would be a horrible scenario to even imagine. My father brought to my attention that I do a good job in telling my medical story but I slack off when it comes to follow-up so Pop’s this one’s for you. I wrote about the other week how my left leg felt as if it’d gone numb. Well, after a couple of days it began to wake back up into its drunken stupor. I’ve been experiencing increasing pain in my right shoulder by the AC (Acromioclavicular) joint due to a possible a separation. I have an x-ray appointment pending tomorrow while holding a weight to check. If there’s no separation, I will go back to the doctor for cortisone injections. If it shows positive for separation, I believe the next course of action will be a little more than a needle and juice depending on what grade is diagnosed. Another thing I brought up today during my doctor’s visit was the difficulty I am having in losing this excess weight. I cannot use my large muscle groups to help sustain a heart rate more than 120 BPM in excess of 20-minutes so the Pepsi challenge is there and Night Stalkers Just Don’t Quit. My Physiatrist coordinated my appointment with the neurosurgeon for my initial consultation and I about died when I found out who the doctor was. His name was very familiar to me. In fact, it is Dr. Tao who will perform the surgery to implant my Baclofen pump and is the same surgeon who did my two back surgeries after my accident. When the receptionist told me his name over the phone to confirm the appointment, she noted a pause on my end of the phone and asked me if there was a problem. I told her that I know this Dr. Tao very well since he literally held my beating heart in his hands as he fished around the “muck” in my open chest cavity while he mended my spinal column. I told her he’s a real “butthead” but he is very good at what he does and I would welcome him to cut me open again. Oh the irony!!! As for the rest of my weekend, I slept in until 10:30am both Saturday and Sunday. It was a great recharge for my batteries but I think they’ve almost run out already. Last night I woke up after about two hours of sleep and after laying there for about four more hours with my mind racing, I just got up out of bed and did stuff around the house and worked some more on this new website. By the way, Mike “Scooter” Magee (the webmaster) has been working very hard behind the scenes to get this new site going but there’s still quite a way’s left to go. Most of you who know me personally or have been following along with this life story through my website probably know of my girlfriend Melissa. Well our lives took a detour and unfortunately nearly 7-weeks ago, Melissa decided to put an end to our relationship and pursue a different destiny. She was the first one to arrive at the hospital after I was hauled in and was by my side the entire time like an unmovable Rock of Gibraltar. With her unwavering strength, courage, sense of humor, compassion and hands-on problem solving personality, she lifted me from the depths of the abyss like an angel sent from God in my time of need and I will always be thankful to her and God for giving me the unfair advantage over death and grief to triumph over. I recognize even in health I may be a very difficult person to be around to some for any length of time. I have two ex-wives who would probably unequivocally agree with that however in my current state, I know the difficulties are amplified but in different areas. I actively sought to have regular counseling sessions with both the Psychologist and Psychiatrist from the VA to help me continue putting into perspective all that I have to juggle to get through the days, weeks and months. I’ve always had a type AAA personality and am very methodical in my processes. I have a belief that there’s a reason for everything and it’s not for us to question why but understand that the threads of life are knitted in a very intricate but delicate tapestry that if disrupted will self-correct later. Sure I believe in free-will but I also believe the choices we make all come with consequences both good and bad. I don’t know where these metaphysical philosophies of mine came from but they got there inside me somehow and for what reason I have no idea. I also believe the darker the cloud the brighter the silver lining will shine! Back to my early morning sleepless energy expenditure. I got into the new Government “Retention Program” provided motorized stander and went through the majority of high and out-of-reach places within the apartment in the standing mode and started going through things that were put up out of my reach. The funny part was seeing how freaked out Bob the cat was. Next time I do that I need to break out the video camera. I made several discoveries today to file into my database. I picked up a heavy box while in the standing mode and I felt as if my center-of-gravity shifted too far forward giving me the perception that I was going to fall flat on my face so I dropped the box. After dropping things while standing, I experienced the inconvenience of not being able to “bend over” easily and rapidly to retrieve whatever it was that I dropped. The manual chair is certainly much more nimble in confined areas but the motorized chair is awesome outdoors. I need to get going to do other things in order to prep for tomorrow so I’ll pick this back up soon…phillip
“Life is too short to wake up with regrets. So love the people who treat you right. Forget about the ones who don’t. Believe everything happens for a reason. If you get a second chance, grab it with both hands. If it changes your life, let it. “
Friday, July 31st (Disturbing) |
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| Written by Phillip Sherwood | ||||
| Friday, 31 July 2009 | ||||
| Yesterday afternoon my new motorized standing chair arrived and is now all set up. There’s a few things left needed to be done but for the most part, it’s functional and fast. The torque setting is tweaked up higher than on the demo chair and this one works much better on the grass. Last night I was really restless in my sleep but I was able to sleep in since Friday was my day off. I woke up in a state of mental meltdown over probably one of the worst dreams I’ve ever had and it took me a good part of the day to shake it off. I finally had to leave the apartment to try and gather my wits about me. I did an hour on the stim bike, made a sandwich then headed off to my physical therapy appointment. I took my heart rate monitor with me this time and it doubled my normal sitting pulse rate. This by far is the most grueling exercise I do in my fitness program. Another accomplishment I made today is that I finally shipped off my espresso maker to be repaired I’ve had in a box forever on my kitchen table. I will be back to cappuccinos in no time. I also went to Best Buy and got rid of my T-Mobile account and opened an account with Verizon. Rumor has it that Verizon will be picking up the iPhone contract from AT&T sometime between October and the Spring so I just got a basic model leaving me the option to upgrade later. My webmaster “Scooter” will be giving this site a facelift over the weekend so hopefully by Monday it will be even nicer than his original creation. I’m whooped and ready for bed. I was going to hit a local club tonight but I may just do that tomorrow night instead…Phillip “The success of a person probably has more with how they handle adversity than how they handle success. It’s easy to put on a smiley face when everything is going well, but what happens when you’re in a valley? That’s when you see the true mark of a person. Everyone has peaks and valleys. It’s how you manage the valley that defines your character and is what you’re going to be remembered for.” | ||||
Wednesday, July 29th (Work, Eat, Sleep) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 29 July 2009 | ||||
| Sundays’ swim was good as I swam several tough laps and when I woke up Monday morning, I could really feel it on my left shoulder. As the day progressed, my shoulder felt more and more like it was cramping up. I went to the gym Monday night and while using my heart rate monitor for the first time since my accident, I did the NuStep for 35 minutes getting my heart rate up quite a bit. Tuesday my shoulder was hurting to the point I didn’t want to stress it any more than the pain of doing transfers was already causing. I had a really grueling workout during my Physical Therapy appointment using my Frankenstein feet. I am getting better at using them and I feel my endurance improving with each visit but I just keep reminding myself that if it was easy, everyone would be doing it… right? I did a good stretch at the gym then came home and got on my e-stim bike for an hour. Between getting more judicious on the bike and stander, I’ve noticed my leg spasms reducing significantly so today I’m going to start reducing my Baclofen anti-spaz medicine and see what happens. I am sleeping very well at night now too. Tonight I took a break from the gym and as a matter of fact, I’m writing this from the stander for the first time. Tomorrow my new motorized standing chair arrives so I will be messing around with it quite a bit; especially going around the apartment and get the things put up out of my reach I haven’t been able to access in quite awhile. I have an appointment Thursday with my physiatrist to review how the Botox injected into my left calf is and possibly administer another. He also wants to see the chair and what it’s supposed to do for me to help me tailor its use. Today also marks the end of my third week of being on WeightWatchers so tomorrow I will slip by the VA clinic to do a weight check. My friend and former coworker Tom Huff and his family is here on their summer vacation so we all met up in south Huntsville for a fabulous sushi lunch. Afterwards, we drove out to the lot where my house is going to be built. Tonight a bunch of us met up at Rosie’s for dinner but I was still full from lunch. I’ve decided to get Bob a little buddy so I found this interesting pet adoption website http://www.petfinder.com that links into Humane Societies and Animal Shelters all over the USA to find all types of animals looking for a home. I called on one cute kitten today but he was already adopted. The first picture is with the Huff family and the second is my lot. Well, I’ve been in this stander thingy nearly 1½ hours now and I can feel my abs spaz so it’s time to get down and get ready for bed…Phillip Don’t count the days, make the days count. | ||||
Sunday, July 26th (Weekend Report) |
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| Written by Phillip Sherwood | ||||
| Sunday, 26 July 2009 | ||||
| This weekend I went exploring and dropped into the Monaco Movie Theater at the Bridge Street Town Centre and got a look at the V.I.P. Privé section exclusively for 21 years of age and up and was able to pop in and catch a movie (title withheld to avoid self-incriminationJ) and from the balcony, I could see the screen at a very appeasing angle. After the theater cleared out, I checked out one of the center front row leather reclining love seats for transferability from my chair. Low and behold it was not too difficult of a transfer even without the transfer board. The nice thing about these seats is that the center armrest lifts to become a couple’s loveseat. This opens another option for me to enjoy now. Another venture I took was to look at the bowling alley at the newly opened “The Station”. I was able to lift the ball and lean over adequate enough to launch it down the lane and there’s no problem with me wheeling my chair up to the throw line. Another bennie is that I don’t have to rent shoes! I met an amputee on Thursday during my last physical therapy appointment and she suggested to me to look into Bowling & Archery. Her first suggestion was to go to a firing range and shoot guns but I no longer find that enjoyable. When I was in the Army Special Operations, I would shoot until my fingers bled pointing countless numbers of rounds downrange and I just burned out. I look at a gun now as an extension of the body used for personal protection and nothing more. I received a phone call from the VA in Augusta, GA inviting me for an all expense paid trip to San Diego to participate in the annual summer games but unfortunately they conflict with another trip I have planned. Some of the events that caught my interest both competitive and non-competitive will be Archery, Scuba and Sailing. Speaking of my physical therapy, this week we concentrated on the Frankenstein feet and both Tuesday and Thursday I was able to exceed the previous visit’s distances travelled but it really wore me out. This was a tough physical week for me and every night within minutes I was out like a light. This weekend I really took advantage of not having any travel or anything else on my itinerary and rested. My pain levels have come way down and my leg spasms have been hardly noticeable. One odd thing is that my right leg and foot went numb and I have no idea why. It’s kind of disturbing and I don’t know why but it’s got my full attention. My WW diet program is going much better now that vacation is over and I am no longer exceeding my daily point’s quota. In fact, my appetite has decreased and I even have points left over at the end of the day. My weigh-in on Thursday at the VA clinic by my apartment, showed a weight loss of only one pound but I had to pee afterwards so I gave myself credit for an additional pound. I feel and can see my Buddha belly going down and although the scale didn’t reflect it this time, I think it’s because I came off the blood thinners 2½ weeks ago and my legs are retaining more fluid. This is evident because my legs are swollen by the end of the day and by the morning; I am able to see my ankles. Well, I need to head to the pool so L8R…phillip“When you don’t feel you have the strength to make it, you borrow some.” | ||||
Thursday July 23rd (Life on the Train) |
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| Written by Phillip Sherwood | ||||
| Thursday, 23 July 2009 | ||||
| Life is like a train ride, it read. We get on. We ride. We get off. We get back on and ride some more. There are accidents and there are delays. At certain stops there are surprises. Some of these will translate into great moments of joy; some will result in profound sorrow. When we are born and we first board the train, we meet people whom we think will be with us for the entire journey. Those people are our parents! Sadly, this is far from the truth. Our parents are with us for as long as we absolutely need them. They too have journeys they must complete. We live on with the memories of their love, affection, friendship, guidance and their ever presence. There are others who board the train and who eventually become very important to us, in turn. These people are our brothers, sisters, friends and acquaintances, whom we will learn to love, and cherish. Some people consider their journey like a jaunty tour. They will just go merrily along. Others will encounter many upsets, tears, losses on their journey. Others still, will linger on to offer a helping hand to anyone in need. Some people on the train will leave an everlasting impression when they get off…. Some will get on and get off the train so quickly, they will scarcely leave a sign that they ever travelled along with you or ever crossed your path… We will sometimes be upset that some passengers, whom we love, will choose to sit in another compartment and leave us to travel on our own. Then again, there’s nothing that says we can’t seek them out anyway. Nevertheless, once sought out and found, we may not even be able to sit next to them because that seat will already be taken. That’s okay …everyone’s journey will be filled with hopes, dreams, challenges, setbacks and goodbyes. We must strive to make the best of it… no matter what… We must constantly strive to understand our travel companions and look for the best in everyone. Remember that at any moment during our journey, any one of our travel companions can have a weak moment and be in need of our help. We too may vacillate or hesitate, even trip… hopefully we can count on someone being there to be supportive and understanding… The bigger mystery of our journey is that we don’t know when our last stop will come. Neither do we know when our travel companions will make their last stop. Not even those sitting in the seat next to us. Personally, I know I’ll be sad to make my final stop…. I’m sure of it! My separation from all those friends and acquaintances I made during the train ride will be painful. Leaving all those I’m close to will be a sad thing. But then again, I’m certain that one day I’ll get to the main station only to meet up with everyone else. They’ll all be carrying their baggage… most of which they didn’t have when they first got on this train. I’ll be glad to see them again. I’ll also be glad to have contributed to their baggage… and to have enriched their lives, just as much as they will have contributed to my baggage and enriched my life. We’re all on this train ride together. Above all, we should all try to strive to make the ride as pleasant and memorable as we can, right up until we each make the final stop and leave the train for the last time.I dedicate this writing to a very special person who came into my life whose stop came much sooner than I expected. | ||||
Tuesday, July 21st (Rape & Torture) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 21 July 2009 | ||||
| This is what happens when your daily agenda has a trip to the auto shop for repairs and after an appointment for physical therapy. I raced to get to my service appoint on time to have my passenger seatbelt system repaired after having been informed by the dealer last week that the parts were in. After waiting in the customer lounge for 1 hr 15 min, the service tech came in to tell me they have to reschedule me for another day that when they removed the old seat belt system and gone to the parts department to get the new system, it was nowhere to be found so they had to button everything back up. This was really perturbing to say the least. As I proceeded to my physical therapy appointment, I ate one of my 8-point powerbars to have enough energy to make it through my entire session. Today was Frankenstein shoes day and remarkably I set a new personal record of three times up and back the parallel bars. I left out of there with my tongue dragging and headed off to the gym for a good stretch session and a good session on the Nu-Step leg cycle machine. After reaching 160 calories in 35-minutes, I dismounted and called it a day. As for the rest of vacation, it was wonderful. Friday was spent again down on the beach and this time I didn’t goop as much sun block allowing a little more sun to penetrate a few layers deeper of epithelia’s. Later that afternoon, we headed down to Flora-Bama for a musical/comedy show. Flora-Bama got its name because it sits smack dab on the border of both states and the state line actually runs down the middle of the bar. When the Alabama side stops serving drinks at 1:30 am, everyone switches to the Florida side to keep partying into the wee hours of the morning. This interesting redneck Riviera looks like a shanty town from the street as you drive by but on the inside there’s a totally festive atmosphere that totally rocks. The Jimmy Buffett song Bama Breeze was written about this roadhouse. The house specialty is their own signature drink that has several types of rum mixed with Kahlúa and is called the “Bushwhacker” and I soon discovered how it came to be called that. They slowly hit you from behind like a freight train and has you ending whacking your way through the bushes on your hands and knees as you try to make your way back home at evening’s end J To top the trip off, I reconnected through facebook with my roommate and stick buddy from flight school. He is now a pilot for Air Tran airlines and is doing well. It was great seeing him and reminiscing about our time together at Ft. Rucker, AL in 1987 and all the crazy stuff we did back then. I can’t believe we were allowed to fly some of the Army’s most expensive and sophisticated aircraft in the inventory. I guess we were lucky we never got busted for the many antics we pulled during the week and the slipping out the back door after Friday’s last formation not to be seen or heard from until Sunday evening’s headcount regardless of whatever restriction to barracks we were under. Saturday morning we all headed our own separate ways and I think the general consensus was that this was the best family vacation we’ve ever had. I was not really looking forward to the long trip home by myself but it had to get done. Just south of Montgomery, there was a huge traffic stoppage that went on for miles & miles. I called my friend Tom Huff and woke him up to get caught up on stuff when he suggested logging onto the web and vector me around the mess. It worked out great and I was on my way again. The six hour trip ended up taking me eight and I was wiped out by the time I got home. Sunday was spent running errands and resting. The pain level by now was peaking and I needed to get some good rest if I even was to think about trying to make it until Friday. Monday I suffered the illusion of reality that the beach was nothing more than a memory stored in my cerebral lobe somewhere in the gray matter. By Monday afternoon my pain was excruciating but I got to my massage therapist just in the nick of time. I left out of there like a limp noodle and slept like a baby last night. I woke up this morning feeling so much better…PhillipThis is a picture of my friend Mike Clemmons & I at our beach condo | ||||
Thursday, July 16th (Deep Sea Fishing) |
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| Written by Phillip Sherwood | ||||
| Thursday, 16 July 2009 | ||||
| The beach is going great and I’ve been accomplishing lots of new firsts. The other night I climbed seven flights of the parking garage in my chair. It was tough but the best climb I’ve had since leaving the Shepherd Center. Tuesday night was the family photo shooting on the beach and having two separate two year olds was proving the near impossible for the photographer. Our hotel is great and very accommodating. I’ve been resting so well that I haven’t had the need to take pain meds however my legs have begun twitching. I’ve taken the beach wheelchair out to the beach twice and even got into the water. It’s definitely not a one-man operation as it’s really difficult to get back onto the beach from the water. Last night we went to play putt putt golf and I was actually doing well but I could not get past the third hole because of the many stairs remaining on the course so I returned back to the clubhouse and pulled out my iTouch to finish watching my Larry The Cable Guy movie and watch the go carts. If there was a way to get into one of those and have it fitted with hand controls, this could be a really fun hobby. This morning was our deep-sea fishing trip that went from 6 am to 1 pm. The morning started out with clear skies and humidity so damp you felt like you were in a hot Turkish steam bath. We headed down the road in caravan to Zeke’s Landing to board the party boat for a six hour fish slaughter. The first obstacle was how to get me over the four foot side and onto the boat deck. It was tricky but doable. Once onboard, there was another eight inch lip to negotiate to get into the cabin. It too was tricky but was negotiated. As we proceeded underway, I was positioned center cabin facing port & starboard. As the boat passed the jetty and headed into the open water, the boat began to list and pitch making me wonder already if I was going to tip over onto the floor. I decided to change my positioning to get as close to centerline as I could and faced bow to stern. At the midway point, I felt an IC was needed so I did a U-turn to face the stern and did my first IC underway. Trying to maintain my balance while trying to thread the eye of a needle and keeping my balance is one exercise I’m not sure even the Shepherd Center could replicate but they gave me the tools to figure it out. After I finished, I quickly realized my wheelie bars had not been turned back around when the boat pitched up sending me toppling backwards. As I hit my brother Daniel’s leg, he quickly turned around and righted my chair before going completely horizontal. I went inside the cabin to facilitate doing my IC but mostly to avoid the overspray caused by the bow breaking the 1-3’ swells. We got to our first site in two hours and proceeded to drop our lines. The fish weren’t too hungry so we went to a new spot about 5-10 minutes away. We started pulling in some red snapper off the bottom but the spot quickly went dead so the captain called out on the boat’s loudspeaker to bring the lines back in. A short repositioning later we were cleared to drop our lines but within minutes, half our side of the boat got all our lines tangled and it took about an hour for the deckhand to undo the mess. There certainly is a disadvantage of having to fish shoulder to shoulder on a crowded vessel. When we were all finally untangled, we started pulling in the groceries. It wasn’t long before the captain called over the loudspeaker to pull the lines in and prepare for the two hour trip back to the marina. Although we got about 1½ hours of actual fishing time, we did pull in some nice keepers making the day’s catch worthy of bragging. The trip back went well as I was able to do better at keeping my balance and doing my weight shifts however I couldn’t lean forward to take the pressure off my back. We arrived back promptly at 1 pm and unloaded the boat. This time it was easier for the guys to lift me up and get me over the side and back on the dock because we were in low tide and the dock height was a couple of feet to our advantage. We got our fish cleaned there on the dock by the deckhand and came back to the condo. As I write this, I still feel the pitching and listing of the ocean. Overall it was a great experience as I accomplished some new firsts in this new chapter of my life. A boat with a walk through transom and a little more maneuverability would have been nicer but the combined effort of everyone made it worth repeating again…Phillip | ||||
Thursday, July 9th (Weight Watching) |
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| Written by Phillip Sherwood | |||||||
| Thursday, 09 July 2009 | |||||||
| My 4th of July trip went great and my trip out I was fortunate once again to get a seat in 1st Class the entire way. The flight home was on Continental and this was the first time I’ve flown with them. They had a small aisle chair that made transferring a real challenge. The flight attendant had to move some people around to accommodate me with an aisle seat near the front so I was seated next to the nicest lady who was also returning back to Huntsville. We talked the entire flight home as she was interested in hearing my story. It was a very nice flight back. Last night she and her friend who was on the same flight invited me to Bonefish Grill where we ate a tasty appetizer of ceviché. They both pledged to help me in the outside floral department when my house is finished. United returned with a response to my complaint saying they’d be willing to pay my taxi and hotel stay for the night for my inconvenience. I think it’s time to execute the next step. Yesterday was my first day of Weight Watchers. I have a really pretty weight watching partner with whom we will keep each other on track. For those not familiar, you get a set number of points you can eat each day with different foods each having their own point value. My point daily limit is 38 which takes into effect my height, weight, age, gender and physical activity level. By not exceeding this number, the weight loss is virtually guaranteed until your goal is reached; mine being 200 pounds. Although my Body Max Index says I should weigh between 147-179, this is unrealistic because six years ago when I was working out really hard, I weighed 181 pounds and was at 10.5% body fat and the doctor told me that was too low for me. If I can eventually get to 185 again one day that would be great although maintaining that would be very difficult. Apparently the raw veggies don’t cost any points because of their high fiber and water content however when I eat a bunch and I get that full feeling, it’s not but an hour later my stomach grumbles again as if it caught me playing a joke on it. Sort of the same thing you get after eating Japanese/Chinese food. My Mom is my WW coach for now until the WW company in North Huntsville moves to South Huntsville. I bought the home starter kit to get me going. Last night when I did my end of day skin check, I noticed a giant ugly bruise on my left outer thigh that I have no idea how it got there. Just three more days remain until our family vacation at Orange Beach. I’m looking forward to it and the big wheeled wheelchair I can take down to the water. This has been the first Tuesday and Thursday I’ve been able to work from home and it is so refreshing. That’s it for now. I need to calculate how many points left I have for the day so I can plan my next feeding…Phillip | |||||||
Saturday, July 4th (Frankenstein Feet.) |
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| Written by Phillip Sherwood | ||||
| Saturday, 04 July 2009 | ||||
| That which does not kill us will make us stronger and God won’t give us more than he thinks we can handle. I’ve been dealing with some deeply personal things lately that are troubling however as a realist, I believe there’s a reason for everything no matter how ironic the situation may be. I’ve taken a trip to visit some friend(s) who’ve known me for quite awhile before my accident to help me put into retrospect the man I was before and the person I’ve become now. We are all products of our environment and the lifelong experiences we’ve had that mold our present self. The week ended with a sudden stoppage like a main rotor blade striking a southern Alabama pine sapling. I’m starting to get the hang of travelling better now. I’ve found the airlines find it easier to let me sit in first class where the seats are easier to access then to send me back into coach where it’s more difficult to get to and transfer. I bought the ultimate “lap” suitcase at the Redstone Arsenal PX for when I travel solo and it works great. I’ve also found the curb-side service at the airport not only will help you with your bags, but they’ll go straight to the front of the line, get your boarding pass and even park your car! Wednesday night I went to Weight Watchers for my first visit to get my weight under control. They don’t have scales to weigh me so I went to the local VA clinic after my meeting with the counselor and established a baseline. My chair stripped down weighs 40 pounds and I weighed 240. I will have to weigh myself every two weeks and have a doctor or nurse sign my book to hold me accountable. I’ve really had a hard time managing this post-accident weight gain and need to step up my program a couple of notches. Thursday my new Frankenstein feet arrived and I took my first test flight with them. They didn’t quite work out as advertised but the physical “torturist” told me I’ll get better and more efficient with it in time. The important thing is that it’s another tool for my arsenal for standing. It’s been about two months now that I haven’t had any difficulty at all with falling asleep and staying asleep. Although I’m not resting as many hours, I’m sleeping a lot deeper. I was informed the motorized electric wheelchair was officially ordered last week. I’ll really be happy to be able to do my standing during the day instead of trying to cram it in at the end of the day when I get home. The expanded accessibility it will provide will be very helpful in so many ways. I am looking forward to our bi-annual family vacation in two weeks to Orange Beach on the Alabama’s southern coast. We have rented a beach house with an elevator and I will be renting a beach wheelchair that will get me out to the water. I hired a new house cleaner for the apartment and I think she’ll work out well. The other two I found on Craig’s list would not present me any form of ID and they were American. The new girl is Mexican, speaks almost no English and had no problem showing me her documentation. I can’t give anyone a key to my apartment without having some sort of traceability. I’ve had to resubmit my documentation to Big Brother’s of Huntsville because the last person I sent my packet to no longer works there so I expect to hear something shortly after the holiday. I’ve finished the next phase of the house contract selecting all the interior options, paint schemes, flooring, etc. so next week I should receive a set of draft cad drawings to preview for the final plan sign off. My $30K earnest check was cashed so everything is definitely in motion now. I’ve decided to go ahead with the surgery to have a Baclofen pump installed that sends metered anti-spaz and pain meds directly into my spinal column negating the need to take the oral meds. Not only is it much more effective but it is targeted directly into the spinal cavity by means of an internal epidural and the sub-coetaneous device is programmable over a 24/7 cycle down to the minute. I will probably do it sometime after my birthday in September where my mother or father can accompany me through the process since it takes a little while to go through the trial, acceptance and fine-tuning process. Last but not least the Army has experienced an increased rate of post-deployment suicides to the point where mandatory training is now required to given to not only the Army soldiers but also to DOD civilians too. Although the DOD civilians are not really the focus of the awareness training we too are wrapped up into the total package probably because of our close working relationships with the soldiers. Since my accident, suicide awareness and counseling has been a constant topic of discussion with my counselors and other health care professionals that I’m not sure what to think about all this. I think I’ve reached the saturation level…Phillip | ||||
Tuesday, June 30th (Quickie) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 30 June 2009 | ||||
| Just a quick note to say all is going relatively well. I’ve been doing a lot of travel and working very long hours so the pain I’ve been feeling in my back and shoulder really was getting difficult to tolerate. I was able to get some good rest over the weekend and recharge my batteries and now I’m feeling much better. I had an appointment with my hair engineer on Saturday and now her creation is taking a new turn. I never know what direction she is going to take my styles so I just trust her and go with it. The other ladies in the Salon are all really sweet to me and it’s a place I enjoy going to. My massage therapist worked me over well yesterday and last night I felt as if I was sleeping on a cloud. Right now as I type, my cat Bob has his head buried into my yogurt cup licking out the leftover. He likes sweet things and as he gets older, his personality is getting more affectionate. The final Government testing of our first production simulator is coming to an end thank goodness. I’m looking forward to going on cruise control for a little bit. Gotta’ head out the door for a day wrought with meetings. I’ll holler at you all later …Phillip | ||||
Thursday Night, June 25th (VA Hospital, Augusta) |
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| Written by Phillip Sherwood | ||||
| Thursday, 25 June 2009 | ||||
| Last night I drove to Augusta, GA for my appointments at the VA after finishing the contract on my house. It took much longer than I expected to do but I had a mountain of things to ensure was to be addressed. I pulled out of Huntsville at about 4:30 pm to begin my near seven hour trip. I got in and to bed about midnight but it wasn’t until about 3:00 am until the room was cooled and dehumidified enough to get comfortable. I started out the day by fasting and getting to the hospital at about 9 am for my vitals check and draw blood for my labs. My BP was 126/75 which is pretty good since I didn’t have any coffee this morning. I was sent to X-Ray to get some pix of my right shoulder to help assess why I’m having so much pain. On the way, I ran into the local Paralyzed Veterans of America reps and chatted with them for a few. The gal was having her Levo manual standing wheelchair serviced and hers was very heavy and several versions older than the one I’m getting. They told me I am a very rare individual in the VA system to be doing as well as I am both personally and professionally and that I’m very blessed. I am blessed in the fact that I’m a Sherwood! After X-Ray, I went to Physical Therapy and saw Abby and met the folks from Permobile to test the demo chair they brought. We also had the wheelchair SME there to look over the mechanical fitting and adjustments that will need to be made. The chair is very lightweight and is made from magnesium, titanium and carbon fiber. The first time up into the standing position, I drooped over at the hips and couldn’t get myself upright because the chest belt was too low. After we fixed that, I tried a second time and it worked well. It only takes a couple of seconds to stand so I got a little dizzy since I’m not accustomed to getting up so fast like that. This took about 1½ hours to do all the measurements and complete the options forms. One great bit of news the PT told me is that I don’t have to turn in one of my other chairs! They just will no longer provide maintenance service to it. After lunch, I met with the doctor and it was a long afternoon. My cholesterol has come down from 237 in January to now 182 however I need to raise my good cholesterol. The podiatrist came to look at my toe and gave me some ointment and gauze to put on it to help with the drainage but said it looked good. We discussed my onset of osteopenia in my left hip and femoral neck and the medication I need to be on for the next six months. What I didn’t know is that if my condition worsens to become osteoporosis, being in a stander can actually fracture the weakened site. They will take another DEXA bone scan at my next annual exam in January 2010 to see if increased standing accompanied with the medication helps. I also received a couple Foley catheter kits for long trips. As for my DVT’s in my legs, I can come off the Lovenox blood thinner and observe my legs for any signs of clotting and swelling. If so, I will have to be on thinners the rest of my life. I will be driving back to Huntsville in the morning after a good night’s rest. I will need to come back in six to seven weeks to pickup my chair and finish up on a couple things I couldn’t get done on this trip…Phillip | ||||
Sunday, June 21st (Monterey Trip Report) |
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| Written by Phillip Sherwood | ||||
| Sunday, 21 June 2009 | ||||
| I had a great visit this week in Monterey with my Brazilian friend Otavio, whom I met while attending the US Army’s Defense Language Institute in Monterey, CA in 1995 for Spanish, and his family. Otavio’s wife Leila contacted me about making a surprise appearance to help celebrate his 40th birthday so I couldn’t really post anything about the trip beforehand on this website. I called him early in the day on June 17th to tell him I’d sent a package to him that I hoped would arrive sometime on his birthday before the day was over. Melissa and I left from Huntsville late that same afternoon on United (I had booked the flight before the United fiasco) with a quick stopover in Denver. The flights went well and I flew in first class both legs. We arrived at the small airport in Monterey at 8 pm PST and it was as chilly as I’d always remembered it to be. We then picked up the rental car and proceeded east along Rte 68 direct to his house. Upon arriving, Leila walked Otavio out their front door and down to the street with his eyes covered to see his “package”. When he opened his eyes, we told him we took a wrong turn leaving Huntsville and just happened to end up there J To say he was pleasantly surprised wouldn’t even begin to describe his state of shock upon seeing us there. We spent the next several days together reminiscing about our nostalgic past gallivants throughout the bay area and crazy motorcycle rides we went on. I also paid a short visit to see Patti Compton who lives in Pebble Beach and had rented a room in her house to me while I was in school at the Presidio. Saturday was Otavio’s birthday party and many of his guests were people I’d known through Otavio nearly 15 years earlier. The trip overall was better than I’d imagined it would be and I can’t wait to do it again! My folding wheelchair was giving us fits due to my lack of maintenance it appears but Melissa did some quick tuning and lube to get me home where my task Monday will be to get to work on it. Upon packing my wheelchair backpack for the flight home on United, I packed as if I’d be stranded for at least 48-hours based on the last return flight I had with them. It seems when you prepare for contingencies, the plan never gets executed but I didn’t mind this time. Last week at work was very long as we entered the second week of Government acceptance testing for the flight simulator I am the production lead for. This Thursday I have a follow-up appointment with the VA hospital in Augusta for several things that will probably run into Friday getting taken care of. One of which is being fitted for and test driving the manual helium assist standing wheelchair. A little good news came tonight when I received a phone call from my realtor that my we have an appointment Wednesday to do the contract on my house so they can start building. I am anxious about the thought of beginning to countdown the days left I have in this apartment and being able to get Bob a new buddy… a new baby German Shepherd. Well, it’s late and I’ve been up since 3:30 am PST and didn’t get much sleep the night before and now the text on the monitor appears to be surfing on a meaty wave. More on the trip later…Phillip | ||||
Saturday, June 13th (NASA) |
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| Written by Phillip Sherwood | ||||
| Saturday, 13 June 2009 | ||||
| I had a great visit this week by my friends from Texas Steve, Raelene and their two boys Josh (12) & Jacob (10). If you recall from earlier posts, Raelene is the nurse who flew in to Huntsville in the beginning upon hearing of my accident to help bring comfort to my family and I and also used her profound knowledge and experience in medicine to advocate in our behalf. I met her husband Steve while racing an arenacross event in Waco and we’ve all been great friends since. That was pretty common while participating in this sport. The friends made were not just as long as you showed up to the same track at the same time but forever off the track as well. I invited Steve to bring his boys to the simulator facility to see the new Black Hawk flight simulator we are conducting the final government test on. While giving them the standard tour like I’ve done for generals and other aviation folks, the two boys seemed really interested and asked some very good questions as they related to their experience with aviation flight software on the computer. With the help of one of my contractors who could fly the box, we put Jacob in the left motion seat to begin his “nickel ride”. At the end of his flight, the contractor facility manager initiated through the instructor/operator station in the back a left engine fire that resulted in a crash landing and getting the red screen of death on the visual system. Next was Josh’s turn so again he went through the same nickel ride sequence of flight familiarity in an all digital glass cockpit and flight controls. To end his flight, we input a left engine out malfunction that eventually resulted in a catastrophic collision with the ground and red screen(s) of death. Today we went to the Space & Rocket Center Museum where inside was a mock up of a space shuttle simulator with very limited functionality. After their flights, they were very disappointed in the NASA simulator and preferred the $14M Army Black Hawk simulator instead. It was so nice to see them again and share some new lifelong memories… This week I really had a hard time with pain in my chest, right shoulder and back. There couldn’t have been anytime greater where a motorized wheelchair would have been so nice to have. I still went to the gym and exercised what I could but I had to defer my Tuesday Physical Therapy appointment to Wednesday. During my Friday appointment, we started with my weigh-in followed by CORE and torso balance exercises. I called it the balancing chicken dance. My weigh-in didn’t result in a weight loss or gain so I’m still six pounds less than my beginning weight. I’ve also discovered that if I get in my stander at least for an hour before going to bed, my legs do not spasm at all while I sleep. One night about a month or two ago, I woke up at 3 am to do my IC (catheterization) and take my spaz meds when I realized I forgot to bring them from the bathroom to set on the nightstand so I had to pull off my smurf booties and transfer to my wheelchair to get my meds then transfer back into the bed and don my smurf booties and try to fall back asleep all sweaty and heart racing (my English teacher would be disappointed by this severe run-on sentence). Well, last night’s 3 am IC I realized once again I forgot my spaz meds but this time I was so tired I just went back to sleep. When I woke up to get out of bed, my legs were severely contracting and I knew it would take longer than the normal 20-minutes to get into my wheelchair so I did a quick 10-minute leg stretch and was able to effectively transfer into my chair. Another surprising development happened the other morning when I was woken at 5:30 am with a feeling in my rectum that I needed to do #2 w/o delay. Usually now I can feel when I need to do either #1 or #2 and I’ve been woken off-schedule to do an IC but this was the first time for the other. I think the intense CORE exercises I’m doing now are beginning to contribute to new sensations. With my friends gone back to Texas and my upcoming trip this Wednesday, I’ll probably spend tomorrow getting caught up on apartment chores, hit the pool and prep for my trip…Phillip | ||||
Wednesday Night, June 10th (Mid-Week Review) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 10 June 2009 | ||||
| The week started out fast and furious and I’ve been going mach 6 with my hair on fire. I woke up Monday morning feeling ok but within a couple of hours I started to experience a piercing pain in my left chest and left shoulder blade beside my spine with a continual and relentless abdominal contraction. This was the most pain I’ve felt since leaving the hospital. I was hurting so bad I had to take two Vicodens and went to bed early. The next morning, my left side was good but the pain transferred to my right side and it was intense enough that I had to reschedule my physical therapy appointment for today. Later in the day on Monday, I had a follow-up appointment to get my toe looked at. The doc said it looked good, took a new culture and said they’ll call me if anything pops up. I’ve been working some long hours this week and predict a coma coming on for Saturday. I talked with my friend Carl who was the regional secretary for the Paralyzed Veterans Association (PVA). He has a Honda Gold Wing motorcycle and he had a sidecar installed to allow him to carry his wheelchair and to use to transition onto his seat. I am going to go to his house and get a look at it. If I can get on it and ride it like he does, I will look into getting a sidecar for my bike and do the same. Today during my physical therapy, we discussed what we will do for Friday then we began to do more CORE exercises. My torso balance is getting a little better but I still have a long way to go. Tomorrow my friends Steve & Raelene will be here as they stopover on their way back home to Texas. If you can remember, Raelene is my special nurse friend who came here to Huntsville immediately after hearing of my accident. I use to race motocross with her husband Steve when I lived in Texas… Phillip | ||||
Sunday, June 7th (Weekend Update) |
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| Written by Phillip Sherwood | ||||||||||||||||||||||||
| Sunday, 07 June 2009 | ||||||||||||||||||||||||
| I’ve still not heard anything from the Big Brother program yet so I was going to make a pit stop at their office this week to follow up on my application. This past week was a grueling one. My “Physical Torturer” put it to me on Tuesday and I left out of there with my tongue dragging behind me. We did a lot of CORE exercises to begin stimulating more nerve demand in my abdominal area to help me with balance. By Thursday, my right rotator cuff became inflamed from the rigorous shoulder routine we did. Friday was weigh-in and I was disappointed. I’ve been working and eating better but the results didn’t show it. The scale system we use is kind of unorthodox. We put one scale under each wheel and take a cumulative total three times and average it out. I recently found out the VA clinic here by my house has a special digital scale for wheelchairs so I think I will go there to get a reading every other week. I was at the clinic to turn in a urine specimen. One of the conditions for being prescribed narcotics by the VA here is you have to sign a contract agreeing to many different things one of which is submitting to urine analysis exams upon their request. I guess they want to ensure you are not exceeding the levels that are prescribed and also to test for any other non-prescribed medications. On Monday I had an eye exam courtesy of the VA at a local optometrist’s office. I haven’t had an eye exam since my last flight physical in 2004. The great thing is not only did they do an exam but they are providing me new glasses too. I was never aware that benefit existed until I heard a man in front of me in the line at the VA asking for one. I guess it pays to be aware of one’s surroundings. The other morning I was cleaning out Bob’s kitty litter when my forward center of gravity exceeded the limit as I was bending forward and I hit the floor before I even know what hit me. Luckily I did not fall into the litter box J To get back into my chair, I had to do the butt scootin’ boogie dragging my chair behind me to the living room where I keep my “paraladder” to get back into it. On Monday, I also went to the podiatrist and he had to reopen my toe and clean out the pieces of nail he cut out previously but didn’t get all out. Hopefully now it will heal up for good. Last night I went to a local arena football game here and it was a lot of fun. I’ve never been to one before and didn’t know what to expect but I did catch a t-shirt thrown up into the stands during one of the breaks in the game. This week, my first production simulator will begin the last phase of Government testing here in Huntsville before we deliver it to the 101st Airborne at Ft. Campbell. These next three weeks are going to be very busy but I look forward to finishing the process. I hope everybody is enjoying the beginning of the summer months and are protecting their skin… Phillip | ||||||||||||||||||||||||
Thursday Night, May 28th (Live from New York) |
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| Written by Phillip Sherwood | ||||||||||||||||||||||||
| Thursday, 28 May 2009 | ||||||||||||||||||||||||
| The trip up here to Binghamton went very well and there were no problems from Huntsville to the hotel. I am doing all my in and around travelling using the local taxi service. It’s amazing how well the taxi drivers are familiar with breaking down a wheelchair. When they see my transfer board they seem surprised and equally relieved. My taxi driver today was an owner/operator of his single vehicle corporation. He drives a minivan and has two DVD players mounted to the back of the front seat headrests and plays comedy DVD’s for their passengers so they arrive to their destination in a happy state of mind. I thought this was ingenious. I took his card and told him to pick me up at 5 pm from the Rockwell Collins facility and when I rolled out the door he was there ready. When I got back to the hotel, I went to use the bathroom adjacent to the lobby and there were two homeless guys in there washing themselves. One made a comment to the other about how expensive the hotel was to give the appearance he was a guess. It took the other guy a few seconds to catch on and play along with it. Binghamton is/was primarily a manufacturing town that was hit hard by the recession and the rate of unemployment is relatively high. There’s also a catholic church on almost every street corner. It’s been rainy and cold the entire time so far here. This place is so very opposite from Huntsville. Folks tell me they like my accent but I think they are the ones who really have the accent. I have a handicap accessible room at the end of a long carpeted hallway here at the Holiday Inn. It’s a very spacious and nice room but they missed the mark in a few areas. The door has two peepholes; one for ambulatory people and the other is lower and comes up to about my bellybutton. If I try to look out of it, I run the risk of dumping out of my wheelchair forward like I did in the van so I won’t look out of it should a knock ever come to the door. The bed is very big and comfortable but it’s very difficult to get into because it’s so tall. When going to bed at night, I have to do a good pre-flight to make sure I have everything I’ll need during the night so I don’t have to get out of bed to retrieve anything like forgetting my cell phone on the desk like a big dummy. The desk is not quite tall enough for my legs to fit under so it’s relatively useless. The window is really easy to operate because it has a lever that rotates to open and close it. The bathroom has a ramp to get up to it that I have to get a little running head start to make it up. I have no idea why the bathroom was built at a higher level than the rest of the floor in the room. The toilet is really tall and I have to extend the legs of my toilet chair almost all the way to give me the clearance I need to do my business. This makes for a very challenging transfer. The shower is a nice large roll-in shower like what I am going to have built in the master bedroom in the new house. This is a good opportunity for me to get a better idea how to have mine built. The first thing I will do is ensure a towel rack is nearby and within arms reach in case I forget to bring a towel and only realize it after the shower is done and I’m sitting in my shower chair soaking wet thinking how much it’s going to suck soaking my wheelchair seat bottom and back rest like I did this morning. The roll under sink is really nice because it’s fully accessible and the pipes are protected from burning my legs. The mirror is mounted a little high but at least I can see the top of my head enough to fix my hair. Leaving the bathroom I roll down the ramp with enough momentum to coast all way the across the room to the other side. I grab my shirt from the lowered clothes rack beside the bathroom ramp on the way down because it takes both hands to push my chair up the ramp. I’m going to dinner with a friend of mine I worked with in the 160th Special Operations Aviation and again in Colombia who will be here Friday for business. It’ll be an early night because I have a 6 am departure from the airport Saturday morning. Time to get some dinner so I can get to my room and go over my notes from today…Phillip | ||||||||||||||||||||||||
Sunday Night, May 24th (Big Brother) |
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| Written by Phillip Sherwood | ||||
| Sunday, 24 May 2009 | ||||
| I’ve had a good and progressive week with both work and my therapy. Every Friday is weigh-in now where last week was my initial at 239 pounds. Last Friday it was 233 and my goal is to get back down to 200 the weight I was at the day of my accident. I didn’t sleep a wink the other night while thoughts just raced through my mind about how for the past 2-3 months I’ve spent at home in the apartment by myself. I thought about things I could do with my time to not only keep me busy doing something outside the home but maybe helping someone else in a volunteer capacity when the thought entered my mind about the Big Brother program. I was the oldest of three growing up and never had a big brother myself. There is a category called corporate mentoring where you meet with a high school aged kid once a week during lunch and focus on strengthening academic skills, leadership, social development and career exploration. At the races and back when I was teaching karate, I always seemed to connect well with the kids in a way they were never able to with their own parents. After the background checks and contacting my references, they will call me in for an interview and if approved, will match me up with someone to arrange a meeting. I’ll keep everyone posted on my progress. Friday was my day off from work and luckily I didn’t get called in this time for a meeting so I could enjoy a nice relaxing day beginning with my physical therapy appointment. I was measured for my Frankenstein walking apparatus then proceeded to work on floor exercises. The first thing I had to demonstrate to the physical terrorist was how I dismount the wheelchair to the floor. This is a natural phenomena I have practiced several times both voluntarily and accidental. Next was how to get myself onto the “exam” table which was actually not too bad. The next drill was to try and get back into the chair from the floor. This by far is my biggest challenge. I can come so close but I get into muscle fatigue & failure before I can get twisted back around and into the chair thus gently lowering myself back to the floor. The next morning was hair 911 and I had a badly needed appointment with my hair engineer. I guess she’s been watching a lot of American Idol because she’s envisioned my new summer look to be a rock star I left out of there in much better shape than when I showed up. Today my former neighbor Bob and I jump started my truck and got it down to SEARS to get the batteries checked out. It ended up taking all afternoon to do both batteries since they only had one tester and they still didn’t get finished because one of the batteries needed a long slow charge so I expect it should be done by Monday. While waiting, I got a look at a lot of the GE home appliances to get an idea of what will work best for me in my new house. These past couple of mornings I’ve been really tired in the morning and sleeping in until 10:00 am as compared to the past two Saturdays where I spent almost the entire Saturday in the bed resting. I’ve been really pushing myself physically and have upped my workout routine in the gym. Time to hit the sack…Phillip | ||||
Wednesday Night, May 20th (Mid-Week Review) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 20 May 2009 | ||||
| Sunday after church, I went over to Curtis & Melisa’s for BBQ and to play with their remote control cars. We had fun and I had a ball. It’s amazing how fast those little things go. I borrowed Melisa’s son’s car and the whole time he kept screaming out, “Don’t crash my car”. I was doing well until… that curb got in my way when the car went into a blind spot. I ran that thing into a curb head-on at about 30 mph and it disintegrated. On Monday, I was notified by the VA that I was approved for the standing wheelchair so now I need to get to Augusta to be measured and fitted for the chair by the VA Physical Therapist and the LEVO chair reps. It will take a couple of months to make it after that. On Tuesday I had an appointment with my PT here and he really worked me over good on the mat. I left out of there with my tongue dragging in a pool of sweat. I’m not sure what we’ll be doing on Friday but I’m getting a good night’s sleep Thursday night. Later in the afternoon, I had an appointment with the Physiatrist to follow-up on the botox injections in my left calf to loosen the muscle to reduce the spasticity and help relieve some of the foot droop. I also had a quick visit to the local VA clinic here to follow-up with the doctor here on my pain management and precursor to osteoporosis. I had to sign a contract agreeing to the terms of distribution of narcotics and although I think it’s a good idea, I wonder how many vets have just blown it off. It seemed when I was at the VA as an inpatient, so many of them were obviously overmedicated. Time to get into the stander… Phillip | ||||
Saturday Night, May 16th (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Saturday, 16 May 2009 | ||||
| This was a pretty tough week and the weekend couldn’t have arrived at a better time. I found out on Monday that my MRSA returned so I am back on the antibiotics once again. I’m not sure what or if this is having any impact on my energy level but today once again my batteries had gone to zero. Like last Sunday, tomorrow I plan to swim at the pool provided I can get a good night’s rest tonight. I had a follow-up appointment with the VA psychiatrist to basically see if the sleeping pills she prescribed me were working in which I replied they do however I only take them occasionally to break periodic sleepless cycles. The next thing she enquired about is if I have suicidal tendencies. The answer was no. On Tuesday I had a Physical Therapy appointment where I tried the Frankenstein walking system. Getting into it is tricky because you have to get on the floor and slide into it. Getting into it is not nearly as difficult as it is to get into the standing position. This is where the goon squad really comes into action. Once I was standing between the parallel bars the object is to lean to one side while allowing the opposite foot to lift off the ground and come forward. It’s a lot easier in theory than in practice. I wasn’t able to get my feet to break surface contact so it took the work of helpers to move my feet forwards. I went up the length of the floor, took a rest, and then came back to my starting point. I was whooped at this point as I felt I’d just run a marathon. The sweat from my brow was stinging my eyes. I was helped back down to lay on the floor to get out of the device. I was smoked. I was feeling the effects of over exertion but after a little rest, I was able to recover and go on my way. The Frankenstein thing is actually called a RGO which stands for something I don’t recall. The leg portion fit well but the torso section didn’t so until I can get a device custom made for my body, it will not be very productive for me to continue to use the device at the clinic. My next visit to the PT was to take my actual height & weight. For the height, I had to be stood up and measured while being helped to get my body erect. This was the first time I was measured and I was 5 ft. 10¾ in. vs. 5 ft. 11½ in. before the accident; ¾ of an inch shorter now. The next challenge was to weigh me. The clinic does not have a wheelchair scale like at Shepherd or the Cancer Institute here in Huntsville so problem solving creativity kicked into full gear. After trying different combinations of scales and two wheels vs four, we found using four scales was the most accurate. After weighing me in the chair three times and taking the median of the cumulative weight of all four scales added together then doing the same with the chair empty, my weight was 239 lbs. compared to 200 lbs. the day of my accident. Needless to say I have some work to do in this area. I have an appointment scheduled with my physiatrist for this Monday to discuss a weight management program and to get a prescription for the Frankenstein RGO so it can be billed to my insurance and put on order. Yesterday at the gym I had a really good workout and slept well. My nocturnal spasms have not been a problem lately so my sleep has been getting better at night although I still have some nights where I’m unable to fall asleep at all. Today I spent most of the day resting like I did last Saturday. This week I also hired a cleaning service to come to the house every other Thursday. Without having the financial burden of the house in Texas anymore, it makes a decision to do this a no brainer…Phillip | ||||
Wednesday, May 13th (Compelling Letter) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 13 May 2009 | ||||
| In hopes of getting the VA to provide me with a standing wheelchair, I was instructed by my Physical Therapist at the Augusta VA to provide her with the reasoning behind my request for this piece of equipment since it is not the “norm” and the request must be presented to their Service Line Executive. I’ve developed pre-osteoporosis in the neck of my left femur and pelvis found in a recent DEXA scan determination of -1.0 that was conducted by the VA in Birmingham, AL. My physical therapist recommends I try to spend more time in the stander to slow down the rate of bone degradation however my full-time job with the Government and my physical therapy after work makes it difficult to spend more than 1-hr/day in the stander. A Manual Standing Wheelchair would greatly help me achieve this goal as it would afford me the opportunity to stand multiple times throughout the day. Additionally, my job requires that I brief the flight simulator project I manage to many other Government agencies and Foreign militaries that purchase our U.S. Government products through the Foreign Military Sales program. It would better facilitate my ability and effectiveness to deliver these briefings from behind a briefer’s podium while standing rather than sitting in my wheelchair fighting occasional and spontaneous spasms interrupting the flow of the presentation. Another benefit would be the accessibility I would have throughout my house of any needed item greater than five feet (ie. Cabinets, shelving, top shelf of refrigerator, etc.) Recall I live alone except for my cat and although he finds ways to access these tall places, he is unwilling and/or assist me things and put them back. It would be nice to be able to stand and sing hymns with the rest of the congregation when the song leader calls for all to stand. The ability to stand while at indoor/outdoor gatherings (exp. sporting events) would be so much more enjoyable when you can see what is taking place. I get very discouraged from going to an event and not being able to see because the level of excitement of a particular instance compels everyone to stand thus blocking my view and I miss out on the action. I’ve come to withdraw from these events I so much use to enjoy because of this. To summarize, not only are there health benefits to standing but also to improve the performance of my professional duties. More important than the convenience of being able to extend my reach and visual range, it really comes down to an overall improvement in the quality of life. Although the standard electrical standing wheelchair offers a complex array of sitting, standing, tilted or reclined positions and the ability to operate on unimproved surfaces that a standard manual chair is unable, I do understand my level of injury would not qualify for this type of wheelchair. I therefore humbly request to be favorably considered by the Service Line Executive to authorize the purchase of a Manual Standing Wheelchair that few others have been provided in the past by the Veteran’s Association. HEALTH BENEFITS OF STANDING• Better physical balance and psychological well-being.• Reduces muscle contracture and spasticity.• Better muscle tone.• Reduces bone decalcification and osteoporosis risk.• Prevents pressure sores.• Substantially less transfers daily.• Better kidney and bladder functioning.• Better blood circulation.• Eases digestion, improves bowel function, reduces wind. **Optimal benefit is obtained by repeated alternating of the position “seated-standing-seated” over relatively brief periods. | ||||
Sunday, May 10th (Week in Review) |
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| Written by Phillip Sherwood | ||||
| Sunday, 10 May 2009 | ||||
| This trip to Nashville for the Aviation conference will be one I’ll always remember as one of the best. Being reacquainted with old friends and making a bunch of new ones was truly a joy. I got a chance to meet and talk with Wynona Judd (photo below) and talked about why we do the things we do in life is because we love what we do and it helps others. She was being escorted by GEN (Ret) Dick Cody who was once my commander in Special Operations Aviation. The highlight to my trip was meeting up with my high school friend Debbie Stickley-Farkosh (photo below) for dinner on my way back home. We have not seen each other since graduation day 28 years ago. It was nice catching up on the lost years and the different paths we both took after high school. I’m proud of her and the selfless sacrifice she made for the caring of her two children who life dealt rotten hands to. Also it was nice meeting Mallory too (photo below). I’m also proud of my friend Max Beidler who I always looked up to as a mentor came back from a terrible tragedy within his family and is doing great. The 2½ drive home was dark and rainy but these types of driving conditions don’t compare in the least bit to some of the flights I had in Panama on zero moon illum nights over the water flying 120-145 knots 50’ above the water in bad weather using night vision goggles or flying in a shamal in the desert with an outdated aircraft sparsely populated with antiquated instruments and a copilot right out of flight school. Now those are serious pucker factors! On Thursday I had an appointment with my toe doctor because my toe still has not healed so he took a culture and I should find out the results Monday. The last culture taken a couple of weeks ago came back negative. Next I had an appointment to see my psychologist. There’s still much to do in this area to help overcome hurdles and setbacks. She and the psychiatrist I see had their own private practice but now are employed by the VA here in Madison. On Friday I had my first follow-up appointment with my new Physical Therapist and it went very well. He had a padded board mounted to a railing that he used to brace my knees while he pulled my waist belt from the front while two thugs helped lift me from the side to help stand me up. This was to check my gait and trunk control (or lack thereof) in order to take measurements to fit me with a device to help me stand and walk artificially. This was the first time I ever stood on the ground on my own two feet since the accident and I was amazed at how tall I was compared to the others in the room. I was taller than all the others and they thought I was 6’2” but we didn’t measure… this time. My Buddha belly also stretched out and I didn’t look so fat. That is something I am working on seriously now. While supporting myself in the standing position after awhile, my arms started to quiver so the PT told me to add more triceps’ exercises into my workout routine since I will be doing more standing therapy this Tuesday. After my therapy session I was stoked and am looking forward to each session. Later I went to the gym and had an awesome stretch session with Matt who works there and bent my legs into contortions I think not even Gumby would be capable of. Afterwards he helped me with specific exercises to isolate the triceps and today these pythons are really sore. At the conclusion of my workout, my favorite NICU nurse Stephanie Wilson and her friend arrived to get a workout. She was able to bring calmness and tranquility to me while I was under her care at the Huntsville Hospital Neuro ICU. We were able to get caught up on what I’ve been doing since leaving her care which also helped her to pass the time while she was on the stationary bike. Between Stephanie, Melissa, Otavio, Isaiah, my family and friends who all took me by the hand and pulled me through the toughest challenge in my life, I am convinced I am the luckiest man on this earth to be loved by so many people and I would not trade that for anything. I spent almost the entire day Saturday resting in a coma state. My batteries were completely discharged and I didn’t realize how badly I needed the rest but I feel much better today so much I’m heading to the pool after this post. I will be taking some trips in the upcoming weeks some near and some far. Some are work related and others are to visit friends. More on that later. My friend Curtis had a baclofen pump installed to help control his spasms. It sends a line directly into the spinal cavity like an epidural to deliver pure baclofen and later a pain killer. Although the first few days were really difficult for him, his wife Melisa says there’s already a much noticeable improvement in his spasticity and his ability to sleep better in the night. Curtis is also looking into stem cell therapy now so I will keep my eyes on him to see how he progresses. He’s had a really tough time with this injury so I hope all these things bring forth a substantial improvement to his quality of life. One thing is for sure, adversity opens the door for opportunity and this is applicable in so many different ways. I’ve also always believed that the darker the cloud the brighter the silver lining. We all have hurdles in our lives that are psychological, physical or a combination of both. Everyone has some level of depression or loss to deal with and we all deal with these things the best way possible. I believe there’s a reason for everything and it might not reveal itself immediately but at some point it will. It’s important is not to dwell in the sadness of a situation and fall into the abyss of self-pity but look for the positive that you can use to strengthen yourself by and influence others around you. Taking a step forward may seem easier said than done but it beats the alternatives… Phillip | ||||
Wednesday, May 6th (Class Reunions) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 06 May 2009 | ||||
| Today I am writing from the Opryland Hotel in Nashville, Tennessee where I am attending the annual Army Aviation Assoc. of America (AAAA) conference. It’s like an aviation class reunion where every year we meet up with folks I’ve been associated with throughout my military aviation career going as far back as 1987. It’s been great in the fact that I’ve seen so many friends and former coworkers. The downside is that this place is 90% carpeted and yesterday I got one serious workout! My room was upgraded as a courtesy from the hotel and it’s really nice with a balcony overlooking the river inside the “green” jungle section of the hotel. I had a great night’s sleep and the drive up here went very well as I was able to keep the bad weather in my rear view mirror. I will be coming back to Huntsville tonight. My house closing in Texas was finalized on Monday and that is a great relief to me. The contract on the new house is still in limbo as the lots still have not been released yet. I have a Physical Therapy follow-up appointment this Friday to the initial assessment I was given last week. I met this new Physical “Terrorist” a few weeks ago when I went to the Fourroux Prosthetics clinic to get fitted for new compression stockings. I interviewed him and really liked his approach and his apparent knowledge of working with spinal cord injuries. During the initial assessment, he asked many questions to probe my status much deeper than any other therapist and his no nonsense thick skinned approach to work towards as much improvement as possible for me to regain is the attitude I am down with. My devils triangle of sleep, pain & spasms are getting easier to manage. I am also getting a little more feeling of when I need to go #1 & #2 although I still maintain a set schedule just in case J. Here are some pics of my new ride. It just needs to be fitted with hand controls. | ||||
Wednesday, April 29th (Medical Update) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 29 April 2009 | ||||
| Last week the Birmingham VA ran a DEXA bone density scan and cerebral MRI. The MRI was normal however the bone scan revealed a Bone Mineral Density (BMD) rating T-score of -1.0 on my left femoral neck and pelvis. A T-score of -1.0 or greater is “normal”, -1.0 to -2.5 signifies “Osteopenia” and below -2.5 is classified as Osteoporosis. Osteopenia is considered by many doctors to be a precursor to osteoporosis. However, not every person diagnosed with osteopenia will develop osteoporosis. Osteoporosis in my case is brought on by reduced physical activity and inactivity which may significantly affect life expectancy and quality of life due to the complications pelvic and femoral fractures may cause (ie. pneumonia). Exercise, Diet, Medication and Weight bearing may help stop or reverse osteoporosis which I combat by standing/weight bearing (I’ll be doing more now) and my E-Stim bike but the amount of recovery is only about 1-2%. This is something I will need to monitor now on a yearly basis. My Physiatrist injected my left calf with Botox yesterday to help relieve some of the spasticity in that leg and to help relax the left calf to help alleviate the foot droop that’s developed. My right leg is doing well and lately I haven’t had any problems with spasms waking me up at night while sleeping but something else is causing me to not get much sleep these past couple of nights so tonight I’ll have to take a sleeping pill to break the cycle before spasms and pain levels increase more than they already have. I was recalling the other night how early in my condition the weakness I felt made me have to force myself to breathe to prevent being put on a ventilator thus risk increased weakness and atrophy of the intercostal muscles (meat between the ribs). The increase of carbon dioxide in the blood sends a signal to the brain that alerts the autonomic nervous system to cause the intercostal muscles and diaphragm to expand and contract the chest cavity to allow the lungs to inhale and exhale oxygen. When the spinal cord is damaged, the autonomic nervous system goes into shock and depending on the level and severity of injury can affect the ability to breathe. Sedatives such as muscle relaxers, sleeping pills and pain killers affect this process. That’s why for example why in the terminal stages of cancer the patient comes to a point where an increase in the dosage amount of Morphine to combat the pain will kill the patient. An overdose of barbiturates will cause this process to “paralyze” the breathing process and being cognizant of this fact coupled with my medical background enforces the reason I need to moderate my taking the combination of muscle relaxers, sleeping pills and pain killers I’ve been prescribed to alleviate my ailments. I keep my primary physician at the Augusta VA well informed of any and all treatments I receive outside of her care. This is one reason it’s very important when you visit a doctor to be able to inform them of any medications you are taking. If you ever are not sure what should not be taken together with another medication because of how they may react when mixed, any licensed pharmacist can and will gladly advise you of any risks you may have…Phillip | ||||
Sunday, April 26th (Resting Peacefully) |
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| Written by Phillip Sherwood | ||||
| Sunday, 26 April 2009 | ||||
| These last couple of weeks have really exhausted me to the point that yesterday I rested almost the entire day. I started the day this morning feeling refreshed and with a new set of Energizers®. I went back for a follow-up on my toe on Thursday and the MRSA was cleared. The culture taken on Monday showed no trace but the doctor gave me a new prescription of antibiotics to take. I’ve been able to keep my trifecta of pain, sleep and spasms better in control since coming back from my trip to Maryland and it really makes a difference on my ability to perform the duties my job demands. The other day I went by an Orthopedic/Prosthetic facility to be fitted for new compression stockings and while there I met the facility physical therapist. I asked him what experience he had working with SCI patients and what type of post acute phase therapy he does. He brought me back to the “torture room” and showed me a gadget he uses to help promote standing and even walking. It was a simplistically designed apparatus that looks like tall shin guards and a back plate connected by hinged spring loaded rods so as you shift your weight to one side relieving weight from the opposite foot, it lifts up and moves forward. This back and forth weight shift causes the feet to alternately step forward while using a pair of parallel bars for balance. This therapist really believes in spending a lot of time upright and standing. Today in Huntsville was the annual arts & crafts fair called Panoply and the weather was great. I got lots of sun on these white limbs of mine while Melissa and her daughter Lilli Grace showed me all the cool things to paint and decorate. Everything else is going well and I’m ready to take on this next week…Phillip | ||||
Wednesday, April 22th (Doctor, Doctor, Gimme the news…) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 22 April 2009 | ||||
| I had a very enjoyable trip in Maryland visiting with my friends & family. The trip to the airport on Friday was a tense one although we left early enough; we encountered heavy traffic the entire route. It was a miracle that not only did I get on the flight but my luggage made it back to Huntsville with me! I lucked out and was given a first class seat again leaving Baltimore. The weekend was relaxing and an opportunity for me to unwind from the trip. Saturday night Melissa and I went to visit Curtis and Melisa and catch up with them. Curtis was preparing for a Baclofen pump surgery and both were happily busy upgrading their house. On Monday, I went for a follow-up on my toe and all is going well. They took another culture and the results should be ready for me on Thursday. Yesterday I had an appointment at the VA to get a cerebral MRI and Bone Density Scan done in which I should get the results in about a week. Because early onset of osteoporosis is a concern, the VA decided to establish a baseline. I was also able to get a referral from the SCI Nurse Practiconer to Prosthetics for new compression stockings but because the Birmingham VA doesn’t stock above the knee stockings, they gave me a credit slip for a local vendor here in Huntsville to supply me. My cat Bob has been friendlier since my return and now comes up to my head at night while I’m asleep to cuddle however at about 5:30 am, he still likes to play commando and pounce on me while trying to evade capture and having to endure POW status. Today I had a dental appointment and the dentist has a really nice and new office building with handicap parking right in the front. Everything else seems to be status-quo…Phillip | ||||
| Last Updated ( Wednesday, 22 April 2009 ) | ||||
Thursday, April 16th (The Day After) |
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| Written by Phillip Sherwood | ||||
| Thursday, 16 April 2009 | ||||
| I went to see the Universal Design Home the other day that was constructed to meet the needs of ambulatory, elderly, wheelchair and the hearing impaired. The interesting thing about the house is that it’s designed in a way where the adaptations and modifications aren’t so apparent unless they are pointed out sometimes. While Dan and his family were here, his wife Becky is a nurse tended to my toe and it looks really good now. Sunday after I did my post, I felt really tired and took a nap. When I woke up, I began to spike a fever and I felt more fatigued than normal so collectively we decided as a family to take me downtown to the Emergency Room just in case. In my condition, my health can go from good to bad faster than before my accident. I took a couple of Tylenol before I left but by the time I was seen by the doctor, my fever had already come down below one hundred. The doctor talked about the MRSA infection I have like it’s an everyday occurrence now and that it’s here to stay. He changed me off of the tetracycline to two other different antibiotics. Until yesterday, I spiked a fever every day. The fevers aggravated my spasms too at night making sleep very difficult. One terrible side effect I suspect was caused by the tetracycline was bladder reflux similar to incontinence. This was terrible and it took the wind right out of my sails. It was late Monday afternoon and now I was rushing to find a medical supply store that carries condom catheters that will be open long enough for my younger brother to get to and pick up before they close. I was hoping he wouldn’t hit a dear on the way like he did the other night when he left Mom’s house. Luckily he made it without a minute to spare and accomplished the mission. Once the tetracycline left my system, I haven’t had any further occurrences. I called the VA in Augusta and spoke to the nurse about this and she said it’s not uncommon that certain antibiotics cause different reactions in people with spinal cord injuries. I’ve been able to take care of myself pretty well here and Mom has really adapted her downstairs nicely to accommodate me however the shower transfer is the most difficult. I can’t maneuver my wheelchair close enough to the shower chair that I’d like and the toilet is real close to the bathtub making getting on the chair difficult but getting off the chair back onto the wheelchair downright treacherous. We went out to a local seafood restaurant for crabs and they were big and delicious. I didn’t eat nearly the amount I was used to putting down in a single seating but I got enough to last me quite awhile. My cousin Tim showed up to my surprise. He’s one year older than I and we grew up together but went to different schools. It was great seeing all my nieces and nephews all under one roof but I will admit the ER was much more peaceful J I gave my 16 year old nephew Matthew $10 to detail my wheelchair and he did a good job. I think it actually goes faster now too with less parasitic drag. Yesterday I went with my mother to go see a play at the Olney Theater near where I grew up called Call of the Wild. It was a musical but interesting in the way it was portrayed from the point of view of the sled dogs. It’s been cold and rainy everyday I’ve been here except for today. The sun is out finally and warming up the outside. Tomorrow I begin my trek back to Huntsville and should arrive in the evening and hopefully back into the arms of my beloved country girl…Phillip | ||||
Sunday, April 12th (HAPPY EASTER to ALL!!!) |
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| Written by Phillip Sherwood | ||||
| Sunday, 12 April 2009 | ||||
| My Wednesday appointment with the podiatrist went very well and no sooner as I got myself comfortable the time flew by so fast and procedure was done. I warned him and the nurse that when they stick me with the needle to anesthetize my big toe that it will jump and jerk uncontrollably so hold it down good. Sure enough when they stuck the toe, the foot did not like it one bit and started to flop around like a fish just dehooked and thrown onto the ground with the syringe still attached. One the lidocaine made its way in to the soft tissue, the leg calmed. While the doctor was cutting on my toe, I was participating in a telecom for work. The doctor was doing his thing while I did mine; both operating in our own worlds of expertise. I slept relatively well that night with the aid of the 5 mg of hydrocodone but I could feel the small isolated spot where the work was done but there was no pain or throbbing sensation. Thursday all was well so I put on my shoe and headed to the office. Thursday was a very busy day as I had a lot of tasks to tie up in preparation for the following week away from the office. I went home and began packing for my trip to Maryland which was made possible by Little-Cat-Z coming over to get my suitcase down out of the closet. As I pulled the bandages off to clean and redress the toe, it sprung a leak and had to be stopped before my room looked as if a mass murder was committed thanks to the blood thinners in my bloodstream. Friday morning Curtis’s wife Melisa came by to drive me to the airport. I got checked in and through TSA security fine and found my way to the end terminal and coordinated my seat and the special assistance required to get me aboard. While I was waiting, it hit me that I forgot my vehicle transfer board in the car so now I started thinking (Problem Solving) in my head how I was going to transfer to and from the car and where I’d be able to go to buy this longer board after I arrived at my destination. The Northwest flight was called to start boarding when the gate agent told me I can take the elevator around the corner to the ground floor. I wondered to myself why the jetway was not open when I realized we would board from the tarmac using the stairs. Now in all my training at Shepherd and flights since, I’ve always had the convenience of using the jetway. As everyone was escorted outside to board using the stairway, an agent came over and told me someone would come by to assist me. I was wondering if they were hoping I could at least climb the stairs a little bit with help. Many times people have asked me if I could just get up and step onto a platform or examining table w/o realizing that some people really need wheelchairs because they can’t do these sorts of things. Some time ago when my awareness of this became more apparent to me, I too have noticed most people in wheelchairs actually have some ambulatory ability. The ones who don’t are usually being pushed by somebody else instead of doing it themselves. I’ve also noticed the VA supplied me with one helluva great wheelchair. Back to my boarding… After watching the last person board, I got nervous that I was forgotten in the waiting area of the building so I high tailed it across the tarmac to the base of the stairs the other passengers used to embark and just waited for someone to notice. After about ten minutes, a ramp worker drove his little ramp vehicle up to me and asked if I’d been forgotten. I told him that I thought so and he left and within a few minutes came back with some bull chute device on a forklift thingy with an aisle chair inside the chute. The chair cushion was a padded one with a cut on top and when I put my hand on it, water began to fill the weighted depression of my hand. I was thinking this is great! All I need to do is soak my butt and end up with a diaper rash by the time I reach my destination. I finally got on board and in my assigned aisle seat one behind the bulkhead. The bulkhead seats are normally reserved for handicapped people but I can’t transfer into them because the arm rests are immoveable. I sat next to this elderly gentleman who had retired from the Navy quite a few years ago. We both had about a two hour layover in Detroit so he invited me as his guest to the Crown Room. Sometime during the flight, my leg started a violent series of spasms that kicked the hell out of the guy’s seat sitting in front of me. He turned around pulling his headphones off obvious to me he was quite perturbed, I gave him my sincerest apologies explaining sometimes this happens, especially in cramped quarters where my mobility is severely limited. He wasn’t mad anymore and in fact, he straightened his seatback to offer me a little more leg room. After debarking the plane in Detroit and finding the stopover water hole, I received a call from the podiatrists’ office telling me the lab results from the culture they took from my nail bed and extracted toenail came back positive for Level 3+ MRSA. Confused, I was thinking where the heck did I pick that up from? They called ahead to a pharmacy near the house where my mother lives a prescription for tetracycline. After I hung up the phone, I called my SCI doctor in Augusta, GA and left a message with her nurse of what was going on. Sometime during my next leg, my doctor called and left a voice mail with further instructions. I am thankful the VA has a good outpatient SCI care system that will continue to follow and look over me for life now. My doctor there is basically the head of my extended care team. My next leg went really nice because the flight was overbooked and they gave me a complimentary upgrade to first class J! I enjoyed my flight on Northwest and not just because the flight crews were so nice but they serve Mountain Dew! After arriving in Baltimore, I had a long, long push from the gate to the baggage claim where I was met by both my mother and father. Part 2 to this story will follow shortly…Phillip | ||||
Tuesday Night, April 7th |
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| Written by Phillip Sherwood | ||||
| Tuesday, 07 April 2009 | ||||
| The weekend went nice as I did absolutely nothing except for going to the gym and the grocery store. I slept until noon on Saturday and 10 am on Sunday chipping away big chunks of the sleep deficit. Today I had a follow-up appointment with my physiatrist and it was ok. I’ve developed a droop in my left foot that he wants to inject Botox into my calf to allow to relax enough that my foot comes back up. I need to get into my stander more to also stretch the calf muscle and Achilles tendon. I also developed an ingrown toenail that needs to be tended to and I have an appointment for tomorrow to get it taken care of. My left leg has been such a difficult non-conforming appendage it just wears on me both physically and mentally. At least I’ve gotten some good sleep several nights in a row. Things are going great with work and I just can’t say enough about the great people I get to work with subordinates, peers and supervisors…Phillip | ||||
Thursday Night, April 2nd (Tornado Watch) |
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| Written by Phillip Sherwood | ||||
| Thursday, 02 April 2009 | ||||
| The week has been very fast paced and productive except for sleep. I spent three nights in a row not sleeping because my leg would start to jump at random. It was very frustrating and I was at wits end however last night I got a really good night’s sleep. I was told that a spasm can be provoked by a pain stimulus and I am guessing the blood clots in my left leg since they are really bad may be causing the problem. When I take a Vicoden, they usually stop within an hour or two. I’m not sure what the long term solution will be but this has moved to the top of my priority list. One nice thing about working out at the wellness center is the abundance of medical professionals available to consult. My hematologist is there at night so I show him my blood results and he gives me advice about long term care using the injectable Lovenox for my clots. I met an anesthesiologist at the gym who I made the comment about how although my brain can’t feel or register pain below the site of my injury my body (legs) still react as if they do by jumping violently when a painful stimuli is applied. For example, if you pinched or pricked my toe hard enough to cause me pain, if I did not have this injury, I’d be able to bite the bullet and continue to endure the pain. However in my condition now, it would need to be anesthetized or ten corn fed Alabama farm boys would have to hold it down. I was wondering what would be the difference between doing a surgical procedure below the T4 without anesthesia or with and he started into a doctoral dissertation about the five different pain receptors and the processing of pain through the different neural networks, etc., etc. Bottom line… I’d have to be anesthetized even it doesn’t hurt to prevent complications. I went to the Birmingham VA for a referral by my local doctor and although it pales in comparison to the facilities at the Augusta VA, the SCI nurse practitioner was very experienced and impressed me. I also appreciated her willingness to help me out and educate me. She scheduled me for a series of bone scans and MRIs later this month. I had an opportunity to meet with the realtor who works for the builder and the lead builder of the neighborhood I am looking at. I was able to decide on a lot to start moving things along however they still aren’t able to put contracts on the lots yet since the plats haven’t be released by the city yet. They have agreed to make many changes in the basic design to accommodate my requests although they are not custom builders except for buying ADA compliant cabinets from their prime vendor unless I put down a $100K non-refundable down payment. This is pretty difficult to swallow since the only modification to the cabinets would be to build them up without the toe kicks. My realtor is setting up a meeting for next week to discuss this and other things that are still pending. On the brighter side, the Permobile company brought a demo chair to me this morning to try out and take my measurements. I took it to dump trash and check mail, drove on grass, reclined, ingress & egress the van and maneuvered to the bed to try a transfer. I also tried the stander function in the kitchen and was able to pull things out of the top shelves of the cabinets. My manual chair will still have to be my primary chair but this will be great for giving briefings to people standing up along with the many other health benefits I get with the ability to stand more frequently. I will have pictures ready to post by this weekend. The chair itself weighs about 400 pounds plus my weight of about 235 now means I will be tornado proof. Another great thing about this chair is that it will come in Honda red! I’m really excited about the increased capabilities it will bring me. Speaking about tornados, we had several touch down today while I was coming out of the gym. My neighbor’s truck just rolled in on the back of a flatbed all banged up. Pain, lack of sleep and spasms still remain the same. I am getting more bowel and bladder feeling and although it’s not much, there’s enough to help me better manage these activities so I’m very thankful for that. I just finished watching the movie Stop Loss. I was stop lossed twice before I was finally allowed to retire. I am glad I was able to contribute something towards public service for our country but am super content to no longer be in the military any more…Phillip | ||||
Monday, March 30th (Trip Cancellation) |
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| Written by Phillip Sherwood | ||||
| Monday, 30 March 2009 | ||||
| I got through the weekend without dropping either of my cell phones through the couch cushions. Right after the NASCAR race ended yesterday, I closed my eyes for a long blink and bam! I woke up two hours later. I guess my body really needed the additional rest so to ensure I’d be able to fall asleep, I took one of my sleeping pills. Since it wasn’t long between getting off my stim bike and going to bed, I was still pretty hot. I woke up about 2 am with the chills so I pulled the covers over me to scare away the cold and fell back asleep. The alarm sounded at 3 am waking me from a deep sleep to do my IC. I didn’t bother watching the news to 3:30 like I do a lot of times so I set myself up to sleep on my side and padded off with pillows. Not more than 15 minutes passes when my left leg would twitch for a second or two just enough to wake me up so I would try to ignore it hoping it would be the last one. This went on for about ½ hour before I gave in and went through the ritual of changing sides and bam! The left leg started doing it again. I tried ignoring it but it didn’t work so I laid on my back propping my head up which usually guarantees me a good solid few hours of sleep when…bam! The left leg did it again. This is not normal I thought. I looked over at the alarm clock and the red digits glowed beaconing out the time of 4:45 am and I had a 6:30 wake-up programmed. Luckily I didn’t leave my daytime pill box in the bathroom like I usually do because in it I carry a couple of pain killers for just in case. I took one and within ten minutes the leg stopped and I slept for what felt like only seconds but the clock was belting out its annoying wake-up chimes. This was not the way I wanted to start my Monday. One strange thing about this accident is although I don’t feel pain below my spinal fracture, my body still reacts to pain stimulus. For example, if you poke my foot with a needle or cut the toenail too close to the skin, my foot will jump violently although technically it doesn’t hurt. This will be a topic of discussion on my next visit to the doctor. They say blood clots in the legs are painful for people who walk and are not spinal cord injured. Maybe it has something to do with that since my left leg is so much more clotted than the right. I was thinking that in that movie Mr. Deeds where he has the butler run the fireplace stoker through his foot because it had no feeling, I could do the same or even femoral surgery but I’m not sure how the rest of the body would react. What’s the difference between my injury and a spinal block type of anesthesia? Makes you wanna just go hmmm. Besides seeing the semi-pro arena football and hockey players working out at the gym at night, I also see my hematologist at times. He was there on the stretch mat when I arrived so I asked him about the long term affects on the body while using Lovenox or similar blood thinners. He mentioned there was a faster rate of osteoporosis but if my testosterone levels are ok, I shouldn’t have to worry. If they’re low, I can be prescribed a supplement to help offset the osteoporotic condition should it develop. The good thing is the VA is now beginning to schedule me for bone scans to keep an eye on things. While researching wheelchairs that have a built-in standing capability and able to operate on grass and small rocks, I found a battery operated system that has all this and more and if I order now, I’ll also get… J Here’s the chair http://www.permobilusa.com/USA/Products/Accessories1/C500-VS-/ The good thing is that there are three vendors here in Huntsville that sell and service this chair. Although it only goes 6½ m.p.h., I’m sure with a little extra tweaking I can get it into the double digits! I decided to cancel my business trip after hearing about the difficulties my coworker is having today due to a flight cancellation mid-route and missed all of his connecting flights. I just talked to him and it’s 9:30 pm now and he’s stuck in Detroit hoping to get out on the 11 pm flight to complete his journey to Binghamton, NY. If this were me and travelling alone, I would not be in very good shape by the time I finally got to the hotel. Well, it’s that time to begin my nightly rituals to get ready for bed. This is when the anxiety begins on what kind of night I’m going to have. Peace out! …Phillip | ||||
Saturday, March 29th (NCAA Elite Eight) |
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| Written by Phillip Sherwood | ||||
| Saturday, 28 March 2009 | ||||
| The week came and went like a freight train on VP race fuel. After lowering the asking price on my house in Texas by $30K and paying another $21K in closing costs, it will finally be off my hands on May 1st so I can concentrate my efforts and my cash flow on the new house. I sold the race bike this week also and it was a bittersweet event. My stocks are doing well and I’m enjoying my new hobby playing in the market. Friday was my day off however I ended up working a good part of it trying to prepare for a trip I need to take to Binghamton, NY on Wednesday. The difficult part I found are the number of plane transfers to and from… seven! Since I am travelling by myself, I will need to figure out how I am going to accomplish this feat. The Mizzou Tigers lost today in the NCAA Elite Eight bracket. I lived in Columbia, MO for about a year before coming back on active duty September 1988. I’ve gotten some good workouts this week both at the gym and at home on my stim bike. This morning I was able to sleep in good and chip away some of that sleep deprivation that has been accruing. Sunday I have an appointment with my hair engineer that I always look forward to. Overall the pain, sleep and spasms were better controlled. One thing I way underestimated was the degree of difficulty recovering my cell phone that fell between my couch cushions and onto the floor. After getting onto the floor and crawling up under the extended footrests to be able to reach into the crevice and retrieve my phone, I got stuck not being able to shimmy my body back out because my shoes gripped the carpet all too well. After about twenty minutes of maneuvering centimeter by centimeter, I was able to free myself. I thought I’d learn my lesson about being more careful with my cell phone on the couch but damn if I didn’t do it again with my other phone. At least this time I took my shoes off first. Time to get some rest…Phillip | ||||
Tuesday, March 23rd (The Birmingham VA) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 24 March 2009 | ||||
| The weekend went well and I was able to get a lot done reference the house. I am getting closer everyday now to getting the contract written. Each day I learn more and more about what goes into building a home. It’s a lot but in the end, it will be built just for me. It’s not much different than building a tree fort as a kid in some respects. I tried the sleeping pill the doctor prescribed for me over the weekend and I was amazed at how well it worked and how effective it was in calming my leg spasms. Also when I would spontaneously awaken, I was able to fall right back asleep and in the morning I was not very groggy. The downside is that this medication can be highly addictive so I must be cognizant of that fact. Yesterday I had an appointment at the Spinal Cord Injury (SCI)/Traumatic Brain Injury (TBI) center at the Birmingham VA. Although it fails in comparison to the Augusta VA, the nurse practitioner who attended me was very knowledgeable and even taught me a couple of things I didn’t know. They are an outpatient care facility who would like to keep track of me and assist with my SCI needs while still maintaining my primary SCI support in Augusta. I was told I’d have to transfer to Birmingham from Augusta for this level support but yesterday BHM VA told me I didn’t have to so this works great for me. When I got home last night, I dropped by the neighborhood under construction to see if I could get in to look at the lots under development and I was able to see them for the first time. Although the road network wasn’t paved yet, I was able to look at the lots first hand I’ve only been able to see on paper until now. After leaving, I went straight to the gym and commenced an intense stretch session that lasted nearly an hour. My legs were completely rigor mortisized from spending so much time sitting in the car. By the time I got home last night, I sat down, had a beer and just vegged out to some Supercross on the TV. My father’s wife sent this link to me and it’s very interesting http://www.cnn.com/2009/HEALTH/01/09/robotic.suit/index.html#cnnSTCVideo it’s an exoskeleton suit developed in Israel for a former soldier who is now paralyzed but able to walk with assistance from this apparatus. It should become available here in the USA around 2010 for approximately $20K…Phillip | ||||
Thursday, March 19th (18-months Post Accident) |
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| Written by Phillip Sherwood | ||||
| Thursday, 19 March 2009 | ||||
| It’s now been a year and a half since me accident. I have been trying to deal with a lot of issues regarding both my physical and mental health this past week but things are taking a turn for the better. Over the weekend, my left leg would not let me have a peaceful night’s sleep keeping me awake for nearly 72-hours straight. Last time I was kept awake that long was back in 1993 when I went through S.E.R.E. (Survival, Evasion, Resistance, Escape) training while assigned to the Army’s Special Operations Aviation Regiment however I was in a much better physical and mental state. My leg would spasm in a manner that felt like peristalsis. A crude example of this is when a snake eats a rodent whereby the snake’s body sets in motion a series of rippling muscle contractions to move the meal down the body. Likewise, my left leg would begin a series of rippling muscle contractions beginning around my ankle and working its way up to my upper thigh in approximately 45-second intervals as if it was trying to squeeze accumulating blood back up towards the heart. My left leg has nearly total femoral vein blockage due to chronic clotting where the superficial veins have to compensate to pick up the slack. My doctor had me reduce by 75% the amount of the blood thinning Lovenox I was taking to reduce the risk of cerebral hemorrhaging. Additionally during the day, my left leg would violently shoot straight out as if I were trying to kick a football through the goal posts then after a couple of minutes it would relax and come down to repeat the field goal attempt again minutes later. I had to take Monday off of work because I hadn’t slept all weekend. I did however on Monday sneak in a one hour rest catching my leg off guard before it realized I was zonked out and decided to jerk me awake. By Monday night I was really apprehensive about the impending restless night I was about to face but miraculously my legs only jumped like normal at 2:45 am, 5:30 am and again at 7 am that are my normal turn times anyways. Again on Tuesday night I got another good night’s sleep however yesterday afternoon my left leg started acting up again. The doctor had prescribed me Restoril to help me sleep better through the night to combat my spontaneous and unprovoked awakenings so I tried one last night before going to bed and I slept the entire night without a single muscle twitch. As tempting as it would be to take this every night before going to bed, Restoril is very addictive so I need to take this as a last resort to break the cycle of sleepless nights. Alas I am making great strides now. The weekend went well as I made a lot more progress on the house and feel I have enough information to enter into a contract. Yesterday I was notified by my realtor that the lots have been released for sale so Friday I have an appointment with the builder to enter into pre-contract negotiations however there are still many things the builder will not do since Jeff Benton Homes is not a “custom” builder. I’ve been getting better at hooking myself up to my stim bike and am now on a more consistent workout regime. I heard on the news the other day about a man who’s been in a wheelchair for 20 years was bit by a brown recluse spider and within 24 hours began to get feeling back and by the next day was up and walking. It’s amazing the things that happen we don’t understand both good and bad like the actress who died yesterday from a simple fall while skiing. I can’t even begin to count the number of serious head banging crashes I’ve seen over the years from racing motocross and never knew anyone to suffer anything more than a concussion. I guess when it’s your time to go, there’s no stopping death once he takes you by the hand. My friend Curtis is still wrestling with his pain and spasticity issues plaguing him. He’s been going to specialists in Birmingham for his complications and is very impressed with their breadth of knowledge and experience in spinal cord injuries as compared to the treatment he’s sought here in Huntsville. Luckily the VA has been great with helping me but it’s good to know there are experts nearby. That’s all for now and I know it’s a lot but there’s even more I didn’t write but many of the day-to-days are repetitive so I’m sure they will come around again in due time…Phillip | ||||
Thursday,March 12th (Issues & Prophecies) |
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| Written by Phillip Sherwood | ||||
| Thursday, 12 March 2009 | ||||
| I have been super busy since my last posting between work and the house. I went to the Jeff Benton Design Center last Saturday to start the process of selecting between all the different options and upgrades available that come with buying a new house. I have never constructed a new house before but instead only moved into “previously owned” dwellings so my learning curve is big but I like getting things done the way I want them. I also went to the annual Home Show at the local convention center and met some of the company reps who will be subcontracted to perform certain jobs in the construction of my house and I learned quite a bit from them as well. The Friday massage was the greatest and I rested a good eleven hours and felt great on Saturday however my pain level have reached a point where it is time to deal with it more seriously. It has gotten to the point where it has begun to inhibit my ability to sometimes do my physical therapy in the evenings after work so the doctor prescribed me a stronger pain killer to help quell the intense pain. The need to continue with my physical therapy is a vital part of my continued well-being and ability to maintain my independence. They also are prescribing me something to help with my chronic sleep disorder whereby I wake up several times during the night for no reason and have difficulties in falling back asleep. I need to break this synergistic and cumulative cycle. Today I experienced the strongest spasms ever and am not sure what may have provoked them. I had to brace my left instep beneath my footplate to prevent my leg from kicking spontaneous 75-yard field goals but the spasms kept getting stronger and stronger lasting about two hours. At one point I was sure my femur was going to snap in half but then out of the blue the spasms stopped and my left leg calmed. The other day I got myself prepped and into the stim bike then unhooked solo. It took about 45-minutes to get to the point where I was ready to press the “GO” button and I felt like I had one heck of a work-out getting to this point but I hope in time I will get more proficient in the pre-workout prep. My one-hour workout went well and none of the electro pads fell off J I’ve been having fun playing in the stock market. It’s a lot of fun and I play with my “beer” money so the risk to my main portfolio is low. So far I am ahead. My property in Texas still has not sold and it’s bleeding me so I’ve considered renting it out if it the peak months pass and it still hasn’t sold yet in hopes the market will get better in the future. It was announced in the news this week that there’s a provision in this new stimulus package that recently passed that will compensate up to 95% of lost home value due to a soldier being required to sell property to comply with military PCS orders. I need to look further into this since at the time I came down on military orders to transfer to Colombia from my assignment at Fort Hood, Texas. Well, that’s it for now. Tomorrow is supposed to be a day off in which I plan on sleeping in and taking care of errands in the afternoon however I have a sneaky suspicion that for some reason my plan will be thwarted by unforeseeable circumstances or a program crisis at work. I just hope this doesn’t become a self-fulfilling prophecy…Phillip | ||||
Friday, March 6th (TGIF) |
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| Written by Phillip Sherwood | ||||
| Friday, 06 March 2009 | ||||
| The week has been a good one but busy as ever. I am out of the danger stage in my recovery but am still in the delicate stage. It’s almost being like a 500-hour aviator where you think you have full situation awareness but instead can’t recognize the signs soon enough that you’re getting in way over your head. I spoke with my doctor on Tuesday about my Lovenox anti-coagulant therapy and she recommended I reduce my daily dosage of 160 mg to 40 mg and come back to the VA in Augusta in four months for a follow-up visit and blood work. I am still trying to find the delicate balance for the trifecta of physical ailments I juggle on a daily basis. It was recommended by a friend to ask for a low-dose Fentanyl patch but the VA does not provide that. Instead, they offer the Lortab pill. I will need to look on the civilian side to find this. By the end of the day, my back has been feeling an excruciating amount of pain to the point where I can barely get through my stretches and end up aborting my work-out afterwards. Last night was a very difficult night. I was actually feeling good when during the transfer from my chair to the bed when the transfer board dislodged and I ended up following it to the floor. I made several unsuccessful attempts to get back into the chair but nothing worked. When I would have a spasm, all the progress I’d made was wasted as I slid back to the floor again. I ended up having to do the butt-scootin’-boogie across the apartment floor with wheelchair in tow to the living room where I keep my paraladder. I finally made it back into the chair but I was whooped for sure. To add insult to injury, this morning after arriving to work and debarking from Christine, the ramp would not retract so I had to go around to the back and do a computer system reset. After that, Christine worked as advertised. I’m making more progress on the house and sat with the realtor from Jeff Benton Homes at Renaissance for several hours the other day and made a lot of positive progress forward. Now if I can only get rid of this house in Texas. I’m looking forward to a nice relaxing weekend…Phillip | ||||
Sunday, March 1st (Snow-filled Sunday Morning) |
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| Written by Phillip Sherwood | ||||
| Sunday, 01 March 2009 | ||||
| This morning we woke up to a light blanket of 1-2” snow unlike the 1-2’ of snow in a night I was accustomed to as a young boy growing up in Maryland. I elected not to go outside this morning and make snow angels and build a snowman. What’s funny about even the threat of snow here in the south is the mad exodus to the grocery stores to buy diapers, milk, bread and eggs. It’s pretty comical. This week ended and boy was it another busy one. I was lucky to be able to sleep until 9 am yesterday and 11 am this morning. I really needed the rest. I haven’t heard anything back from the house yet so I trust my realtor is on top of everything. Yesterday I started a new hobby and began to dabble in the stock market. I figured there’s probably no better time than now and what better way to learn more about Wall Street and the world economy. I might even take some classes in economics at the local university. I figure I can’t do much worse than the pros are doing and I have my comfort limits and this could be a surrogate for the ever popular fantasy football. Last night I went to visit Curtis and Melisa and had dinner with them. Curtis is having a really tough time trying to balance out his pain and spasticity issues. Their master bathroom is finished and it looks great. Based on their lessons learned, they offered a few suggestions of what to modify. This comes with great timing since I’m still in the design phase. I am still trying to find that delicate tolerable balance of my trifecta between pain, spasms and sleep deprivation. If one is treated to the point of going away, the side effect antagonizes the other two. This upcoming week is looking to be another busy one but I will be going to Maryland for an Easter trip and hopefully reset my sanit. As I look outside now, all traces of our southern blizzard last night look to have vanished. Time to take care of house chores before the NASCAR race comes on TV…Phillip | ||||
Tuesday Night, February 24th (Pain vs. Spasms) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 24 February 2009 | ||||
| The weekend at the Atlanta Supercross with my friend Kevin Mobley and his son was great. Kevin did all the driving while we bench raced. While strolling through the pits, I would occasionally here someone calling out “Hey Gomez!” and it’d be someone who knew me from racing. I even met the fellow who won the race I crashed in after it was restarted. By the time the opening ceremonies began, it hit me how many people I ran into that I knew or either knew me. I also got a chance to talk with my favorite pro rider, Heath Voss, who I met back in 2001 when I lived in Texas who is now interested in flying helicopters and was looking for advice for beginners. The seats donated by LocoMoto were great… until the racing began and everyone stood up blocking my view. I missed nearly the entire race but at least I had it recording back at home. Today was my work from home day. I went to bed early last night and got a good 8½ hours of badly needed rest. For some reason the pain I’ve been having about 1-2” left of the T-5 vertebrae has been increasingly getting worse. So much to the point that last night when I went to the gym, I could hardly get through my stretching routine. I had to ditch the physical workout to go home and spend some time in my stander. I saw an episode on the show House recently where a guy was experiencing extreme difficulties managing his pain and it was suggested that his long term continued use of pain killers were actually antagonizing his pain more instead of helping and the only way to get relief was to get off of them. I went back on the Tramadol for a sore back a couple of months ago and as a result, the sneak attack spasms that caused me to wake up at night subsided. Consequently, my pains recently have gotten much worse and almost debilitating so yesterday I decided to cut the Tramadol. My back feels much better today however the sneak attack spasms came back in less than 24 hours. I need to find that happy medium where both the spasms and pain can be tolerated although neither will totally disappear. My doctor from the VA in Augusta finally called me back today with results of two queries I had. The first was it is not recommended to take long flights due to the long period of inactivity that would aggravate my reduced leg circulation. The second was continuance of using therapeutic dosages of Lovenox to regulate my blood thinning after the acute phase for risk of cerebral aneurism. She contacted my hematologist who responded he too is equally concerned but just wrote the script for the vascular surgeon. The doctor is trying to contact the vascular surgeon now to discuss a long term solution since Coumadin is ineffective on me and Lovenox carries a high risk. Good news on the home front. Yesterday I was able to put a down payment to hold a flat corner lot in Renaissance Phase 2. Jeff Benton homes is waiting for the Plats to be approved by the city and estimate the excavating and roads to be put in sometime in April…Phillip | ||||
Thursday, February 19th (Supercross Weekend) |
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| Written by Phillip Sherwood | ||||
| Thursday, 19 February 2009 | ||||
| The runaway freight train has not slowed a bit. Everything is still on afterburner. I had a great visit with my brother David from Maryland who was here over the long weekend. On Sunday, David and my Army buddy Kevin came over to help me rearrange the trailer so I can get up in it and start the motorcycles. The Harley battery was dead but both Honda’s started no problem. The race bike sounded great and ready to race again. Kevin rode it around the parking lot to make sure everything was ok because somebody is supposed to buy it this weekend. On Monday after a late lunch at Gibson’s BBQ and dropping off some motocross trophies that were damaged in previous military moves, I took a short cut through the military base to get him to the airport with time to spare. When I came to the departing gate with the airport nearly in sight, it was locked! I had to backtrack and leave through another gate and although I got him to the airport before his plane was called to board, I was worried that this detour may have caused him to miss his flight home. It was too close for comfort. Today I have a doctor’s appointment at the local VA. I haven’t been there in quite some time. Lately I’ve been having an itch sensation midway down my back to the left below my transition line from feeling to non-feeling. It usually hits me as I get ready for bed and about to lie down. It’s pretty annoying. My friend Curtis has been having a really tough time dealing with his injury in both the physical and psychological aspects. Please include him in your prayers that he finds relief somehow from his torments. Tomorrow is my bi-weekly massage appointment and I always look forward to those. I always sleep great the night of my massage and probably has something to do with the reflexology. The house ordeal is coming around. I found a different builder offering a 3,000 sq/ft single level home with a three car garage on a flat corner lot. I am in the initial stages so far and keeping my fingers crossed that all goes smooth. Well, that’s the Reader’s Digest version for now. This Saturday it’s off to the races in Atlanta. I need to thank Dave Scilabro from LocoMoto MX who scored me some tickets at the last minute. LocoMoto was one of my sponsors while I raced motocross…Phillip | ||||
Friday, February 13th (Cuidado) |
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| Written by Phillip Sherwood | ||||
| Friday, 13 February 2009 | ||||
| This and last week have been tremendously busy for me. I didn’t get out of the office the other night until 9:15 pm and today is supposed to be my day off however I got pulled into a “crisis” meeting at 1:30 this afternoon. I have been under a tremendous amount of stress lately between program suspense’s at work, my new house contract falling through and having to start the process all over again, my $500/month electric bills for my empty house I’m trying to sell in Texas and other stuff in the background. Physically I am doing well thank goodness. It feels like the perfect storm right now. Luckily I’ve been sleeping well but not as many hours as I’d like. My brother is arriving today from Maryland and staying until Monday so I’m really looking forward to his visit and watching some NASCAR with him. Tomorrow we’re taking a trip to Athens, AL and stopping by the Veteran’s Museum. They are supposed to have some things of mine on display there. Next weekend is the annual Atlanta Supercross. I don’t have tickets yet but I’m hoping Dave from LocoMoto will score some this weekend at a dealer show he’s going to. I have a buyer for my race bike and it looks like it may be sold by next weekend. I put hundreds upon hundreds of hours into this bike riding/racing, customizing and just looking at it that it will be difficult seeing it go but it needs to happen. I am really enjoying my new iTouch player. It holds ALL of my favorite music and plays all the podcasts I subscribe to. My E-Stim bike sessions are going very well but I’m not able to do it as often since my friend Kristina who would hook me up to it during the week moved away. This week a freestyle icon died as a result of his injuries while doing a show in Costa Rica. He was attempting a combination backward somersault when he under rotated and pile drove his head into the ground on a botched landing. The video captured the crash in its entirety and it looks like his head bent so far back that it’s a miracle it remained attached to his body. The x-rays showed he had no spinal cord fractures however he developed a terrible cerebral hematoma that the doctors had to induce a medical coma long enough for his wife and family to see him pass on. When the doctors began to bring him back, he went into a combined cardiac and pulmonary arrest and died. I say all this because my friend Curtis also pile drove his head into the ground on his crash except the landing was softer because the track maintainers use a turnip plow to break the ground up when it gets hard. Although Curtis is having so many more difficulties than me, he is very fortunate to still be here and mentally intact. I bought some RAM on-line for my little Dell Laptop and found instructions through Google how to install it so time to sign off and see if I can do this myself rather than taking a trip to Best Buy. I hope everyone out there has a safe Friday the 13th and a wonderful weekend…Phillip | ||||
Monday Night, February 10th (A Looooooong Day) |
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| Written by Phillip Sherwood | ||||
| Monday, 09 February 2009 | ||||
| The weekend came and the weekend went. It happened so fast that I doubt it was really 48-hours long. I really enjoyed the unseasonably warm weather we had and took advantage of it by going for a long stroll in the park yesterday afternoon with Melissa. I was surprised to see the mosquitoes out and in force so early. I got me thinking that if I was bitten by one in the leg, would it provoke and increase in spasms? Since I wouldn’t feel it itch, there’d be no need to scratch it so the welt hypothetically should not grow. Also with the amount of anticoagulant medicine I’m taking, would it cause the mosquito to hemorrhage to death? I got a chance to finally wash the car and Melissa vacuumed out the inside. Last time this was done was in the fall. On Saturday I went for a therapeutic swim to get a good workout. Afterwards, I used the plastic chair to transfer onto that the manager put in the male locker room to help me change out of the wet swimming trunks. Although it was far easier than doing this arduous task in the wheelchair, it would have been more practical if the chair was a little wider. I had to wedge it into the corner of two walls to ensure its stability. We’re getting closer to a solution. Tomorrow I would normally be working from home however there’s too much going on at work for Will and I to cover ourselves and be everywhere we need to be so I have to go in and attend several meetings in person rather than via telecom. I haven’t heard back from the contractor yet about the availability of flat corner lots to build on so I think it’s time now to look for another that needs the business. This house thing has been very painful. I am looking forward to my brother David’s visit this weekend. He will be visiting until Monday. It’s time to hit the gym and stretch the rigor-mortis out of my legs…Phillip | ||||
Friday, February 6th (Thank Goodness) |
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| Written by Phillip Sherwood | ||||
| Friday, 06 February 2009 | ||||
| The other night while meeting with a bunch of friends, I was drinking a frosty frozen margarita when I experienced a massive chest freeze. The weird thing about this one is that I could feel where my transition line was as the freezing sensation was reduced as it passed to my chest. Another strange occurrence that happened the other morning is that my stomach growling woke me up. I’ve recently started taking Simvastatin for my cholesterol to see if that had anything to do with this and it didn’t but to my surprise, I saw it did other things bad psychologically that may explain my meltdown the other day. Since my accident I’d say I’ve done a pretty good job handling the situation and have tried to keep positive but the other day it felt like the perfect storm hit me and the multiple personal stresses I’ve been dealing with lately finally reached a point of overload. I woke up and just felt like shutting off the world for a day and wished I was in another place. I finally got over it but for awhile there it sucked. Oh well, the weekend is here now and I can chill. I spoke to the contractor who I started working with and determined the house I almost threw up in last weekend would not be economically feasible to try and modify so he is going to look for some flat lots and is putting me in contact with his son who will coordinate all the details. If this stimulus package passes, I believe they will be giving a $15K tax incentive and freezing the interest rates at 4% for two years. Now if I can only find out why my electric bills at my house in Texas are ~ $450 month and can sell the thing, I’ll be in great shape! Today I opened a brokerage account to start trading stocks on-line. Should be fun. I don’t think I can do much worse than any of these full time day trading chumps on Wall Street. Maybe I can apply for a Bail Out?! Phillip | ||||
Super Bowl Sunday Morning (House Story) |
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| Written by Phillip Sherwood | ||||
| Sunday, 01 February 2009 | ||||
| I started feeling bad since leaving the apartment enroute to the 4 pm meeting with Mary Ellen (Realtor) and Mr. Gibson (Builder) that brought on major fatigue, headache and nausea. We pulled into a gas station so that Melissa could get me a Mountain Dew to hopefully calm my stomach. The meeting went real good yesterday with the builder Mr. Gibson. It was nice having the actual builder there to talk about modifications to the same house he actually built himself. Halfway through discussing the mods, it became evident that the asking price for the property factored with the impending cost of the mods + space limitations of the kitchen and living room would most likely be cost prohibitive so we began to discuss the possibility of starting from scratch. The builder (Gibson Homes) said he could get more corner lot options in that same housing area from Adam’s that I would have to purchase from them and he could build whatever I wanted on it. The good thing is that yesterday was a great opportunity to walk through the house with him so that he could see for himself the accessibility challenges I am faced with and put a picture to the things I am asking for to understand better the method of my madness. At about 5 pm, we all sat down at the table so we could start discussing the original 3,120 sq/ft floor plan I had drafted when the nausea began to overwhelm me. Trying to expedite the conversation, I couldn’t take it anymore and had to leave in a hurry to prevent vomiting on the floor of these peoples’ home. No sooner did I get into the van and readied some plastic bags did I start a series of hurls that I hadn’t experienced since being in the emergency room at Huntsville. We left and came straight home. Melissa drove while I strapped down in the back to try and find the best and most comfortable position possible. When we got back to the apartment around 6 pm, I went straight to bed and didn’t get out until about 8 am this morning. Around 1 am, I was able to eat a yogurt (with help from Bob) and a slice of sourdough bread with honey. I realized also yesterday that this builder was doing every bit of brainstorming he could to create ways to modify this house to meet my needs and never once did he try to push or persuade me into starting from scratch with another one of his houses. He also never said no to anything I was asking for to include suggestions like pocket doors. When dealing with Adam’s Homes, I felt like I was in that “NO” commercial with David Spade. This builder gives me very good vibes and I feel confident he will build me a quality product to last me many, many years to come. | ||||
Wednesday Night, January 28th (The Clonus) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 28 January 2009 | ||||
| Lately I’ve been having extreme foot spasms that have been keeping me awake at night. It’s driving me crazy. Crazy, but not so much because of the spasm itself or the lack of sleep but the idea that there is so much unbridled energy being expended here that is being completely wasted. Energy that I could put to a productive use and possibly earn a little bit of coin on the side with too. It would also be my little contribution in “Going Green”. While I was lying in bed shaking myself awake last night a thought came to me. I thought of a way to productively harness all this energy. I could attach my feet to the peddles of two treadle wheels, or even better, set up a system to power multiple treadle wheels at a time, driven by my intense foot spasms that keep beat like a hummingbird for hours on end if I let it. I could even take it a step further and start a sweat shop, fill it with likewise handicapped orphans and together we could put a real positive spin (no pun intended) on all this wasted energy of ours. It’s not like I’d have to worry about them running away either. I could power this textile mill sweat shop by spinning wool into yarn and then sell this yarn using my illegal immigrant workforce. Just a thought.Clonus spasms are a type of spasms where the foot keeps tapping like it were keeping beat to a very fast song. I estimate mine goes about 140 beats per minute at least. For some reason I’ve been having a lot more of these lately and mostly in my left leg which is the more troublesome of the two. Last night Tom Huff came by the house and helped hook me up to the stim bike and I had an excellent session. Afterwards we went out for sushi and chowed down. On another note, I’ve been having real problems dealing with the realtor from Ashtynn Manor by Adams Homes. I wanted to finalize the contract this weekend but never got a call back from her for an appointment time. Come to find out she sold the lot I wanted and even offered to put cash down to hold it but she said it wouldn’t be necessary. A day later, she sold my second choice. My realtor is finding out what other corner lots are available but if they are the two by the entrance of the neighborhood next to the busy main road, I will drop this and have to go with another builder elsewhere for quite a bit more… appx. $100K more. Needless to say, I’ve spent the last two days just fuming over this. Well, it’s late and I need to hit the sack. If tomorrow is going to be anything like the past three days, I will need every minute of sleep I can get. Buenas Noches Damas y Caballeros…Phillip | ||||
Monday Night, January 26th (Peace of Mind) |
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| Written by Phillip Sherwood | ||||
| Monday, 26 January 2009 | ||||
| This past week was a busy one to say the least. I couldn’t get by the gym as much as I would have liked but the holiday Monday then the inauguration Tuesday through me all out of whack. I’ve been spending a lot of time trying to refine and finalize the terms of the build for the house so we can write a contract. The process has been slow and painful but steadily progressing. My work has been very busy as well trying to finalize several other contract actions that have required a lot of brain power and coordination meetings as well. I was really looking forward to the weekend to unwind a bit and catch my breath in preparation for this week’s activities. It’s a good thing I did because today started out on afterburner. A friend from North Carolina stopped in to visit who lives just down the street from my father. It’s always a pleasure to see my friend John Gwinn and his family. I told him that once crab season hits in the spring to make sure he stops by my father’s to get a cooler full of shrimp and crab with some fresh garden produce as well. It would be like sending an aircraft on a transatlantic flight with no passengers. Think of all the empty seats going to waste. On Friday I got my bi-weekly massage and reflexology on both hands and feet. There’s something about that I can’t explain but it sure is a nice way to wind down the week. I highly recommend Layne Davis from Huntsville Massage Professionals over by the HSV Hospital. She will rock your world! Saturday morning I went to see my hair engineer Denise Kent from Salon Sorella. She’s the one who visited me at Shepherd and gave me a haircut there. She and her other coworkers are something else and always a fun experience. Maybe it has something to do with all the hair chemicals they are exposed to all day but it’s always a very pleasant and friendly atmosphere. Friday and Saturday were some well deserved pampering J Saturday night Melissa prepared a meatloaf dinner that was fit for a king. Breakfast the next morning was equally tasty. On Sunday, we went to Bridgestreet Plaza to the Apple store. I was looking for a new arm band for my iPod Nano and found a nice one until the iTouch caught my eyes and lured me in and beckoned me to explore its features. I was weak and submitted to the temptation. The technician was super knowledgeable to boot and two hours later, I walked out with a new geek device. Oh, don’t let me forget, I bought a cool armband for that one. Next we ventured over to Dolce for dinner. I heard they and Ketchups were not doing well and may close. The dinner at Dolce was excellent but the best part is everything on the menu is ½ price on Sundays. On another note, I first noticed while in the hospital when my Dad was doing something on the computer and it was getting the best of him and he got really mad at it that for some reason triggered something inside of me that had to make it stop because it drove my anxiety level off the chart in nanoseconds. My heart just started beating real fast and I wanted it to stop. Again I experienced the same thing recently when my mother was frustrated doing something on the computer and yelled at it out of frustration. Again the intense anxiety feeling hit me and I had to ask her to stop. At work, we have the CNN and FOX news piped into our computers to watch/listen to while we work. Fox has some show in the afternoon where there is a panel of individuals that argue about a subject and sometimes it gets pretty heated and I have to turn it off because it gets me really agitated. I don’t know what has happened to me but things that never bothered me before really do now and the trigger threshold is very sensitive. I started thinking about the value of having peace of mind. A question popped into my mind weighing the value of this and what would I give up to have it. I was thinking, would it be better to be ambulatory and unhappy or paraplegic and tranquil. After all, it’s all about mind-set. If you are confined to a wheelchair or have a debilitating condition that inhibits a publically perceived good quality of life but you are at peace with yourself and your surroundings, wouldn’t that be better than being 100% and miserable? What would you give or sacrifice to have this inner-peace. It’s perplexing to ponder the idea…Phillip | ||||
Monday Night, January 19th (The Super Spasms) |
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| Written by Phillip Sherwood | ||||
| Monday, 19 January 2009 | ||||
| The therapist told me that with the stronger my legs get the stronger my spasms may become and she sure wasn’t kidding. The other morning, I was in my chair between the bed and the wall when I got a sudden erecting spasm that sent my head hurling against the wall so hard that it nearly knocked me out. I think the only reason I didn’t put a hole through the drywall is because I must have hit a stud. Likewise, this morning I was lying in bed and had a spasm so hard that I looked like I was riding my 20” bicycle full of newspapers up the steepest hill you can imagine. The long weekend was a nice break for me. Several days in a row I managed to sleep until noon. I guess my body really needed it. I started taking the statins at night and the Omega-3 fish oil tabs at lunch to combat this high cholesterol. I have carved out calories and doing what I can to get my weight back down. The house is progressing but very slowly. I was hoping to have a contract this weekend but the realtor representing the builder is moving like pond water in getting answers to my questions. She says the company is under a management restructuring right now. I am shooting for August to have it completed. I found out recently the all terrain, stair and curb climbing iBot wheelchair is no longer being manufactured so I’m looking for a new chair that has stair/curb climbing and unimproved terrain capability. I found a 4WD monster truck looking thing that made me just laugh at the thoughts that must have been going through the mind of the inventor. My goal today was to declutter my desk here at home. That goal is beginning to come under reevaluation. Time to get back to the grind…Phillip | ||||
Wednesday Night, January 14th (Exam Results) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 14 January 2009 | ||||
| I writing to you tonight from back home and it was a long and tiring trip last night from Augusta. I was beat by the time I got home and unloaded the car. All I could think of was putting my head on the pillow. Overall I had urodynamics, psychologist, social worker, occupational & physical therapist, seating clinic for wheelchair maintenance, Paralyzed Veteran Assoc. advocacy, X-Ray, EKG, Labs, Pharmacy and Medical consultation wrap-up. I need to lose some excess baggage and get my cholesterol back down from 237 to below 200. The doctor recommended the smallest dose of statins since high cholesterol is hereditary in my family. The doctor was alarmed to find out I was prescribed the Lovenox anticoagulant injections bid for another year because it’s for acute usage and not for long term management because it has attributed to cerebral hemorrhages. She is going to consult with my local vascular surgeon and hematologist who are managing my DVT’s and get back with me. On my EKG I had something relating to the T-wave that called their attention that they want to monitor. I told the medical team that I’d send them a copy of one of my previous flight physical EKG’s to compare against. The physical therapist gave me some good exercises to prevent disproportional muscle growth in my shoulders common with long term manual wheelchair use. The bladder & kidneys are in great shape! There was some old fluid and scarring on the bottom of my left lung resultant from the two chest tubes I had. Overall I am doing well and my next visit will be this time next year. One nice thing for sure is the VA pays gas money and I learned that if I travel solo again, they would provide transport to/from the hospital and also provide room & board. This is good to know if in the future I need this service. On another note, I was informed the elevator at work that I use to get to my office is inoperable and the part needed is obsolete. I’m not sure yet what is going to happen to accommodate my ability to work in the building because one option is to work in a temporary office on the first floor but I’d be separated from my team and there is no wheelchair accessible bathroom. Time to kick problem solving into high gear. One thing I love about my job is that there is a crisis everyday but you never know what the next one will be except you are guaranteed there will be plenty to resolve. Tonight I had a super stretch session at the gym to hopefully stretch these rigor mortis legs back into submission. Today I was prequalified for my house loan at a 4.5% 15-yr fixed rate loan effective as soon as I have a signed contract. I am paying an additional 0.125% to get a 6-month lock-in but if during the last 60-days of the term the rates fall below the 4.5%, I can get the lower rate at no additional cost. Well, it’s that time again to get ready to call it a day…Phillip | ||||
Monday Night, January 12th (Live from the Masters!) |
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| Written by Phillip Sherwood | ||||
| Monday, 12 January 2009 | ||||
| I writing to you tonight from the hotel room in Augusta, GA. I’m here for my annual physical and it is a long one that makes the old flight physicals I took as an Army aviator pale in comparison. The drive here Sunday afternoon went well although it was a long one. The day started out with a weigh-in, blood pressure check and blood tests. The blood pressure was really good 120/82 but cholesterol and weight was too high and need to come down. I had a long series of renal system tests, chest x-rays, consultation with the Physician’s Assistant, Social Services and Psychologist. Tomorrow I have to see the Occupational and Physical Terrorists (Therapist), Dietician, wheelchair clinic, Pharmacist and Paralyzed Veterans Association advocate so it too looks to be possibly another long day. The SCI Unit has undergone an entire facelift and is an all new wing of the hospital and looks to be a showcase facility. The majority of the patients here are in some really bad shape. As for the hockey game Saturday night, it was a lot of fun although the local team lost. The game was not sold out but it had a big turnout. The house hunting is coming along and the realtor is covering all the bases and is doing a great job following up on all the items we discussed last week. I would anticipate by the end of this week that we will be ready to propose a contract. Time to call it a night. More to come L8TR…Phillip | ||||
January 8th, Thursday Night |
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| Written by Phillip Sherwood | ||||
| Thursday, 08 January 2009 | ||||
| This has been a busy week for me with the house as I continue drafting the ultimate floor plan but I found out the contractor builds production homes and not custom ones. I decided to engage the services of a realtor and was referred to a really sharp dynamic duo familiar with the part of town I am looking at. I appreciate everyone’s input and suggestions given me. I am hoping to be in a house by this summer and a new baby German shepherd for Bob and I shortly after. I had an appointment with the new Physiatrist this week and I think it went very well. I like this doctor and he also goes to the same gym. I leave for Augusta on Sunday for my first annual exam at the VA. I had to do a telephonic questionnaire that took about an hour to get through that will determine the areas the rehab team will primarily focus upon. I’m optimistic that I will do well but it will be interesting to compare the results of the exam to my baseline that was established this time last year when I was an in-patient. The stim bike at home has been acting up and some days I can get a full one hour leg workout but other day I can only get 15-20 minutes before it drops off line due to muscle fatigue detection. I’m going to need to put off the mods to the truck until I close on the house to ensure I have enough cash reserve to put down on the house to avoid having to pay the PMI. The realtor seems to be working out well and is getting done a lot of the leg work now for me. The weekend we have a group of 36 people going to see the Huntsville Havoc semi-pro hockey team. We have the majority of section 7B to ourselves. Last night I had several bone crushing spasms and it took me about 20 minutes to get into my chair from the bed. Later that morning when I went to fill me pill container for the day before leaving for work, I found that I forgot to take my 10 pm meds and that’s my biggest anti-spaz dose. With all the rain and flooding we’ve had lately, it just reinforces the good decision I made to buy a van to roll up into instead of a car I’d have to break down the chair and drag it in exposing myself to the elements for a lot longer time. Now the weather is turning bitterly cold once again and that brings its own unique challenges. The hour is late and the game is almost over. Peace out… Phillip | ||||
Sunday Night, January 4th (Happy New Year) |
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| Written by Phillip Sherwood | ||||
| Sunday, 04 January 2009 | ||||
| This year has started out good and moving at mach six with my hair on fire. I’ve been burning the midnight oil working on floor plans for the new house. Yesterday Melissa and I went to sit down with the realtor and discuss my wishes and found both the negotiable and non-negotiable areas that the contractor would entertain. Of the four corner lots available, we selected the one that would best suit my design and the kicker is the neighbor is a quadriplegic engineer who works for NASA. I spent about four hours between LOWE’S and HOME DEPOT looking at things, getting ideas, and talking with section SME’s (Subject Matter Experts). There is so much to learn and I’ve been getting lots of help from friends and family too that lends insight to things I’ve totally overlooked or just plain didn’t know. I realized that of all the places I’ve lived since leaving home as a teenager, I’ve been moving to used houses… or rather “previously owned” homes so this will be the first time I will have a totally new house. This week brings business as usual and I expect it to be very busy at work as agenda items ramp back up. My stim bike started acting up today and tech support advised me there is a software glich that kicks the wireless sensor function offline but they are working a fix for it now that should be done in a few weeks. Meanwhile, they told me how to get around this and keep going forward until the fix is out. Our BAMA football team got crushed the other night and I don’t think they ever knew what hit them. Hopefully they’ll figure it out before next season. With college ball over and NASCAR not ready to begin for a few more months luckily the 2009 Supercross season just kicked off to give me my sports fix. Last night’s season opener was crazy. This week I have an appointment with a new Physiatrist so I’m looking forward to that. Well it’s late and I need to get my things ready for tomorrow. So far so good. No major issues to contend with for now…Phillip | ||||
Tuesday Night, December 30th |
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| Written by Phillip Sherwood | ||||
| Tuesday, 30 December 2008 | ||||
| It seems like it’s been a while since I wrote my last update but it’s been pleasantly busy around here this past week. Mom arrived here Christmas afternoon and my brother Daniel and his family arrived on Saturday from Missouri. I treated everyone to dinner and drinks at the Glover Restaurant in Guntersville Friday night and it was an awesome dinner at that. The beef was so tender you could probably suck it through a straw. Mom picked up some home sales paraphernalia from the hotel she was staying at and began going through it like a CSI looking for clues. She made a list of houses to look at based on my primary selection criteria and off we went. We got some really good ideas that first day and went back to refine the search. Saturday morning, my Mom’s boyfriend was very sick with a powerful stomach/intestinal bug so he was down for the count. We resumed the quest for the Holy Grail when we stumbled upon new developments on Hobbs Road in South Huntsville by Gate 3 of the Redstone Arsenal. Melissa and I had looked on Hobbs Road already on a tip from my coworkers but we had looked on the East side of Memorial Parkway instead of the West side. We hit pay dirt. There were three new housing developments with different builders where each almost met my criteria. It was unknown when the Jeff Benton Homes realtor would return from vacation and although their houses looked nice on-line, they were a bit pricey. The Millennium Homes were very nice as well but each model was missing that something. Last were the Adams Homes in Ashtynn Manor but the only model they had open was too small but the realtor told us there was a 3,000 sq/ft model in North Huntsville that would be open to view on Sunday. After my pancake breakfast, we loaded up and drove north. The house was nearly everything I wanted and had an open floor plan needing very little modifications to accommodate my wheelchair other than wider doorways. When the realtor showed me the brochure on the 3,117 sq/ft model, it was a jackpot. I began mixing the good parts of both in my head while we took several measurements. I got home and spent nearly the next 48-hours on the computer designing a new floor plan from my vision. Saturday night Melissa prepared for us an outstanding spaghetti dinner and tonight, Becky (Dan’s wife) prepared a meal fit for a king and his court. I’ve been really spoiled with all this good eatin’ this past week. Mom and Dick exercised the truck for me good while they were here and Christine behaved itself relatively well if you don’t count Saturday when the ramp and kneeling function didn’t want to work for some reason. Tomorrow morning Dan and his family go back home and the apartment will be quiet once again. I have enjoyed all the energy here and watching my little 28-month old niece befriend Bob. Everything is going well and I’m looking forward to 2009. I had a good 2008 but it was a very challenging and trying year. With both my mother and Dick getting so sick it made me think about contact with others who are sick and their before and after incubation periods. If I came down with either diarrhea or pneumonia, I would not hesitate for a New York minute in checking myself into a hospital. I think I would also need to wait 48 hours for someone with a contagious sickness to ensure the incubation period has passed before being close to them. So far folks have been very cognizant in not coming into contact with me while sick and I appreciate the thoughtfulness towards my well being…Phillip | ||||
Wednesday, December 24th (Christmas Eve) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 24 December 2008 | ||||
| T’was the night before Christmas and all through the house, not a creature was stirring except for Bob’s toy mouse. That cat hides everyone I get for him. This week has gone much better. I found out the computer on the new stim bike was bad so RTI shipped me out a new one on Monday and it got here yesterday so I removed the bad one and installed the new one and then took it on a test flight. At thirty-two minutes into the one hour profile, the machine sensors noted a significant muscle fatigue in my hamstrings, glutes, and quads so it automatically kicked off the active stimulation and switched into passive by cutting the electrical stimulation and motoring my legs mechanically to cool them down. I can see it’s going to take some time to get them back into shape although they haven’t lost any mass or apparent strength due to the continued muscle spasms. I’ve been getting more into facebook lately and it’s incredible how fast it reaches out and unites long lost personal contacts. I scheduled an appointment with a new physiatrist for Tuesday January 6th. From what I’ve been told, he’s really advocated a lot of support for the gym I go to and he and his wife is also members of the Huntsville Hospital Wellness Center where I go. When I arrived to the gym on Monday, I noticed that one of the coat racks was lowered along with a sanitization squirt bottle where I can access them. That just made my day! The bitter cold recently made for a few difficulties for Christine that would cause the ramp to not want to deploy except after a couple of attempts. Melissa and her munchkin came over yesterday and helped me around the house and got it decorated with lots of Christmas spirit. We had to jump start the truck and take it in to Sears and get a new battery. For what they cost, I’m glad I didn’t have to buy two of them. I’d like to wish all those reading this a Merry Christmas or Happy Hanukah and be safe during this holiday season. May your next year be better than the last. | ||||
Saturday, December 20th (911 HELP , I’ve Fallen and I Can’t Get Up !!) |
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| Written by Phillip Sherwood | ||||||||
| Saturday, 20 December 2008 | ||||||||
| Thursday was going good until I had a brain fart. At 10 pm, I decided to run to the mailbox to drop off my NETFLIX movie “Monster” I just finished watching but I had to get the mailbox key out of the center glove box first. I opted to reach across between the front seats instead of running the driver’s seat back and doing a transfer. Mistake #1. I was able to reach through ok and get the key but then I got a wild hair and decided to get a CD out of the radio I wanted to rip on my computer. Mistake #2. To do this, I had to put power to the radio to eject the CD so I extended my reach a bit further and almost got the key into the ignition when my forward center of gravity exceeded its critical limit and the chair main wheels lifted off the ground breaking its grip on the floor and began to move backward as it tilted up dumping me out of the seat like a dump truck getting rid of its cargo. I braced myself using the two seats like a gymnast on a set of parallel bars however I couldn’t get back to the chair. It moved too far back and I couldn’t get into the driver’s seat because the control box was blocking my leg. After a couple feeble attempts, my arms began to quiver like at the end of the 2-minute pushups part of an Army physical training test. At this point, I knew I only had seconds left to let myself down as controlled as I could so I did just that. Unfortunately on the way down, my legs got all twisted between the seat and through the bottom foot bracket of the wheelchair that it took quite a lot of effort to untangle them. The problem solving computer in my head was taxing my CPU. The ramp was still open and it was dark. I moved the chair out of the way enough to maneuver to the left rear passenger door but it wouldn’t open so I set the chair against it and positioned myself to pull my way up and into it. As I got close to getting twisted around to get my butt in it, the chair would tip and lurch forward. I tried several different ways but all it got me was more worn out. I was sweating like a madman and nearly finished my bottle of G2 by now but I knew I had to keep trying. By now it’s 10:30 PM so I decide to call Melissa and tell her what happened. Her problem solving skills went into overdrive as she “visualized” the situation and started firing off different things to try which some I already did and failed. I then tried getting up and onto the rear bench seat but that wasn’t happening. I was now totally exhausted, nauseated, dehydrated, and the stomach spasms started kicking in making it difficult to breathe. I then decided to call a nearby friend for help but they were already asleep so I ended up having to call 911 for an ambulance “lift assist.” By now it was 10:50 PM and they arrived ten minutes later without lights & siren as I requested. The two guys gave me the help I needed to get up onto the bench seat and transfer back into my chair. When they left, I went about completing my original mission of getting to the mailbox up by the admin office however I did not make my + or – 30 second window. When I got back into the house, Bob just gave me that look of where the hell have you been, I’m hungry! I finally made it to bed around 12:30 AM and was out like a light within seconds. Friday morning I woke up feeling as if I was hit by a truck then backed over onto… repeatedly. I made it into my 9 am meeting at work 15 minutes late but I doubted I’d even be able to make it at all however we had a lot of heavy topics to cover. By the afternoon, I went to go see Denise my hair engineer who fixed me up with a good Christmas cut. Next I went to a local company that modifies vehicles to make them handicap accessible and got a quote for the truck. To install a lift seat and hand controls will cost $8K before tax and the rear crane to lift the chair to put into the bed is another $4.5K so I need to keep saving my spare change and taking advantage of this cheap gas because none of this will be covered by the VA or insurance. This morning I treated myself to sleeping in until 10 AM and Melissa came by to help me with things around the house before she had to go back home and tend to her 5 y/o daughter is just getting over pneumonia. I mentioned the stomach spasms earlier. This is a new phenomenon that just started and I’m not sure what it means or if it’s a good thing or not. It does increase the degree of difficulty because when I get a strong one, it feels like I’m taking a punch to the gut however the left lower quadrant is not affected. Time to call it a night…Phillip | ||||||||
Thursday, December 18th (Bicycle) |
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| Written by Phillip Sherwood | ||||||||
| Thursday, 18 December 2008 | ||||||||
| Yesterday the technician from Restorative Therapies Inc (RTI) came and set up the stim bike and I took a test ride. At 28:46 into the ride, it sensed muscle fatigue in my legs and quit the 140 milliamp alternating electrical stimulation to my hamstrings, gluteus, and quadricep muscles and reverted to mechanical assist. I thought this was very strange because normally I have gone the full hour with no problem. The clinical and tech support from RTI is great. I was afraid that maybe after they got your money that they’d wash their hands of you but that is not the case. In fact it’s just the opposite. The technician that came flew in from Baltimore and was a certified Occupational Therapist at the International Center for Spinal Cord Injury at the Kennedy Krieger Institute http://www.spinalcordrecovery.org. They are affiliated with John Hopkins where my doctor from Shepherd was certified. I asked her what I should be doing for therapy now and everything she told me I am doing except for electric stimulation of the lower back, abdominal and calf muscles. There is a special device therapists use for this that I’m going to research and try to get. Last night at the gym, somebody squeezed their car in between my van and the car to my right completely blocking my access to the ramp. I had to go back inside and find someone to pull my van out of its parking spot for me so I could get in. It was cold, raining and dark outside. Needless to say I wasn’t a very happy camper. This morning at 4:40 am I was awoken by a strange spasm I felt only once before but shrugged it off. It felt like a serpentine constrictive muscle contraction that started at my left ankle working its way up the calf and stopping at my knee before repeating. I carefully pulled myself up into a sitting position and drew the sheet back to see the spasm (not too sure of what I was expecting to see). What I did notice was that the body pillow I use to put between my legs to protect the bony prominences from creating pressure sores had slipped out and my left calf was lying on top of the right without this protective padding. What I think was happening was the blood was pooling down by my feet and the spasms were trying to force it back up through the peripheral veins much like an anaconda digests a pigmy or a boa to a mouse. When I lifted my leg off of the other, the spasms stopped. Despite all the rain, it’s been a good week overall. Tonight I’m taking a rest from going to the gym and will just chill out and watch a movie…Phillip | ||||||||
Tuesday, December 15th (Bad Day for the Home Team) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 16 December 2008 | ||||
| Yesterday for some reason people were only thinking of themselves and their own conveniences. It started at the doctor’s office when I pulled into the parking garage handicap parking spot for vans. When I came out after my appointment, there was a car squeezed into my spot between my van ramp door and the car beside me. I was furious… more so because I was parked right in front of the parking garage security officer’s booth who watched the whole thing. Melissa had to pull the van out to allow room for the ramp to come out. Had she not been with me, I would have had to wait for the owner of the vehicle to come back out from wherever in the building he was at and move their car. As I was leaving, I asked the security guard to acknowledge what the car had done by illegally parking. When he acknowledged, I asked him to call the police to ticket the vehicle or have it towed which he refused so I told him he’s just as much an asshole as the person who blocked me in. While at work, I went to the designated handicap bathroom and it was occupied so I patiently waited hoping it was another handicap person. When the door opened, it was an ambulatory male who after seeing me said in a low voice that he was sorry. Already still on fire from the parking lot incident, I told this worker that he doesn’t do very well reading signs and following instructions while he walked away. I don’t get too bent out of shape anymore about things and I think my attitude under the circumstances has been pretty good but selfish individuals who don’t respect the societal norms established for the handicapped really sets me off in a way that makes me fume. Well, the doctor’s follow-up on my blood clots did not go well. Good news is that my leg clots did not get any worse than they were five months ago but the bad news was that they didn’t get any better either. There is nothing that can be done to rid the clots from my legs and that I will have to live with them and continue with the twice-daily injections indefinitely. I have another appointment in six months. Well it’s not all bad news, I am still sleeping well and without the jerking spasms waking me up continually throughout the night and… I have GEICO! PhillipPS. Today after eating a palm full of roasted almonds, I got three (3) hiccups! These are the first hiccups I’ve had since mu accident. | ||||
Saturday, December 13th (Tis the season) |
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| Written by Phillip Sherwood | ||||
| Saturday, 13 December 2008 | ||||
| Today is the day I savor to recuperate from the week of work although I feel better today than several past Saturday’s since I was able to rest so well during the week. The Ultram (Tramadol) I am taking during the day I believe is the key to keeping my legs quiet during the night enough for me to sleep. I am also able to go longer uninterrupted before feeling the necessity to rotate my body. My primary wheelchair front left caster arm finally bent far enough to render the chair inoperable unless I feel compelled to travel in continuous left circles. I need to notify the VA to find out how the return & repair program works. Yesterday my e-stim FES bike was supposed to be delivered but unfortunately it did not find its way yet into my possession. Hopefully it will arrive on Monday or Tuesday because on Wednesday the company rep comes at noon to set it up. Every two weeks I’ve been getting a massage where the physical therapist concentrates on the muscle tracks along the spinal cord, shoulders and neck. We are getting better at working together at transferring to and from the table and rotating positions. It’s difficult to maneuver on the tables that are not very wide and I don’t think she’s ever had a wheelchair client before but we’re both learning what works best. This week we’ve had some unusual weather but with the potential for catastrophe. We’ve been experiencing severe flooding from the heavy rains accompanied by sub-freezing temperatures at night therefore I’ve been going home after work rather than going to the gym to avoid the potential for accidently sliding off the road. It’s not like I can extract myself from the car if in a ditch and get back to the road to summon assistance. This scenario has the potential to be mortal. One of my long time hobbies is collecting music and making sound mixes. My younger brother David started me on this when he was in college, he would record sound clips from friends around campus and mix them into a cassette with awesome music and send it to me in the gulf when I was there flying helicopters for the 101st Airborne during Desert Storm. My crew and I always loved listening to the wacky mixes and even found a way to plug my player into the aircraft intercom system to listen to during some of the long boring flights. We’ve been trading music ever since. My co-worker MAJ Tom Huff also learned to edit sound bites but from crazy movies and started making crazy music collections we all enjoy hearing. I end up spending a lot of time organizing my music and building the ultimate workout collections for my iPod. Gotta go and mix-a-lot…Phillip | ||||
Monday, December 8th (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Monday, 08 December 2008 | ||||
| I had a really good weekend despite the loss ALABAMA suffered at the hands of Florida. They still did better than anyone expected them to do this year. I was able to get some Christmas shopping done and yesterday I bought a really nice down silver-lined mattress cover for the bed like the one that was on the bed I slept on at the Omni hotel in Corpus Christi and I slept wonderful! Today I am working from home due to some way past due apartment maintenance needed that could not be deferred until tomorrow. One necessity was the installation of a peephole low enough I can see out of while sitting in my chair. The crazy thing is that I had to buy the peephole! Speaking of the Omni in Corpus Christi, here are some pictures taken with my family from Laredo. This week looks to be as busy if not busier than last week. Gotta get back to the grind. Fires are burning…Phillip | ||||
Saturday, November 29th, 2008 (IRON BOWL) |
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| Written by Phillip Sherwood | ||||
| Saturday, 29 November 2008 | ||||
| Today is the best day for shopping in Alabama if you’re not a college football fan. Driving downtown you’d think a plague rolled through here. I’m at home and enjoying the game while it’s misty and dreary outside. Last night I didn’t sleep well at all. My legs spasm’d from 3 am until the rest of the morning no matter what position I moved into. I did a really good session on the e-stim bike last night at Curtis’s house and I wonder if there is any relation. Anyways, I spent the morning surfing the net to see if any spinal cord injury has recorded any kind of success regaining any lost neural damage with any conventional and/or unconventional treatments available out there but I found nothing. As a matter of fact, the most discouraging was posted by those attempting stem cell replacement therapy outside the U.S. at exorbitant cost none of which is covered by insurance. The conventional methods backed by physical therapists, rehab centers or covered by insurance seem to only maintain the patient in their current condition or retard the rate of self-degeneration of the individual. Although innovative technologies continue to get closer to possible breakthroughs or at least enhance an individual’s quality of life, the reality is that as with every day/month/year that passes, candidacy for these programs slips proportionately. The best I can do for myself is to maintain myself in the best physical and mental state possible. I am a realist with hope. I’ve always believed that false hope and motivation is better than none. I will most likely never recover anything more than what I have right now and I accept that reality. During the family meeting at Shepherd, Dr. Bowman reiterated this fact based on statistics. Some paraplegics have regained the ability to walk after years of being in the wheelchair. I personally know of two. Doctors don’t know why this is just the fact that anything is possible. My primary concern is to become the most independent I possibly can and to get stronger without breaking down my joints and soft tissue in the process. I also look for ways or things that will enhance the quality of my life. Although I am a Christian, I have my own relationship with God. I don’t blame him for letting this happen to me nor do I ask Him to make me better. My prayers are usually for those in worse shape than myself. I look for ways to give meaning to my life by how I may make others’ lives better by uplifting their spirits or to give them something to compare their trivial problems to in order to feel better about themselves. Smiles and happiness are infectious to many but to others it can sometimes have the opposite effect. The will to survive is the strongest natural instinct in a healthy human being. I say that because goats have no will to survive and some people who’ve suffered severe trauma in their lives have little more than a goat. That is evident by the cases for the Right to Die or signing a DNR (Do Not Resuscitate) order prior to going under a surgical procedure. I’ve never honestly contemplated suicide before or after my accident. I’ve had moments of personal sadness and loss far greater in my life than of my legs. I can say that I’ve tossed over the thought in my mind about signing a DNR order prior to going into my next surgery but then again, children aren’t supposed to die before their parents and it wouldn’t be fair to those whose lives are made better because you’re in it. When thinking of how I can touch others’ lives to make better, the thought of organ donation came to mind. Since I don’t have children, this can be a way for me to go on and live through others in body as I hope to live in others in spirit. Sometimes I get close to breaching the threshold of slipping into what I call “The Bad Place” and I think everyone in my situation or worse faces the same challenge on a daily basis when things get quiet, the mind goes idle or something happens to cause an elevated level of frustration. The biggest challenge is not the physical ineptness but the psychological head games that become the most difficult battles to overcome. I don’t dwell on the past or what my life could have become. What happened happened and it is what it is. Like past relationships that didn’t work out, I’m over them and have moved on. I live for tomorrow by taking life one day at a time. I know there are more good and bad times to come but that’s just life. Some people with terminal illnesses wish they could just have a little more time. I have the fortunate opportunity to live their dying wish and don’t plan to waste it…Phillip | ||||
Friday, November 28th (Black Friday) |
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| Written by Phillip Sherwood | ||||
| Thursday, 04 December 2008 | ||||
| I don’t know why but this didn’t post onto the mainframe so I am reposting this from Friday November 28th. Yesterday was a great day for Turkey dinner. I ended up going to the recently renovated Guntersville State Park Lodge for a fantastic Thanksgiving Day dinner with Melissa & her family & Curtis and his family. If you’ve never been there before, it’s well worth the trip. They also have lakeside chalets and bungalows to rent with spectacular views and fireplaces. Today I’m just chillin’ out burning the calories one by one. I found a new a place to have my truck adapted called Southern Mobility Products of Huntsville. I should get an estimate for the conversion next week sometime. It’s not going to be cheap. They are also an accredited VMI dealer so anymore problems with Christine they will be able to take care of. The other morning when it was below freezing, it took three tries before the ramp would come out. Last night I slept even better on the new bed. So much that I slept through the phone ringing at 8:30 this morning. I’m going to buy a pillow top sheet like what was on at the Omni Hotel bed I slept on next. Melissa braved the “Black Friday” combat zone this morning and is now on the way over with a late lunch so I need to get my butt in gear and get a few things done around here. I hope everyone had as nice of a Thanksgiving as I did. As for today Thursday December 4th, all is well and I am having a good week and have been sleeping well. I have some new pictures to post so I’ll be doing that this weekend. Gotta exit stage left…Phillip | ||||
Tuesday Night, November 25th (Tech Support) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 25 November 2008 | ||||
| I realized yesterday there is one guy I’ve been remiss and may have failed to acknowledge for all the help he’s provided to my family and myself. Mr. Jimmy Dodd from AMRDEC where I work deals with IT (Information Technology) issues. During my immediate hospitalization, Jimmy came to the house to help work through the computer issues those staying at my house were experiencing with my computer. Although my system was antiquated and had some peculiar quirks, I still knew how to bypass or wait on them to resolve themselves better than any passworded system. Since it became apparent it was going to be a monumental effort for my family to use my system as-is with all the fixes Jimmy put in place, my mother went out and purchased a new system. Jimmy came to the house and configured it too with the wireless router(s) and software my mother was more familiar with. I don’t know how many trips he made back and forth to the house but I believe a change of address was submitted for him to get his mail. When I came home from the hospital, I was surprised to see this new system on my desk but I needed Jimmy to come back and set it up the way I was accustomed to thus more trips. The other day at work, we were notified that effective immediately, it is prohibited to use any USB memory devices in government computer systems connected to the government server. I had a bright idea. I remember back in the day before USB how we transferred large amounts of data from one computer to another by using LapLink. I sent my coworker Teddy to query IT on this possibility when a few minutes later, Jimmy Dodd appeared at my office door. He began offering even better options to choose from and was excited about it at the same time! It just put a smile on my face after having received some very disappointing news earlier. I received notification from CASE Western about the FES program that I was removed as a candidate for the standing program not only because I am on blood thinners but because I was diagnosed with chronic DVT’s (Deep Vein Thrombosis (Blood Clots)) in my legs. This really took the wind out of my sails and left me super bummed out; probably similar to the space lady watching the $100K tool kit slowly float away into space but not nearly as upset. My back has been very sore these past couple of days in places it’s usually not. The new bed just came this afternoon and they took out the Tempur-Pedic so hopefully the muscles will feel much better tomorrow. Last night the muscle spasms that jerk my leg and wake me returned and kept waking me. I normally wakeup from my restlessness every two hours to turn anyways. Hopefully I’ll get as good a night’s sleep tonight as I did while at the conference last week. Today we had a pre-Thanksgiving day lunch for work at the Greenbrier BBQ restaurant. This was the first time I’ve ever been there and it was really good. Right now I’m getting ready to head over to visit Curtis and take his new e-stim bike for a test flight. Gotta run…Phillip | ||||
Sunday Night, November 23, 2008 (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Sunday, 23 November 2008 | ||||
| I forgot to mention one thing about the flight back from Texas. I carried back one of my Welcome Back to Texas balloons on the plane. I forgot that airplane cabins are only pressurized to 10,000 to 11,000 feet. Needless to say, the metallic balloon expanded to the size of an exploded airbag and I was afraid it would blow at any moment possibly causing the oxygen masks to deploy or something worse. I was lucky that nothing happened. I took Friday off of work to take care of some domestic chores and first on my list was to go by the local wheelchair dealer and have my regular chair upgraded with the items that arrived during the week from the VA. They installed the Grade Aide brakes and pneumatic tires so now I am using my original chair as primary and the folding chair for travel. I found a place close by called Southern Mobility Products in Huntsville that is closed until Monday but I am hoping that not only can they service Christine when needed but maybe able to adapt my 2005 Ford F250 truck with a seat lift and hand controls. On Saturday I went to Mattress King where I bought my bed to exchange it for the Sealy Posturepedic ® “Signature” Bloomsbury Cushion Firm mattress set. This mattress is comparable to the one I slept on at the hotel during the conference. They are supposed to do the swap out this Tuesday. Melissa and I went to the pool on Saturday for a workout and I woke up this morning with a really sore back. As a matter of fact, I fell back to sleep after my 8 am IC and didn’t wake back up until 11 am. Today’s primary project was to get the truck running again. The batteries went dead last week so it took two vehicles to jump the two batteries to get it running so Melissa took it this afternoon to run exercise it and fill the tank with $2.69/gallon diesel. This will be a short work week and I have no planned trips until next year when I go back to the Augusta VA for my annual checkup in January…Phillip | ||||
Thursday Night, November 20, 2008 (Back Home) |
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| Written by Phillip Sherwood | ||||
| Thursday, 20 November 2008 | ||||
| I made it back home with no problems and all went well. The conference went well and I was able to see a lot of folks I haven’t seen in a long time. The hotel room was really wheelchair friendly and the bed was the most comfortable I’ve slept in. The door even had a peephole at my level I could see out of and it was pointed up. The past four nights were the best nights of rest I’ve had since my accident. I asked the desk clerk what brand mattress it was and found out it was the Serta Presidential that is only sold exclusively to hotels. They offer it for sale on their website www.omnihotels.com under the Omni Store because so many customers have requested it. I called the store where I bought my Tempur-Pedic memory foam bed to coordinate the return of mine when the company said they have a mattress that is better. I told them that if it at least meets or exceeds the specifications of that bed, I would buy it so I go this Saturday to check it out and have the Tempur-Pedic picked up and replaced with the Serta. Last night I had the great fortune to have dinner with my dear friends Jose & Tessy Cabrera that I knew in Colombia and now live and work in Corpus Christi, TX. It was great to see them again and Jose’s two Cuban friends Monte and Cristo. We use to smoke Cuban cigars and drink wine quite a bit in Colombia so it was fun to do this again with them. The hotel didn’t have a wheelchair accessible shuttle van to take me back to the airport in so the bellman drove me in his own car. He was an interesting fellow from Czechoslovakia. The flight leg from Dallas to Huntsville was oversold so they came up to me and asked me if I would mind giving up my seat for a first class seat so they can give mine to a standby passenger. I hated to have to do this but it was for the betterment of the other passenger trying to get home. As I sit in the front row wearing my BAMA football jacket and shirt, a passenger made the comment that it’s great to see BAMA up front in first class. I responded with “that’s right, War Eagles are in the back of the bus next to the toilet.” I got a bunch of “ROLL TIDE’s” from that. Melissa and her kids were there at the airport to pick me up. Time to get unpacked and ready for bed. Hasta Luego…Phillip | ||||
Monday Night, November 17, 2008 |
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| Written by Phillip Sherwood | ||||
| Monday, 17 November 2008 | ||||
| The solo plane trip to Corpus Christi didn’t go without some memorable moments. Melissa and I got to the airport in Huntsville in plenty of time and were able to get gate passes for her and her young 5 y/o daughter. I told her she was going to China J The airlines didn’t charge me for either of my two bags I checked in which was really nice. The TSA security check seemed to take a little longer than normal but it seemed to be rush hour. I got to the gate and got checked through first, transferred onto the little aisle chair, and squeezed into the 4th row aisle seat. As the rest of the passengers boarded, a man limped up to me and said he had the middle seat and asked me if I could get up and let him in because he had a bad leg. I responded with that I had two bad legs myself. He countered with he had a wooden leg in which I trumped him with telling him mine are paralyzed and I can’t stand up so we determined Rock beat paper and he squeezed by. I told him not to worry if he stepped on my feet that it wouldn’t hurt. Once we both settled in, a heavy set woman came down the aisle way and we looked at each other and said… no way and smiled. Sure enough, she stopped and said she had the window seat. I said this is gonna be interesting. We convinced her that the gentlemen that we are were not going to get up for her and that she’d have to press up against us to get to her seat. She was a trooper and played along. As she passed me, I asked her if it was as good for her as it is for me and we all laughed. The flight went well and we landed in Dallas for the changeover on-time however my ticket didn’t get coded with wheelchair assistance needed at the receiving end and it took 35 minutes for the airline to find an aisle chair for me to transfer to. While I was waiting, the flight attendant came over the intercom and said I could come up and sit in first class to wait that it’d be more comfortable. It was obvious at that point that her elevator didn’t go all the way to the top floor. With the help of the airline customer service rep and his radio, I was able to catch the tram and make it to my next flight with a cool 30 seconds to spare! The Nightstalker plus or minus 30 seconds has always worked for me. While on the next flight and shortly after takeoff, the flight attendant came running back to the front of the plane in a panic and grabbed the phone to talk to the pilots. I was thinking this is interesting however the plane is not deviating its course so must not be too bad. Come to find out the commode was refilled in Dallas except the servicing agent never drained the commode first and now there was blue Technicolor seepage on the floor in the aft portion of the plane. I was glad to be sitting up front. Needless to say, there was no beverage service on that leg since she spent almost the entire flight dealing with hazmat clean-up. On this arrival, the aisle chair was waiting for me and I was able to disembark much more promptly this time. I stopped at the bathroom to do an IC to find someone was in the handicap stall. I decided to go ahead and use the far corner of the sink area to set my supplies up. Halfway through the process, the gentleman walked out of the stall when I noticed he wasn’t handicapped. I told him it would really be appreciated if in the future he reserve that stall for those it was designed to serve when I noticed his collar. He was a catholic priest… and it was Sunday! He felt really guilty and apologized several times. As I proceeded down the concourse, I recognized a welcoming committee and it was my dear friends from Laredo with balloons, flowers, cookie cake and lots of smiles. This was so awesome. My friends Cesar, Sylvia, Gustavo and Monica with their children were all there to pick me up and the joy of seeing them was overwhelming. We went down to recover my bags then went to the parking lot. There was no way I was getting into Cesar’s Ford F350 duely so I looked at Gustavo’s Suburban and that was more doable. We got to the hotel and checked into my room then we all went to dinner at Joe’s Crab Shack. Dinner was great and we returned back to the hotel where they helped me to unpack and get set-up and ready for today. After they left, I went downstairs for the conference welcome reception. I slept pretty well last night but I missed not having my rope bridge to help me sit up in bed making it difficult to maneuver. I woke up at 6:45 this morning with a scheduled room delivery of coffee and a paper at 7:15. At 7:17 came a knock at the door then I heard a clang of dishes. When I opened the door, there was a tray with my order sitting on the floor and nobody around. I selected the in-room delivery option but that part was forgotten. I had one heck of a time leaning over in the chair and dragging it into the room. I made it down to the conference in time to get a continental breakfast before it was taken up. Everyone here has been great to me and I’m enjoying seeing so many of the people I worked with while in the Army. So far so good. Gotta jump in the shower and prep for tomorrow’s activities…Phillip | ||||
Saturday Night, November 15, 2008 |
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| Written by Phillip Sherwood | ||||
| Saturday, 15 November 2008 | ||||
| For the past forty-eight hours, I haven’t had any spasms where my leg will just jerk without warning. I have no idea why they’ve stopped but it sure is nice. Although the past two nights have been spasm free, for some reason I’ve slept less. It’s almost like having hiccups for a long time that just stopped. You keep feeling the anticipation of another one possibly brewing and that’s sort of what it’s been like. Last night I slept even less and watched news channels all night trying to induce sleep. At 6 am, I finally dozed off only to be woken at 8:15 by… a jerking spasm! DANG!!! They’re back. I’ve read forums on RLS where these individuals suffer the same affliction and are looking for medicine to advance enough to understand this condition. This week while working out at the gym, several folks came up to me and told me how my efforts in the gym really inspire them. I never know how to respond but it seems to give meaning to what I do and it’s a good feeling. I went for my bi-weekly massage yesterday and it always helps subdue the back pain for days afterwards. The table is at a perfect transfer height to my chair. Tomorrow (Sunday) is my solo trip to Corpus Christi, TX. This time I will travel with my meds in my carry-on instead of checked baggage. Work continues to pick up and now we are looking to hire a full-time contractor to assist with the workload to give Will and I some relief. The other night when I came home, my stretch mat I keep by the door fell over and blocked the door making it almost impossible to get into the apartment. I was able to get it out of the way enough to squeeze by. The other night my neighbor Kristina brought over some homemade chili that was utterly delicious. It’s been a long time since I’ve had chili. The house in Texas I have for sale still sits on the market with very little activity. I’ve lowered the asking price once again but the market is horrible. Once I sell this, I plan to buy a lot on the southeast side of Huntsville and build a one story house that’s not only wheelchair accessible but wheelchair friendly. I’ve been collecting ideas from my experiences in the apartment and Shepherd. I also research a lot on the internet and am about ready to start drafting plans. Gotta get some rest…Phillip | ||||
Thursday Morning, November 13th (No Spasms Last Night) |
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| Written by Phillip Sherwood | ||||
| Thursday, 13 November 2008 | ||||
| Last night was the first night I had no spasms and it was awesome. I went to the gym and worked out really hard last night and although I slept well overall, I’m a restless sleeper and have to turn every couple of hours and that takes a lot of effort. I woke up at 7 am feeling like a zombie and wanted nothing more than to grab a couple more hours of sleep. I grabbed Bob and began to pet him to help wake me up and because he gets irritated after a few minutes but he just fell asleep in my arms this time. Just wanted to share this with everyone. I hope it’s a sign of things to come. Now if I can figure the key to repeat this. On another note, my friend Curtis has been having a tough time dealing with the pain from his injury since his accident and went in yesterday to do a spinal block but found out they couldn’t do one because during his corrective surgery, the surgeon did a “levonectomy” sp? That prohibits the passing of the needle at the injury site. He was never aware this procedure was performed until yesterday which makes me wonder if it was done to me too. I need to check on this. Time to get back to work…Phillip | ||||
Tuesday, November 11th(Veteran’s Day) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 11 November 2008 | ||||
| Today I am off of work for Veteran’s Day so I decided to celebrate by grabbing a few extra hours of rest this morning and I feel so much better now. I’ve upped the ante on the Nu-Step bike at the gym and woke up feeling sore so today I’m resting the muscles in prep for a good workout tomorrow. Today we are expecting rain to come in so I limit my exposure outside in these conditions. The batter’s gloves I bought Sunday at Dick’s work out really good when the chair rims get cold. I will be going over to Curtis’s house this week to work on the chair to get it to track straight and to cut down the brake handles. They catch on my pants when I transfer and sometimes pull my shorts down. This weekend I’m off to Corpus Christi, TX for the International Black Hawk User’s Conference but the part I’m looking forward to most is reuniting with my Texan racing family Cesar, Sylvia, Gustavo & Monica and their children…Phillip | ||||
Sunday, November 9th (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Sunday, 09 November 2008 | ||||
| Christine acted up again this week however I caused the problem. While I was ingressing the vehicle, I hit the ramp-up button while still maneuvering to lock-down the chair when my front caster put weight on the ramp guard causing the ramp to jam and blowing a fuse. Since I was running behind, I opted for the 94 cranks and off I went to work only to postpone breaching the computer for later. During my lunch break, I went to the back to access the computer and the cover must have been put on by the company with an air wrench. All I had to open it with was one of those 90 degree Chinese screwdrivers, after an hour of breaking knuckles, I finally got it open and swapped out fuses and I was back in business. I received a response from RTI about the e-stim bike and my secondary insurance company TRICARE denied my claim to cover the final 20% so to not have to delay any longer, I’ve decided to cover this myself and begin the arduous appeal process. Curtis received his bike the other week and yesterday the rep came to his house to get him set up so I went to watch and I was impressed with what additional things I learned above that what I was taught at Shepherd. This only reaffirmed my decision to accelerate the procurement of my stim bike. Friday was my day off of work so I went to the gym early and got into the pool. This was the first time I’ve gotten into the water since leaving Shepherd. Thursday evening, Matt from the gym instructed me on the operation of the pool chair and it was actually simpler than the Shepherd chair. While under the initial supervision of the water aerobics instructor, I transferred into the chair, donned my water ski flotation belt around my waist and lowered myself into the water. I was a little apprehensive at first on what to expect because the water temp in this pool is kept in the mid-80’s compared to SCI therapeutic pools in the low 90’s. One point to note is that as a man when you first get into cool water and it hits your groin then nipples, it kinda takes your breath away. This doesn’t happen to me now so getting in is much easier. I began floating and practicing my water techniques I learned with the Shepherd pool instructor and in no time was ready to start doing laps. I began with the backstroke then would turn around and come back doing the breaststroke. This was much more difficult and I had to exert substantially more energy to keep my head from going under the water since I didn’t have any swim goggles on. As I started to relax and make forward progress, my legs began to spasm and immediately sink towards the bottom like a sea anchor. This process continues off and on throughout the first half-hour before subsiding. Had I been in a vat of cream, my legs would have turned it into butter! After my hour in the water, my legs became very relaxed. The most difficult part of this process occurred back in the men’s locker room. There was no changing mat to transfer onto like at Shepherd so I had to swap my wet clothes for dry ones from the chair. I underestimated the degree of difficulty and while I was struggling, an elderly retired doctor offered me a hand getting the wet trunks off and putting the dry pants back on. My brakes on the chair started relaxing their grip indicating possible low tire pressure. The tires hold up to 145 psi max so I put about 110 in them and I was amazed afterwards at how fast my chair was. It still pulls slightly to the left but now it just gets there faster. This has been a little painful week since I stepped up my workout routine. I’ve been sleeping better at night and my nocturnal spasms haven’t been so bad. It must have something to do with the fall in gas prices…Phillip | ||||
Wednesday Morning, November 5rd (Strange Stuff) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 05 November 2008 | ||||
| Yesterday’s briefing went very well that I gave however it sure would have been nice to be able to give it standing behind a podium. It’s difficult to address a 270 degree audience while sitting in a chair. It also sucks when during the course of speaking, my leg jumps straight out. Last night at the gym, I met a nurse that works at the Huntsville Hospital ER although she wasn’t on duty the day I was flown in. She did work Med-Flight and knows the pilot Cliff that flew me that day and spoke very highly of him. I asked her to relay a message of thanks to him from me that I am doing well and thank him for the quick flight because for every minute that passed while waiting for treatment in the ER, the spinal swelling would have worsened leaving me in proportionally worse shape and deeper hole to have to climb out of. I’ve met some really great people at this gym who really inspire me to keep working hard and I think we all feed off of each other’s determination. I went to the grocery store after the gym and I’ve found it’s really difficult to carry the bags without seatbelts on my chair. One of the fruit bowls I bought broke open and leaked juices all over my legs and penetrated the seat cushion. This kind of sucked because clean-up is always a difficult and tedious task by myself. On a positive note, I’ve been sleeping rather well for the past three nights with minimal leg spasms but last night I experienced something new that I am not sure is good or bad however right now I categorize anything that disturbs my sleep as bad. My right thigh kept cramping up to the point where I’d have to massage my quads or provoke leg spasms to get the muscles to relax. At 5 am I was able to fall back asleep but it was so deep, I don’t know how long the alarm clock was buzzing before it finally woke me up to turn it off. This morning my right leg still feels crampy so maybe this weekend I’ll try a session in the pool and on the E-Stim bike of Curtis to see what changes it may bring to my legs. Time to get back to work…Phillip | ||||
Monday, November 3rd (Weekend update) |
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| Written by Phillip Sherwood | ||||
| Monday, 03 November 2008 | ||||
| This weekend was nice but Sunday I crashed. Saturday night a bunch of us from work went and Curtis & Melisa to the local Semi-pro Hockey team Huntsville Havoc season opener. It was a great game but even better was the parking accessibility and the ease of getting into the facility. The box seats for wheelchairs were really good too. The game went into overtime then progressed to shoot-outs. Sunday I was wiped out and spent half the day lounging in bed and sleeping. I did sleep pretty well on Saturday and Sunday nights but I can only go about two hours max before I have to turn to get comfortable or curtail a spasm. I’ve been spending a lot of my free time at home working on my music collection and reloading my 8GB iPod with my favorite workout jams. I have about 62GB of music but when it gets pulled into iTunes and gets converted fro .mp3 to .mp4 format, the artist and song titles don’t all match with the original form. Bob amuses himself while he sits in the office window while I work on my music. This morning when I arrived to work, the freight elevator I use was out of service. I waited for a while waiting for service techs to arrive but that could have taken all day. A co-worker passed by who found another helping hand and we put some Shepherd skills to work by lifting me up a set of stairs where there are more elevator options. I got to my office and quickly downed two cups of coffee to get the heart beatin’ and cranked up both of my heaters full blast to stave off the crisp temps of our work area that reach a balmy 69 degrees. This is a real busy day. Tomorrow I brief the Royal Saudi Air Force on the Black Hawk simulator we built for the US Army. I lead the Foreign Military Sales effort for T-BOS so as more countries who we sell Black Hawk helicopters to buy these devices, my workload increases exponentially. I need to hit the gym hard tonight. Don’t forget to vote tomorrow. Regardless of who wins, there will be change…Phillip | ||||
Thursday Night, October 30th |
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| Written by Phillip Sherwood | ||||
| Thursday, 30 October 2008 | ||||
| Tonight I was afforded the opportunity to babysit the children of Curtis & Melisa and we had a good time. We ate pizza and watched the movie “Ironman” together. Curtis & Melisa picked them back up right as the movie was ending. My rotator cuff in my right shoulder is inflamed again making weight bearing exercises difficult and painful so I’ve been doing a bit more leg stretching. For some reason, my left leg has been hyperspastic at night this week keeping me awake at night and depriving me of the sleep I need. I don’t know why this is happening but hopefully the reason will reveal itself soon so I can treat it and move on. I doubt the effectiveness of the oral Baclofen I take. I can go all day without taking any and manage ok but when I really need it at night, it’s not doing what I need it to. Last night I did sleep fairly well and I’m hoping for a repeat performance tonight. The bowel and bladder have been erratic as well. Tomorrow night is Halloween and it won’t be the same without my dog Kari. He use to enjoy going to the door and see the little people all dressed and helped me pass out the candy. The kids would just sit there and pet/play with him until the parents would have to come to the door and drag them away. Minutes later the doorbell would ring and the same scenario would repeat itself again. Saturday night is the opening night of the Huntsville Havoc hockey season and my friend Nick from work organized a group outing we are all looking forward to. Time to prep for bed. Wish me luck…Phillip | ||||
Sunday Morning, October 26th (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Sunday, 26 October 2008 | ||||
| This has been a very busy week for me at work having to go in every day rather than working from home on Tuesday and Thursday. We had a fire drill where we all had to evacuate the building so this was the first time we put the Evac-Chair to use with me actually in it. All went well and worked as advertised. Next drill we are going to ask for an exemption since some with lesser ailments were allowed to remain at their work stations. Needless to say, I am pretty worn out and have been trying to rest up this weekend to prepare for the upcoming week. Although my cold felt like it was on its way out the door, it came back yesterday for one final surge. I didn’t sleep at all Thursday or Friday night so yesterday I was seeing double. Friday night, Melissa and I went to the Army Aviation Association of America (AAAA) St. Michael’s Ball black tie formal and it was really nice. I got to see a bunch of folks I haven’t seen for a long time and Melissa got to see for the first time a little of the Army’s longstanding traditions like the posting and retiring of the colors. I wore a tuxedo while she was in a beautiful black & white ensemble. A lot of women approached her on how beautiful she looked. Yesterday the Tempur-Pedic bed arrived and luckily it fit perfect in the mahogany bed frame I had made back when I was stationed in Panamá. It was like sleeping on very soft play-doh and I slept well for the first night however when I slept on my right side, I soaked the sheets from sweat I was so hot. The top mattress weighs a mere 350 pounds! When I have to change my position, my body creates a divot in the mattress that requires a little more effort to maneuver out of but all-in-all it is a more comfortable bed than the old box spring I had. Despite the nocturnal leg spasms that wake me constantly throughout all hours of the night and this lingering cold, I am doing well and in good spirits…Phillip | ||||
Tuesday Night, October 21st |
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| Written by Phillip Sherwood | ||||
| Tuesday, 21 October 2008 | ||||
| Well… today I went and dropped some serious coin and bought the Tempur-Pedic bed. I hope it’s at least half as good as I hear it is. They are supposed to deliver it this Saturday but they had the pillows in the store so I’ll give those a try tonight. Last night I slept really well and felt good all day. My cold seems to finally be on its way out. I still have the stuffy nose and sneezes but there was a time where I couldn’t even sneeze so I’m thankful for that. Tonight while at the gym, I was able to lean over in my chair as to tie my shoes and lift my body erect without using my hands to push my upper torso vertical but I tried again after coming home and couldn’t repeat it. I have a new intern beginning tomorrow at work. My flight is booked for my trip in November to Corpus Christi for an international Black Hawk conference. This will be the first flight I take solo. The VA denied my request for a stretch table saying it’s considered rehab equipment. It’s ironic because it costs about as much as one of my wheelchair wheels. Gotta finish reviewing a tech document for work so that should knock me out quicker than the Benadryl. …Phillip | ||||
Monday, October 20th (One Year Post Accident) |
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| Written by Phillip Sherwood | ||||
| Monday, 20 October 2008 | ||||
| Today marks one calendar year since my accident. Although I’ve made a lot of progress, I really hoped I would have gained back a little more sensory and at least something of voluntary motor response. I guess false hope is better than no hope at all. The reality of recovery is the next six to twelve month gains will be tapering off at a slower rate than the first twelve months. This still falls in-line with what Dr. Bowman of Shepherd briefed during the family conference November of last year. I am still struggling with this cold although I am getting a little better each day and since I’ve been taking the Benadryl at night, my sleep is better. I keep thinking what I was going through at this point a year ago. Although the apartment is working out to facilitate my needs, it will be nice to finally have a house with more maneuver room, especially in the kitchen. This week I’ll be getting the Tempur-Pedic Rhapsody model and hopefully delivered and setup before the weekend. I am finding that a good night of rest is becoming a personal priority of mine. I wrote in an earlier post about my learning to fly my remote controlled helicopter and how difficult it was even for a former Nightstalker. Well, Melissa’s 16 y/o son DJ and his racing buddy came to the house yesterday and within two minutes, had that thing flying all over the apartment. He must have acquired that Hand-Eye-Thumb coordination the month he made 4,300 text messages on his cell. According to him, text messaging helps him do everything better. Since I have two wheelchairs at the house now, he and his racing buddy Brian were riding wheelies frontwards, backwards, turning on one wheel with one hand. The PT’s at Shepherd would have a time with them. I just hope they never have to put those skills to use for real. When they went outside in the chairs to dork around, DJ tipped over and before he knew it, two neighbors rushed over to help him back up while Brian filmed it on his cell phone. Later they went outside to play with the helo when those same helping neighbors saw them flying the chopper. It was pretty funny and I got a good chuckle over the whole event…Phillip | ||||
Saturday October 18th (Cold has me down) |
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| Written by Phillip Sherwood | ||||
| Saturday, 18 October 2008 | ||||
| Yesterday was a productive but mostly informative day at the VA. I slept restlessly and sweated a bunch during the night waking up with my cold having just as strong a grip on me as the previous days. I made it into the hospital by 9 am and started my rounds. The SCI unit has now consolidated both in and out patient services and also opened their new therapy gym that closely resembles something from Shepherd. It is very impressive. While waiting for Abbey the PT, I decided to take advantage of my time and use an unoccupied stretch table by working the rigor mortis out of my legs. While engaged in a gumby stretch, Abbey came by to pick up my wheel chair to adjust the front caster that was off and causing me to drift right as I coast. She also took the new chair down to the seating clinic to have it adjusted. The chair I got is a TiLite titanium but this one folds up for easy travel. Some changes I got with this chair are that it has high pressure pneumatic tires and GradeAde brakes to help ascend steeper angles. I actually like this chair better than my other and the footplate keeps my feet in place much better when I am barefoot. Next I saw Pam the PA to talk about the Cleveland FES program and she is now in touch with them personally. She ran through some basic range of motion checks with my legs but told me the bad news that I am disqualified as a candidate for the FES program while taking blood thinners. Since the program is in the “research” stage, the candidates must not have any condition that may reduce their chances to get optimum results. There’s something about the amount of current that may be required to stimulate the muscle sufficiently to contract enough to stand and bear my full weight may cause some internal bleeding. The PT also needs to perform a series of functional electrical stimulation checks above and beyond what I was given at Shepherd to qualify me for using the FES bike. My next appointment with the vascular surgeon here in Huntsville will be on December 15th so I’ll have a much better idea where my clots stand at that time and possibly adjust my blood thinning therapy. My annual checkup with the Augusta VA will be January 15th that will take about two days to complete. The PT will run the FES referral muscle stimulation checks if anything to at least establish a baseline. As for my cold, the PA recommended I take 50 mg of Benadryl at night and the Pseudofed during the day. I did this last night by taking 50 mg at 10 pm then another 50 mg at 3 am. I slept well and through all the tremors and jolts from my leg spasms but I was totally wiped out this morning. After two cups of Colombian coffee and a shower, I was finally able to make sense of my surroundings. Back to the VA. I ran into Amanda the OT who I referred to earlier as Santa’s Little Helper and talked with her about what I’ve been doing in Huntsville for therapy and my plans for swimming and FES. She like many other SCI healthcare professionals really endorses the use of a Baclofen pump. I also spoke with the Director of Prosthetics who was instrumental in helping me get the paperwork through to get the vehicle funding assistance. Although the VA only provides one vehicle to be adapted to ride as a passenger for non-service connected disabilities, they may continue to pay for maintenance services of that equipment until it is deemed beyond repair at which time I’d have to reapply all over again to get help in buying a new vehicle. I went out to a local mattress store to test fly the TempurPedic Rhapsody bed and I liked it and was able to move around on it ok. It’s pretty expensive but I think it has some distinct advantages over the SleepComfort-SleepNumber bed. As I sit here typing, it’s third quarter of the Alabama vs Olde Miss game and my leg just now woke up and begun to spasm. They’ve been calm since last night. I still feel like my head is in a fish bowl and my cold has got me down. Today by the way is the third Saturday of October and it is now 4:45 pm. This time last year I was in the Huntsville Hospital ER being heavily sedated and run through a battery of tests to find out the extent of my injury…Phillip | ||||
Thursday Night October 16th (Back At The VA) |
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| Written by Phillip Sherwood | ||||
| Thursday, 16 October 2008 | ||||
| Today I am back at the VA in Augusta, GA to pickup my new spare chair, get my other one fixed, and visit with the PA. On the way we stopped at the crypt of Christine to perform another exorcism and a three hour job to replace the kneeling actuator motor only took 1 1/2. Now it works like a champ once more. My next trip to the VA will be around the end of February so I’m thinking of bringing the truck to get hand controls installed and a telescoping passenger seat to allow me the ability to get in and out of the vehicle. Wednesday the affects of my trip hit me full bore and I had one humdinger of a cold. I can’t believe how much a head cold with accompanying sinus pressure could be so difficult to deal with. This was the first time I’ve gotten sick since my accident and I can already tell the impact feels multiplied by 100%. I felt so bad I couldn’t go to the gym but instead went home to rest. I took some cold meds and they helped me get through the night. I woke up this morning feeling much better. The night before I only got about two hours of sleep. I received a manual from the CASE FES center that goes into great detail about all the procedures they perform and the qualifying/disqualifying criteria. Unfortunately, blood clots are a disqualifying condition that I thought I had already disclosed in the initial information gathering process. The nurse coordinator will consult with the doctor and get back to me tomorrow. One interesting note is that the physiatrist is familiar with the Shepherd Center and said it use to be spinal cord injury specific however over the years cars have been made safer with the advent of air bags and better crash protection while state laws began enforcing mandatory usage of seatbelts. Because of these multipliers, the rate of spinal cord injuries has dropped of to the point that places like Shepherd started to expand their services to include Acute Brain Injury, MS, and other neurological disorders. Tomorrow will be a long day to be finished up by a long drive back to Huntsville. Hopefully I will have a productive visit…Phillip | ||||
Tuesday October 14th (Weekend Review) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 14 October 2008 | ||||
| This past weekend was a busy one while visiting Anderson, Illinois for the wedding of my friend Isaiah. We took the early 6 am flight out of Huntsville Saturday morning and to get there, I just stayed awake after my 3 am IC and got ready for the airport. Although NWA charges for baggage, they did not charge for the medical bag I brought. The flights and transfers went well except that when we arrived to Indianapolis International, they didn’t have an isle chair to get me out of the plane. Luckily, the flight attendant took the one from on-board the plane and we used it and it worked however transferring back into my chair was difficult. After getting the luggage, we went to pickup the rental car so we went out to the curb to catch the shuttle bus and when it came, it wasn’t wheelchair accessible. They ended driving it to the passenger pickup area of the terminal to transfer the car to us. When we made it to Isaiah’s parents house, I was pleasantly surprised to see my friends Tim & Tony Thompson from back when I lived in Texas. The room at the Hampton Inn was very comfortable and accessible but the bed was a little tall and challenging to get into. I slept very good Saturday night and felt refreshed on Sunday. There were a couple of handicap bathrooms I either couldn’t fit my wheelchair into or once in, I couldn’t close the door behind me. I found at the airport the best bathroom to use was the family bathroom because they are especially equipped for wheelchairs. The flight back yesterday was another before breakfast show time but the airport was jam packed. As I was waiting in line to get through the TSA checkpoint, I was brushed to the side by an airport employee pushing an obese man with bad knees in a wheelchair so that he can get through the security check. Perturbed by this, I told him what the hell do you think I’m doing? Anyways, after arriving in Huntsville my suitcase with my medicine didn’t show up and it was really difficult trying to trace it down. Come to find out it went to Minneapolis and the airline had no clue what happened to it after that because I was never given a claim number from Huntsville NWA although we filled out a claim. I had an afternoon appointment (my first one) with Dr Keith Anderson the physiatrist and it went very well. He recognized me from the gym but I don’t remember ever seeing him there. We are changing my spasm meds around a little to see if I we can come up with a better combination to help me sleep better. My nighttime Tizanidine dose is being doubled and I now take another dose at my 3 am IC. Last night it seemed to work out. Today during lunch, I stopped by the VA clinic to see the nurse about my referral and to also get checked for a UTI. I was told the Birmingham cannot provide me a referral because I am in the Augusta system and that they would be responsible for my SCI needs. Since I have an appointment with them this Friday, I’ll take it up with them. I will also need to stop by the van dealership to get Christine fixed because I can’t get Atlas Mobility in Huntsville to do the repairs for some reason only known to them. Last night we celebrated Curtis’s 43rd birthday and he is doing better all the time. Well, that’s the down n’ dirty for the moment…Phillip | ||||
Friday Afternoon October 10th (T.G.I.F.) |
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| Written by Phillip Sherwood | ||||
| Friday, 10 October 2008 | ||||
| Today I have the day off from work however I have been dealing with work issues for most of the day since my coworker Will is out of the net and I’m covering down for him. I don’t mind at all because we do this for each other all the time. I am hiring a new intern for our intern Little Cat Z to help relieve some of the work load on all of us. Did I ever mention how much I enjoy my job? Last night I slept really well and better than I have in a very long time. A few more nights like that and I’ll be doing cartwheels! I’ve decided to adjust my meds schedule to endure more spasms during the day to compress my nightly med interval to better cover the hours of sleep. Although I stretch at the gym, I am also doing a pre-sleep stretch to help get through the beginning hours of the night. Even though I slept great last night, I woke up with a lot of pain in my chest and back that called for a double shot of Tramadol. I had to get to my hair engineer early to get my hair cut and almost couldn’t get into Christine. Last night the kneeling device broke that compresses the rear suspension as I was about to debark and the vehicle jumped up several inches. This morning it did not re-catch and it was a very painful effort to get up the ramp. I called the local VMI repair facility for an emergency call but the tech is on the road and hasn’t returned my distress call yet. I still have more errands to run this afternoon and I don’t look forward to trying to get up that ramp. If I had the grade aide brakes, it wouldn’t be that big of a deal. Supposedly they are to arrive next week at the Augusta VA. Tomorrow is Melissa’s birthday and we are flying to Indianapolis for Isaiah’s wedding. And we’re really looking forward to seeing him…Phillip | ||||
Tuesday Night October 7th |
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| Written by Phillip Sherwood | ||||
| Tuesday, 07 October 2008 | ||||
| Today was pretty taxing work wise. It seems almost like the perfect storms with all the programs needing immediate attention but I love the mental challenge. I received a call from the Physician Assistant I see at the Augusta, GA VA Hospital. It was nice to finally reestablish contact once again and discuss some of the problems ailing me. She is going to fit me in next Friday for an office call while I am there getting my wheelchairs taken care of. She was not familiar with the Cleveland FES program so we will discuss that topic also and maybe I can get them to do the referral. I also put in a request to the PT for a stretch table although I have my doubts they will approve it but who knows. It will be awesome if they do. As for my sporadic bloody IC’s, she thinks I may have some intermittent bladder stones accompanied with a low level urinary tract infection which would account for the increased nocturnal spasm activity. Either case, it’s something I need to go get checked out. Everything else is going well and as I am about to lie down for the night, I am hoping for a good night of sleep without waking every 1-2 hours having to turn or stop a spasm. For all those who can go to bed at night and wake up eight hours later, that is a blessing you need to be thankful for. October 19th 2007 was the last time I had the pleasure of that experience. As Tom Huff would sign off; “Shake ‘n Bake”…Phillip | ||||
Sunday Night October 5th, 2008 (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Sunday, 05 October 2008 | ||||
| Last week was a rather busy week so I spent most of the weekend trying to rest up. I am still looking at ways to try to control my nocturnal spasms enough to allow me to sleep. On Friday I got an upper body massage at the Wellness Center where I do my PT at and it felt so good. I don’t really have pain anymore but I get inflammation and soreness along my “tenderloin” muscles that parallel each side on my spinal column. For some reason my right side is always more sore than the left. Friday night, we tried a suggestion that Melissa’s friend suggested by applying the analgesic Tiger Balm to my legs to keep them from spasming during the night. Although the spasms were kept at bay, the noxious fumes kept me intoxicated all night. Additionally, my greasy legs kept sticking to the sheets making repositioning very difficult. It was worth a try at least. Won’t do that one again. Saturday night we went to dinner with Curtis and Melisa and we discussed the fact that there doesn’t seem to be a support group out there of others afflicted with paralysis that gets together or has a forum to share ideas and technological innovations. I guess some more research needs to be done it that area. I have some interaction with the Paralyzed Veterans Association but not much personal exchange except with Curtis. I am hoping things with the VA turn around. It seems at first they couldn’t do enough to help me but the further away I get from them between visits, the more distant their support and less responsive to my needs they become. I had a very bloody IC the other night at 3 am and could never get a hold of my care provider to ask them about it or update my meds. I will need to reconnect with the bull dogs at PVA again. I am really looking forward to my appointment with the Huntsville Physiatrist on October 13th to give me the medical support I need in a more timely manner. I began playing with my remote control helicopter this weekend and it took me back to my original days of trying to learn how to hover while in flight school back in 1987. I employed the same basic techniques my instructor taught me to learn how to hover within seven flight hours but unfortunately the battery on this little helo only lasts about fifteen minutes before it needs to be recharged. Bob’s life is about to make a significant change from the way he knows it now J I got it hovering in the living room pretty good tonight but when the nose faces me, the control perspective becomes reversed and I flew into the fig tree and chopped a bunch of leaves off. I’ve already experienced dynamic roll over and a tree strike. My perfect 3,500 hours of safe flying came to a halt this weekend. When I get really good at this remote control helo thing, I’m going to look for a Black Hawk. That would be so cool. Well, I need to get ready for bed and my next action packed week of work. I am looking forward to it…Phillip | ||||
Thursday Night, October 2nd |
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| Written by Phillip Sherwood | ||||
| Thursday, 02 October 2008 | ||||
| Just a quick note to say that finally I’ve been getting some sleep at nights and I’m beginning to feel much better. Curtis gave me some of his medication to help with sleeping which worked ok but it was meant to break the weakest link in the chain of escalating problems and it seems to have worked. I received a call from the local VA clinic here and they never could get in touch with the SCI unit at the Birmingham VA so they just sent them a fax and told me they’d be in contact. Kinda sounds like check’s in the mail to me. I will probably just go down there myself next week and self-referral to get some needed support. If I have to and with permission from the CASE institute in Cleveland, I will go there myself on my own dime if necessary. The VA is great in some respect but not very responsive and that gets frustrating. I got my industrial espresso maker up and going and it makes some great and powerful coffee that gets me going on afterburner in the mornings. It’s late and time to get some rest…Phillip | ||||
Sunday Night September 28th |
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| Written by Phillip Sherwood | ||||
| Sunday, 28 September 2008 | ||||
| I had a very nice birthday thanks to Melissa and all the spoiling she did but not just yesterday but everyday. Thanks to everyone that called, send cards and messages and especially those who came to dinner. He posted a few pix on his website: http://friends.iwannaride.net On another note, things have taken a slight turn for the worse lately. I’ve been having increased leg spasms at night but now it has reached a level that is seriously impacting my ability to sleep at night. I am not sure what I am going to do to alleviate this problem but it’s begun to have a negative impact on both my physical, mental, and emotional state. It’s late and I need to try and get what sleep I can if I am to even make an attempt to go into work Monday meanwhile my right leg is kicking field goals while my left leg is preparing to fight off shark bites once I hit the bed…Phillip | ||||
Friday, September 26th |
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| Written by Phillip Sherwood | ||||
| Friday, 26 September 2008 | ||||
| Today I am off of work and home getting things done around the house and just plain chillin’ out. Tomorrow is a big day for me because I turn 45 and truth be told, there times in my life where I never thought I’d make it this far. Huntsville is also celebrating its Big Spring Jam weekend where for the next three nights a flurry of musical artists will perform. I always wondered why it was called Big Spring Jam when it takes place in the fall but I figured it out last year when I went and it takes place around Big Spring Lake right in downtown Huntsville. I always thought it was just a southern thing J My legs have been really jumpy at night and waking me up about every hour or two throughout the night. Come five in the afternoon, I just want to take a long blink and it takes all I have to muster the internal strength to go to the gym for my physical therapy. Of course with increased fatigue the proportionate response is increased spasms and back pain. For some reason I’ve also begun the night sweats again. Maybe some good rest this weekend will help to “reboot” my system. I still haven’t heard back from my local VA reference the referral to CASE in Cleveland for the FES program so I contacted the nurse director of the program who will talk to the VA doctor there when he comes back next week to see what additional options may be available to me to get VA approval. I am also thinking about inscribing into the SCI unit at the Birmingham VA since the Augusta VA is becoming increasingly more difficult to get support from. I learned that on Tuesday of this week a pro racer from Canada suffered a paralyzing injury while practicing for an upcoming supercross race. I wrote to his family to try and offer some insight into the Shepherd Center. I am curious to know if he too was wearing the LEATT neck brace like Curtis and I had on during our accidents. On a final note, I learned that my new military boss’s birthday is the same as mine. I like this guy already…Phillip | ||||
Wednesday, September 24th |
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| Written by Phillip Sherwood | ||||
| Wednesday, 24 September 2008 | ||||
| Last night was not a good night of rest. I kept waking up every hour for some reason and having to turn or my left leg would start to kick. I woke up with a whopper of a headache that luckily went away quickly. I had a great workout last night so I don’t understand what happened. My strength is progressively getting better. I went to the local VA clinic to follow-up on the referral to the Cleveland clinic for the FES program however the nurse said she has to get approval from the Birmingham VA due to the associated reimbursable travel authorization but that her POC at BHM has not answered their phone the past three days. She will just keep trying as her time permits and advise me accordingly. I am planning my next trip for work to the International Black Hawk User’s Conference in Corpus Christi, TX. As it looks right now, I will be travelling solo so this will be a challenge. I will just get a taxi to and from the hotel and bring my long transfer board with me. I’ve found that doing my weight shifts (pressing up in the wheelchair to lift my butt up) is easier in an elevator going up than going down. I also noticed that at work, I can build up some decent speed cruising in the hallways and I can turn the corners pretty quickly with very little loss of momentum. If there were the wide angle mirrors in the corners like you find in hospitals, it would be a lot less hazardous for the people who walk down the hallways hugging the left side instead of the right. Four days ago passed my 11th month since the accident. It’s hard to believe it’s almost been a year already and the countdown of events is beginning to sink in now. My birthday is this Saturday the 27th and as I remember from that point last year to the day of the accident on October 20th is kind of like reliving the last days before the tragedy. It’s kind of weird and I am unsure how I am feeling about all of this. I do know the reality of it all is starting to set in.…Phillip | ||||
Sunday Night, September 21st (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Sunday, 21 September 2008 | ||||
| Everything is going well still and I am in great spirits. I’ve raised the bar a notch by getting myself up on all fours while proning on the stretch mat then elevating myself to sitting up on my heels. This was a bit tricky to do with my limited ab muscles but I’m able to balance my torso by placing my hands on my upper thighs. From this position, Melissa spotted me while I came back a little further to find the complete vertical balance point and I raised my arms to the sides like in the movie Titanic and held that position for several moments. Another achievement was my ability to get into a tanning bed and take a few minutes to color this white skin. The new beds where I went are wheelchair accessible and worked out real good. Saturday night, we met Melisa and Curtis for Thai dinner and it was delicious. Curtis seems to be doing a little better all the time and was in good spirits. Saturday night, I received a visit from an old Army buddy of mine Phil Wadsworth whom I met inprocessing into the 101st Airborne at Fort Campbell in 1988. We retired almost simultaneously and went totally separate ways. It was great to see him again and his new wife and child. Today Melissa and I spent the afternoon shopping for clothes so I have something to wear at Isaiah’s wedding in a couple of weeks. I also wanted to check out the Sleep Number beds to get a look and feel of the pressure mapping technology they incorporate into their Select Comfort mattresses. All the propaganda looks compelling about the back relief and better quality sleep it provides but they sure are expensive. I am going to see if I can get a prescription for one from my doctor then try to file an insurance claim. It’s worth a try; especially if they help prevent development of pressure sores and cut down on my having to continually turn at night. I would think my leg spasms at night would qualify as restless leg syndrome. On another note, I attempted the down escalator at the mall but this time it did not work out so well and ended with disastrous results requiring someone to hit the emergency stop button. Dang! When I entered face first like I did at the hotel, the front casters went down instead of a wheelie and when my chair dipped down, my feet slid off the footplate. It was everything I could do to hold onto the side rails to keep from submarining out of the chair. When I got to the bottom, my foot stopped on the end of the track and I couldn’t get back into the seat very well; meanwhile the folks behind us were still coming down. Anyways, nobody died and now I have to go back another day when it’s not so busy and slay this dragon! Lots of stuff going on this week with work again so time to get ready for bed…Phillip | ||||
Wednesday, September 17th |
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| Written by Phillip Sherwood | ||||
| Wednesday, 17 September 2008 | ||||
| The other night I was woken by a spasm that felt like a shark grabbing a hunk of tuna on a hook and trying to thrash it loose. It was the first time I’ve felt a spasm this violent. I can only assume it was due to my lack of stretching during the conference last week. I spent an hour intensely stretching in the gym and doing some push-ups from my knees while proning on the stretch mat. I decided to try something different by pushing myself up onto all fours (hands & knees). Although I was a little wobbly at first, I got more stable with each attempt. From this position, I added a couple more new stretches. I was thinking it would be good if there were something I could pull myself up on my knees. Tuesday the check from BlueCross BlueShield for the FES Stim Bike came in finally. I’ve sent this and the accompanying paperwork on to Restorative Therapies, Inc to process the remaining $3.5K through TRICARE. I am so close now to finally getting this vital piece of activity based therapeutical equipment. I also went to the local DMV and picked up my disabled vet tags. The nice thing about these is that they are not as expensive as the regular tags. This morning I received a call from the Augusta VA that my spare wheelchair came in. I’ve set a tentative date for October 17th to go pick it up. I ran over poor Bob’s paw this morning. It was inevitable but I felt bad for the little guy. Lots of stuff going on this week with work so gotta run…Phillip | ||||
Sunday, September 14th (Weekend update) |
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| Written by Phillip Sherwood | ||||
| Sunday, 14 September 2008 | ||||
| The conference in St. Louis went well and the trip home was great thanks to Will driving the entire way. We got a lot done through teleconferences and coordinating activities for this upcoming week that looks to be a busy one. Before leaving St. Louis, we went to a local casino via an accessible bus they provided. The bus driver didn’t know how to work the lift so while she called back to tech support, we figured out the rest. As I was lifted aboard, Mark was taking pictures in which the driver thought it was amusing until he told her it was for insurance purposes J You should have seen her face change. It was pretty funny. The ride was difficult as there were no straps to secure me to the floor so Will held onto the back of my chair while I held onto the seat in front of me but the road bumps got the best of me. It was a very difficult ride to say the least. After the casino, we went to a local microbrewery and tried the sampler plate. We then wheeled back to the hotel instead of trying to brave the bus ride back. When we got back, it was time to tempt the escalator. None of us had any idea how to negotiate this new obstacle so we just went for it. With one spotter to the front and another to the rear, I pulled off the wheelie bars entered the escalator head on. The ride was smoother than I thought it’d be and getting off at the top would be difficult but I just held onto the side rails and let them pull me off the stairs. Now was the down escalator and the anticipation was a little more heightened. Again with spotters to the front and back, I entered frontwards and tilted back and held on tightly to the handrails. Again all went smooth and getting off was as smooth as it was at the top. I then went with one spotter to the rear and another to take the photos. The last one I did myself. Another first in my repertoire of new capabilities. Friday was spent unwinding from the trip and resting. Saturday Melissa and I went to watch her son DJ race at Sand Mountain. This was one of my favorite local tracks and the owners (Billy & Linda) treat everyone there like family. It was great to see them and lots of my other racing buddies. DJ rode great and I enjoyed the day very much. Today was rainy so I slept in and just goofed off around the house watching NASCAR and organizing my music library. We went over to see Curtis and Melisa for dinner and he seems to be doing well. On the way home, Will and I stopped off in Clarksville, TN to visit a fellow Nightstalker Gary Linfoot who was in a helicopter crash while serving in Iraq and is now paralyzed at T-12. He also went through the VA system and later to Shepherd and is now home. He seems to be doing very well and also has a very strong and dedicated support network. Time to get ready for bed so need to wrap this up. Everything is going well and I feel good. Spasms have picked up a bit mostly due to not stretching much lately…Phillip | ||||
Wednesday, September 10th (Do You Feel Lucky?) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 10 September 2008 | ||||
| Everything is going great here at the conference for work in St. Louis. I really enjoy seeing folks I haven’t seen for years and those who’ve retired and now working in industry but still affiliated with Army Aviation and contributing their valuable experience. After the meetings yesterday, Will and I went to the park about two blocks from the hotel for the pre-Cardinals baseball game tailgate party. Will volunteered to “save my shoulders” by giving me a push but I think he got more of a workout than he bargained for. I think I would have gotten less tired by pushing myself than he was motoring me around J After the Anheiser Busch and White Castle sponsored party in the park (I can only assume drinking in public permits were obtained prior), we went to dinner. I got the idea to try out the turnstile doors on the way out of the hotel we went to eat at. Don’t know why I got this wild hair but it was beckoning me like the call of the lemmings. As I entered the glass carousel, I immediately jammed the device because I was too close to the center so I quickly repositioned to the outermost part of the revolving door and poof… I was out on the sidewalk and a new milestone was achieved. Tonight we are going to a microbrewery then on to a casino boat so maybe afterwards we’ll try the escalator when we get back. I hope to have the same luck. Anyways, I’ll have the camera ready. If I don’t do new stuff, I wouldn’t have cool crazy stuff to write about HAHAHA…Phillip | ||||
Tuesday, September 9th (Functional Electric Stimulation) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 09 September 2008 | ||||
| While driving up to St. Louis yesterday, I was contacted by the Clinical Coordinator of the Cleveland FES Center and given an interview to build my case as a candidate for the research program I wrote about earlier. There is a medical conference this Thursday where my case will be presented and decided upon. Based on the outcome (which seemed pretty positive during the interview) the next step would be to go to the center for a medical assessment to determine which level procedure I would qualify for and the medical staff will perform. It sounded like I would qualify for an advanced experimentation program that based on my level of injury would allow me to stand only but not walk. This at least would give me the ability to get things from upper kitchen cabinets for example and relieve pressure on my butt. Also the weight bearing on my limbs will help out the bone density on my pelvis and legs, muscle tone, circulation, bowel and bladder function. After the surgical implants of the electrodes, I would go through a rehab process to learn how to use the “game boy” type control box. I should find out more Thursday afternoon of the results from the conference. One good bit of news is that the doctor who chairs the board is the surgeon who would perform the procedure AND is a VA doctor to boot. On another note, everything is going well at the conference and it’s great to see so many of my peers who are still in uniform serving the military. Some already knew of my accident but many have not and are reluctant to ask me what happened so I usually just tell them after a little bit of conversation has passed. My room is very accessible and the bathroom is big and spacious. The shower is a “roll in” and will be interesting to figure out how to use instead of a bathtub that I’m most accustomed to using. It’s always a challenge to get everything setup to where I can be most efficient in doing what I need to do. I have established a good routine and developed a “template” that makes the learning curve less steep and after last night, there’s very little I need to tweak. I’m heading off to a tailgate party for the Cardinals game then on to a local microbrewery. This might be a good opportunity for Will and I to learn how to negotiate escalators afterwards. More on that L8TR…Phillip | ||||
Monday Morning, September 8th (Road Trip) |
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| Written by Phillip Sherwood | ||||
| Monday, 08 September 2008 | ||||
| Everything is going well and I am doing well. It’s been a good week for me. I have been sleeping pretty good and able to go back to sleep relatively quickly after my 3 am IC’s. Sometimes my mind starts racing thinking of things I need to do but I recently plugged in a Febreze filter that makes a soothing hum and the “white noise” has helped to aid in my getting to sleep. Last week it dawned on me about an added benefit to handicap parking other than a convenience but one I’ve overlooked until now. I went to a luncheon and the few handicap parking places that were available were all full so I had to park near the end on the parking lot; taking two spaces of course. While wheeling towards the restaurant, I was like going through a gauntlet to get to the strip mall where the restaurant was located. Cars backing out unable to see me made it a game of chicken. I was definitely in a high state of alert as it was like a chicken trying to cross a four lane highway. Melissa and I went to see Curtis and Melisa Saturday night for dinner and Curtis got a look at my chair to see if he could adjust the front casters to level them back out to prevent my chair from veering right. I think the frame is tweaked. I will need to take it to a TiLite rep to see what they can do. Today I am taking a road trip to attend a conference for work in St. Louis. My friend and co-worker Will is driving Christine and I am looking forward to the trip. I was thinking (at 3 am) of having some guest writers in this column so look ahead for their commentaries. My mother and Scooter were the first to contribute to the daily posts before I got on line and they did a great job …Phillip | ||||
Tuesday Night, September 2nd (Accessible Housing) |
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| Written by Phillip Sherwood | ||||||||||
| Wednesday, 03 September 2008 | ||||||||||
| The past several days have been very busy and somewhat emotional. On Friday, I closed on my house in Huntsville that closed this chapter of my life. The house carried many great memories although I wasn’t in it for very long. Mostly were all the great times I had with Kari and his favorite spots to lay. I spent the majority of the weekend going through the leftover boxes that were packed away into the race trailer. The last thing to go through was my bag of race gear and the uniform I was wearing the day of the accident. I think this was the first major accident I’ve had where articles of my clothing were not cut from my body. Everything was there except for my race boots. I have no idea where they went but I do remember they were pulled off my feet while I lay on the side of the track. Melissa worked her butt off Saturday carrying all the heavy boxes back and forth, repacking, then taking them to the storage unit. As I began the initial research into what my next house will be like, I ran across an article in a magazine I receive for paralyzed veterans that hit the primary areas they taught us to consider in one of my Shepherd classes. I think my best option will be to find some land then have the house built to my specifications. One thing folks out there reading may consider is their home they plan to grow old in. There are things you can do to make a house more accessible to prepare you for the geriatric stage of life or for parents to come and visit/live that go unnoticed to the untrained eye. I’ve scanned and attached a checklist that hits on most of the basics. One is choosing a site that is level and entrances into the house don’t require ramps to ingress/egress. A funny thing happened today as I was leaving the main complexes of buildings I periodically visit in the course of conducting daily business. As I approached my vehicle, I was blocked by a policeman writing me a parking ticket. I had to get a special magnetic swipe card from the administrative building to gain access to the reserved handicap parking spaces so I had to park in a diagonal fashion occupying two spaces. This is to prevent someone pulling up next to me and blocking my ramp access like is guaranteed at this place with the lack of available parking spaces. When I approached the vehicle in my wheelchair and hit the remote to deploy the ramp, the policeman started to catch on. I told him what I was there doing and the obvious motive for parking in the manner in which I did and that I could not access the designated handicap parking areas around the building and the few van accessible spots were filled with tiny cars in them. He told me he was there because somebody called in a complaint. He let me off with a verbal warning. I’ve also been asked how I can maintain my sense of humor and laugh at situations that don’t seem very humorous. Answer is I really don’t know. Sometimes I have to just laugh at myself for how the heck I let myself get into such precarious situations. One thing is that I am happy in life and don’t have much stress and have the best support network one could ever hope to have. The other is that others are in much worse shape than I and at least I’m not in some foreign land somewhere tied up and hanging from a tree branch or rafter by my thumbs… in the freezing rain… with bugs crawling on me… and some mangy mutt peeing on my legs. I just have so much to be thankful for and no reason or desire to be bitter about anything. Besides not being able to walk, I’ve had to endure far worse situations during my career in the Army. It’s also easy to be happy when you have the greatest woman in the world by your side who loves you for who you are and not for whom you were or what you’ve become. I’d rather have no legs and be blissfully happy then with legs and miserable…Phillip | ||||||||||
Wednesday Night, August 27th (Emerging Technologies) |
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| Written by Phillip Sherwood | ||||||||||
| Wednesday, 27 August 2008 | ||||||||||
| There is ongoing research at Case Western Reserve University and the Motion Studies Laboratory of the VA Medical Center in Cleveland Ohio involving Functional Electrical Stimulation (FES). They use permanently implantable electrodes and stimulators to electrically stimulate muscles to return functions ranging from bladder function to hand grasp to standing and walking, depending on the level of injury. FES research at Case and the Cleveland FES Center has been going on for something like 30 years, and the first implanted hand grasp system was 20 years ago, so it’s a pretty well established program, although it is still research and not a marketed product. For someone with my level of injury, I may be eligible for either a standing or walking system which involves somewhere between 8 and 16 implanted electrodes and a stimulator which is implanted in the abdomen. The stimulator gets power and commands from an external unit a little bigger than a GameBoy through a coil that is taped to the skin near the implant. I’ve contacted the center to see if I am a candidate and meet the eligibility requirements one of which is being at least one-year post injury. By the time my paperwork is done, I am sure the year will pass. Also they receive the majority of their funding through the VA and since I am already in the VA spinal cord injury system, I hope this gives me an edge. I’ve sent this info on to Shepherd to solicit their opinion as well. I also followed up on the FES Electro Stim bike from Restorative Therapies today and found out that I am the ONLY person to ever be approved for this bike by Federal Blue Cross Blue Shield. They said the doctor that sat on the case from Alabama really went to bat for me and argued my case feverously on my behalf. When the paperwork comes in, his name should appear on it so I can send him a thank you letter. The check for the 80% was returned undeliverable so they are reprocessing and resending to hopefully arrive next week. Once I get that, RTI will send TRICARE a request for payment for the remaining 20%. The cost of this piece of equipment is $14,950! FES Center website: http://fescenter.case.edu/site2/index.php there is also a video at http://fescenter.case.edu/site2/fes_center_video.php …Phillip | ||||||||||
Tuesday Night, August 26th (Rain Difficulties) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 26 August 2008 | ||||
| These past couple of days have been rainy and although we need it here in Alabama, it brings with it an added degree of difficulty in maneuvering and maintaining control of the wheelchair. The brakes don’t hold. I can’t grip the rims well to get a good push or steer straight. When going up the ramp to get into Christine, it’s a one shot deal. Go big or don’t go home. It also takes me quite a bit longer to don my rain gear and glove up. The last few nights I’ve been waking up from a dead sleep at 3 am and not able to get back to sleep. My spasms have worsened and hopefully this is just a short phase on the sine wave. On the upside, today at lunch Integrity Movers came to the house to move the safe. There three guys of different builds, a dolly and 4W dolly, and a 14’ Budget rental truck. They got that safe up and into the back of that truck in less than two minutes. On the other end at the storage facility, they had some difficulty getting it through the doorway because of the uneven step but they had it in the unit in no time. When I opened the door to the unit, I was amazed at how well everything was packed in there. Truly a military loadmaster’s dream. When I opened the smaller unit, I couldn’t help but smile, there wasn’t even enough room to pack a flea in there. On another hopeful note, my mother sent me an article about an Israeli paratrooper who’s been a paraplegic for twenty years and is testing an exoskeleton that enables him to standup from his wheelchair, walk, climb and descend stairs and provides a supplemental form of mobility. It should arrive to the US by 2010 and is something I am very interested in. Check it out. http://www.msnbc.msn.com/id/26391953/ …Phillip | ||||
Sunday Night, August 24th (Closing Ceremonies) |
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| Written by Phillip Sherwood | ||||
| Sunday, 24 August 2008 | ||||
| As tonight marks the ceremonial closing of the Olympics in China, so does it end another chapter in the homes I have lived in during my travels. This weekend we moved all but one item from my house into storage. That one item remaining is a 1,200 pound safe I bought while stationed in Bolivia after my house was robbed while I was away TDY. I’ve enclosed the picture of the original Bolivian movers from when I bought the safe in 1999 and the dream team of yesterday. Actually they were trying to collectively dream up a way how to move it when the dream quickly transformed into a nightmare. I never did get pictures of the four bubbas and their ’72 Datsun pick-up truck that got it to the house when I first moved in. It was truly an indelible event. Due to Ed mashing his hand and the potential for more damage, I called a mission abort. I now have to figure out how to get it into the storage unit by this Thursday morning. I have to thank everyone who came out on Saturday to help. Between the SNAGs, my co-workers, neighbor, and Melissa orchestrating the maneuvers, the move went great and I owe a debt of gratitude to all. We also emptied out my trailer and I was able to go through things I haven’t seen and some in their suspended state as I had since that day at the races on October 20th last fall. We started the Harley, Honda’s CBR1000F and CRF450, the generator and powered up the trailer lighting and air conditioning system. Ed and Scooter exercised the horses for me. Today was spent resting late then organizing odds n’ ends here around the apartment and what things were thrown into the trailer as we pulled out of the house yesterday afternoon. This has been an exhausting but very productive weekend …Phillip | ||||
Friday August 22nd (Moving) |
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| Written by Phillip Sherwood | ||||
| Friday, 22 August 2008 | ||||
| Tomorrow is moving day from the house I bought in Huntsville into a storage unit. The timing falls in line as if I were still in the military. No matter how many times you do it, the process never gets any easier. The house closes on the 29th and hopefully the house in Texas sells soon. I have to thank my friend Sara VanDusen who has really worked hard helping me to get it ready for sale and coordinating repair efforts. As soon as that house sells, I will begin looking for a new residence in SE Huntsville. I will most likely either do a new build or find a house already under construction. The biggest factors to consider are wider doors and hallways, pocket doors and a customized master bathroom. The other is kitchen accessibility. I have extended my lease on the apartment another six months so I’m in no hurry…Phillip | ||||
Wednesday Night, August 20th (10th Month Post-Accident) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 20 August 2008 | ||||
| Today marks the tenth month since the accident. I can’t really say if I am where I thought I’d be at this time in my recuperation because honestly I have no idea. I can say that at least my autonomic nervous system is much more stable in regulating bowel functions and body temperature. I still only sweat on about 1/5 of my skin surface and that has not increased. I go back for a follow-up in December for my blood clots to check the long term effectiveness of the Lovenox. I’d like to breach the topic of anger management in tonight’s post. I went to a local high school soccer game last night where a fight broke out amongst the players. The coach of the red team asserted himself to stop and segregate his players while the coach of the blue team sat on the sidelines and laughed about the situation as it worsened. I really wish I had the ability to walk over to him and jack him up for his extreme lack of moral courage. It’s just nearly impossible to intimidate anything more than a kitten anymore. I was that 90-pound weakling who got sand kicked in his face at the beach while going through high school. As the second smallest in my class (next to the flutist in the marching band), I was continually challenged so I started taking karate classes. After a couple of years of this and integration into the Army and about 50-pounds of muscle, I stepped up my skills to full contact and supplemented these higher level skills with the Special Forces hand-to-hand combat training I received while working with the Operational Detachment-Alpha teams I augmented as a medic. One day something inside me switched into an animalistic rage when going against two 220-pound thugs while testing (unknowingly) for my Black Belt. Our school was very unorthodox and our belts were earned under the blood belt system. Just because you earned a belt doesn’t mean you could keep it. After this fight, I realized looking into the bloodied faces of my opponents that I possess something inside me that if not controlled could easily get me into a lot of deep kimche. Since that day, I’ve never gotten into a fight and in fact went to great lengths to avoid them. Like a gun, if you pull it out, it better come out smoking and you don’t shoot to maim. My philosophy became that if I fought, the other guy would probably end up dead or seriously injured at best so I kept it in my head to make positively sure that it was absolutely necessary and only as a last resort. This all came back to me on the way home as I was driving. I haven’t lived with the sense of vulnerability since my 90-pound high school weakling days. The self-defense classes we had at Shepherd I think instilled more a sense of false security than emphasizing more on avoidance techniques. Everything is going well and I have been sleeping very soundly for the past two weeks…Phillip… P.S. There are no anger management issues I feel that need to resolved | ||||
Monday Night, August 18th (Raising the Bar) |
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| Written by Phillip Sherwood | ||||
| Monday, 18 August 2008 | ||||
| Tonight I am writing to you back from my home in Huntsville, Alabama. The trip to Maryland was great and I achieved some new milestones. I was able to validate the adaptations Mom made to her house while putting to practice many of the things I learned while at the Shepherd Center during my rehab. I became more proficient at assembling/disassembling and reconfiguring my toilet/bath chair. With Melissa’s “vision” we learned how to stabilize a seat extender so it would stop coming apart during the most critical part of the transfer to and from the chair. It was also great to see my family, friends and all those who supported me through my dilemma from the Washington D.C. area. It felt good to have the opportunity to say thank you to them. The flight back from BWI to Huntsville with the stopover at Memphis went without any problems. I made sure to leave the wheels attached to the chair for the gate check and also to take the seat cushion onto the plane to sit on. I was advised to do this since airlines are known to lose them. The only inconvenience was that on both flights the secondary aircraft auxiliary power units were supposedly inoperable negating the ability to run the cabin air conditioners. Although the cabin was very uncomfortably warm, I am sure Northwest Airlines was able to save enough money on fuel to not charge passengers extra for a second checked in bag. As soon as we arrived in Huntsville, Melissa had Christine pre-parked at the airport so we could make a beeline to SAM’s to buy moving box kits for today we started the arduous task of packing the house in preparation of moving it all into storage this coming Saturday morning. Some members of my family who haven’t seen me since I was at Shepherd were able to see how far I’ve progressed since then. All in all this trip gave me the confidence to become more flexible in my mobility options eliminating barriers that will also help me in the performance of my job…Phillip | ||||
Saturday, August 16th (Family Quiz Day) |
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| Written by Phillip Sherwood | ||||
| Saturday, 16 August 2008 | ||||
| As I write this, the family is all taking the quiz. It is very interesting to see their reactions. Here is the quiz posted.
UNCLE PHIL’s INJURY QUIZ
a) Plane c) Helicopter b) Ambulance d) None of the above
a) 5 c) 11 b) 8 d) 15
a) ____________________ / ____________________
b) ____________________ / ____________________
a) b) c)
a) Melanie b) Amanda c) Ginger d) Elise e) Drew f) Blaine g) None of the above, they were all mean
a) b)
a)
b)
BONUS QUESTION: Will Uncle Phil ever walk again? Explain your answer >
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Thursday Night, August 14th (V.I.P. Arrivals) |
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| Written by Phillip Sherwood | ||||
| Thursday, 14 August 2008 | ||||
| Wednesday night the family went to a Bolivian restaurant in Falls Church to meet up with my friend Bibi Mendoza from Bolivia who is here visiting her family. Everyone really liked their dinner and afterwards we went and picked up a batch of salteñas to nibble on for the rest of the week. Becky (Dan’s wife) baked a delicious peach cobbler that just melts in your mouth. Tomorrow, VIP #1 (Melissa) arrives by plane to BWI airport with a sushi kit to teach Becky the art of sushi passed to me by the Huff family. VIP #2 & 3 (Dad & Pat) will also arrive tomorrow with a fresh batch of crabs. When our family gets together, there is always a quiz that usually we all take that has a theme related to our location. Since we are at my mother’s house, the quizzes are selected more at random and derived from other than my mother. This Saturday I will give my quiz and the topic will be “Uncle Phil’s Injury”. My hint to the family is that all of the answers can be found somewhere on this website or they can ask me any question before they see the questions. I will post the questions here tomorrow and answers and maybe the individual scores after the test is taken and graded. I slept great again Wednesday night without spasms and maybe it can be attributed to by covering my legs with the blankets keeping them warm to hot. I saw a naturalist doctor who put me on a 1,000 IU Dietary supplement of D3 and high-potency liquid calcium to also help control the leg muscle spasms and prolong the onset of osteoporosis. This is only speculation or maybe a hypothesis. Also on Saturday, Mom has organized a reception for friends, family and well-wishers to say thanks for all the support given me during my hospitalization and recuperation. Picture 1 is coming down the ramp with my nephew Jake steering me. I can come down myself but not up without using cam-lock brakes. Picture 2 was taken right after spinning out and regaining control of the chair. I descended backwards to stage a shot of the ascent when I started picking up speed and nearly flipped over backwards trying to grip the wheels tighter in order to brake. I spun sideways and caught my breath… and composure J Picture #3 is the true test of grit. This is tougher than the blue carpeted tunnel at the Shepherd Center…Phillip | ||||
Wednesday, August 13th (Success & Failures) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 13 August 2008 | ||||
| It is better to try and fail then to never try at all and miss out on what you might have achieved. Going back to the early days in my aviation career, I knew a lot of good pilots that would not assess to be a “Nightstalker” because they were afraid they might fail. I’ve never lived that way since my boyhood. I’ve always accepted the Pepsi Challenge and even if I didn’t achieve success, I learned a lot along the way that made me stronger, smarter and more determined for the next challenge. These self-taught life’s’ lessons have become a part of my being and have not changed through my adversity one bit. I say all this because coming here to Maryland has been a series of challenges and obstacles that I’ve met head on that is giving me more confidence to travel abroad. Mom rented an accessible mini-van for me but the first one came w/o hand controls so we rejected it and sent it back. The replacement vehicle turned out to be the mother of Christine so I called the company to have them come and pick that one up too. It sure made me appreciate my vehicle infinitely. I’ve learned to setup and reconfigure my travel toilet/shower chair by myself and to accommodate my personal surroundings to maximize my efficiency in personal care. Now that my gastrointestinal system is more stable, bowel care is becoming much more predictable and manageable which really makes being away from home less stressful. The slope of the outside cobblestone pathway on the side of the house that I take to get from the main floor of the house to the basement where I am staying has about a 12% slope (8-9 degrees). Going down is a challenge because I have to maintain a good grip on the wheel ring of my chair to keep from building momentum because if I start going too fast, there is no stopping it on my own! I’ve learned to pop over little steep door ramps too. Coming back up the pathway is another challenge. The first few days, I’ve had someone assist me with a push up while I push the chair but yesterday I was able to come up on my own. It took every bit of strength I had but I made it. I don’t think this would have been possible before I started going to the gym. Dan says that on this pathway, failure is not an option and the penalty for failure is extreme. Hahaha Last night I was playing with my little 2 year old niece and was leaning way over in my wheelchair w/o my seatbelt or the brakes set when all of a sudden I felt myself go “thunk” and I was kneeling on the floor with my chair shooting out from under me and banging against the wall. Everyone was in the kitchen at the time taking a quiz my 16 year old niece Jessica conjured up titled “How Well Do You Know Your Family?” They all stopped and said if I was ok in which I replied with a yes while I commenced to playing with my little niece. It was about this time that I thought I’d take advantage of my being on the floor and do some stretching when my 3 year old nephew thought it’d be a hoot to practice some of his WWF moves on me. It was hard to yell for help because I was laughing so much. After I was rescued and Dan finished helping me stretch, my next challenge was how to get back into my chair w/o the availability of my paraladder. I employed the technique I was taught at Shepherd Center and almost got it but couldn’t get my hips up and over the edge of the seat so Dan grabbed me by the knees and gave me a little boost. My heart was racing and my forehead was laden with sweat by this time. I’ve been sleeping very soundly and last night for the first time I slept through the entire night w/o a single spasm!…Phillip | ||||
Saturday, August 9th (Road Trip) |
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| Written by Phillip Sherwood | ||||
| Saturday, 09 August 2008 | ||||
| My brother Daniel and his son came in to Huntsville Wednesday night to pick me up and help prepare me for the drive to Maryland. Melissa got all the stuff packed while Dan and Matthew packed it into the rental van. I rode shotgun and told Dan we’d go as far as my butt can take it then we’d pull off the road and get a hotel. The trip went really well and never a boring moment. If you know my brother Dan, he told stories non-stop for the first eight hours while 16 year old Matthew slept in the back. I reclined the seat all the way back and kicked my feet up onto the dash and was comfortable enough to cruise the rest of the way in. The total trip was 12-hours and went very well. Mom installed ramps throughout the house and fixed up the bedroom and bathroom downstairs to make everything as wheelchair friendly as possible. Dad drove up from North Carolina with his wife Pat carrying close to a bushel of blue crabs he caught from his dock that Daniel and I devoured in record time. I was dreading the drive since the longest one I’ve done to date was eight hours and it was pretty tough. On the way home, I will fly back which will be breaking new ground once again. All this will help build my confidence to begin some light travel for work. My brother Dan was instrumental in helping to care for me during the initial stages of my injury during NICU at Huntsville Hospital to the transition to Shepherd Center. He did a great job managing the wheelchair, travel kit, and all of my special needs and makes me proud that I can claim him as MY brother! He has mild emphysema but he’s never too short of wind to tell a story to anyone willing to listen J Melissa will be flying here on Friday to accompany me and help oversee the flight back to Huntsville. This week I plan on checking out Walter Reed, Bethesda Naval and John’s Hopkins where there’s a prominent school of Physiatrists. I’ve been sleeping well here and meeting with lots of folks who’ve been supporting me and tuned into my daily logs from the DC area. One nice bonus here is Mom has hardwood floors. Gotta go and begin my nocturnal routine. New horizons mean new problems to be solved…Phillip | ||||
Tuesday, August 5th (FIRE, FIRE !!!) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 05 August 2008 | ||||
| Yesterday it was super hot here in Alabama and when I thought Christine was going to fail me, it actually worked as advertised. Go figure. Last week if you remember at my work we practiced emergency stairwell evacuations with the new evac-chair. Yesterday I was in another building in a conference when we started to experience several short power outages tripping the AC system. At about 4:35 pm, the fire alarm went off and everyone started heading for the stairs. There was no emergency evac-chair in this building so I head to the elevator to descend the four flights of stairs but they were shut down so I was virtually trapped upstairs. The Deputy Program Manager stayed behind with me as we moved to an area that had access to an outdoor patio. He mentioned they use to have some ropes and I couldn’t help but imagine utilizing my air assault skills and rappelling down 50’ to the ground with wheelchair in tow. Luckily it was a false alarm and the building was eventually cleared and the elevators turned back on. Other good news is that I finally got a contract on my house in Alabama and closing is set for August 29th. Now I just need to sell the house I still have in Texas so I can start looking for a new wheelchair accessible home here and move out of the apartment. Curtis was seen by a Physiatrist from his church who is not taking any new patients but he talked him into taking me on too so it looks like October will be the first appointment opportunity available. Physiatrists (Rehabilitation physicians) are nerve, muscle, and bone experts who treat injuries or illnesses that affect how you move. Rehabilitation physicians have completed training in the medical specialty physical medicine and rehabilitation (PM&R). They are physicians who treat a wide range of problems from sore shoulders to spinal cord injuries. Their goal is to decrease pain and enhance performance without surgery. Looks like the right track to be on. Shepherd and John’s Hopkins specialize in Physiatry also…Phillip | ||||
Monday Morning, August 4th (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Monday, 04 August 2008 | ||||
| The weekend went well and I was able to relax a bit. Saturday morning started at 3 am to get ready for a road trip to Hurricane Mills, TN to watch DJ Brazelton race his 3rd and final moto at the Loretta Lynn Air Nautique National Amateur Motocross Championships and he did not disappoint. He ended up with a 13th overall out of 42. He made all of us proud for a first time showing. The temperature at the event was cool since his race was scheduled to begin at 8:30 am however the humidity was in the 90’s. I did pretty well however I haven’t sweat that bad since my night sweats back at Shepherd as an in-patient. By the time we got back home, I was beat and ended up vegetating on the couch the rest of the afternoon and early evening. Last night I slept well but had the weirdest dream that I was being chased by zombies. Can’t explain that one but I was running AND killing them all. The one thing I took away from it was that this was the first solid sleep I’ve gotten in quite some time that got me into the REM mode. I can only imagine the dreams I’d be having if I went back to watching Jerry Springer again J All is well and this looks to be a very busy week…Phillip | ||||
Friday, August 1st (Soñar con los angelitos) |
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| Written by Phillip Sherwood | ||||
| Friday, 01 August 2008 | ||||
| Finally last night I slept with the angels. I had no difficulties with my breathing or spasms and feel like a million dollars today. Other good news is that I was called by the realtor yesterday to tell me there is someone very interested in my house for sale here in Alabama and to expect an offer today. My fingers are crossed. Yesterday I got a professional massage by the massage therapist at the Huntsville Hospital Wellness Center Massage Therapist. I didn’t know what to expect since my last professional massage was given before my accident. It was a short one but she hit all the spots where the muscles in my shoulders and along the spinal cord that were all knotted up. The table was great in the fact that it lowered to the height of my wheelchair and transfer was a breeze. It was not very wide so turning was a bit tricky but she managed my legs well enough to prevent me from falling off. Next time I am going for twice the amount of time. Tomorrow Melissa and I are heading to Hurricane Mills to watch the third and final race of her son DJ Brazelton who qualified for the Motocross C class (450 cc) for his first time ever. He is doing well and I can imagine he will do even better next year. The Loretta Lynn Air Nautique championships is the epitome of amateur motocross where nationally ranked racers compete in this end of season race in hopes of catching the eyes of the factory teams and gaining the all coveted professional sponsorship and go on to race the national AMA pro circuit and million dollar contracts. DJ and I were both going to go for it and try to qualify this year before I got hurt but I’m proud he went forward and made it to the big game. I’ve added a few pictures from the gym where I work out. I start with about 45 minutes of leg stretches before going into my routine. The stretch table is awesome and just the right size. It also is the exact height of my wheelchair making transfers a breeze. The next machine I use to pump my legs. I do this for about 30 minutes because that’s about all my butt can stand before I need to do a pressure relieving weight shift. I have to keep my legs tied together with my “loops” to keep them from flopping out all over the place. The next pic is of the arm bike. This gives me the best aerobic workout and again I do this for about 30 minutes too. I come out of this with a good sweat going. All in all I spend about two hours at the gym. I need to get into my stander for about an hour now so more pix to come shortly…Phillip | ||||
Wednesday Night, July 30th (Sleep Disorder) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 30 July 2008 | ||||
| I’ve been having a tough time sleeping lately and only getting about 3-4 hours best a night and none of it deep REM. After a couple of hours, I am woken by my left leg jumping. I tried neutralizing this with some stretching but it doesn’t last so I upped my evening spasm med kicker. This didn’t really seem to make much difference so the PA told me to take a Tramadol (Ultram) at my 10 pm dose. This didn’t do much either so I decided to take my 6 am spasm med dose after my 3 am IC and this ended up developing into chemically induced sleep apnea although it did stop the spasms! I’m still trying different combos to see which one will find that sweet spot. A strange thing that hit me during the apnea is my chest & diaphragm muscles become so relaxed that I just stop breathing. I them wake up taking a deep breath as if I had my head held under water. It’s really freaky. I can see why the elderly or someone so weak after surgery dies or is put on a ventilator because you just stop inhaling and you get really light headed while laying flat on your back. If it’s not one thing it’s another problem looking to be solved. I never did solve the rubix cube but I think the degree of difficulty of the both is relatively comparative. Today at work, my supervisor coordinated training for emergency evacuation using a new chair made to slide down stairs with minimal assist in the case of an emergency building evacuation. He did a great job setting this all up and looking after my welfare while educating others I work with. How many out there can honestly say you have a boss or supervisor that really truly cares for the welfare of their people? Not only do I love my job but I work with great people! Christine report: all is well except for the door not opening for me after the car has been sitting at work in the sun all day and I’m ready to go home. This I think is a Honda anomaly that I will have looked at on Friday. Although my nights have been difficult, my days have been great. Go figure…Phillip | ||||
Sunday Night, July 28th (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Monday, 28 July 2008 | ||||
| After leaving the VA on Thursday, we stopped by R&R Mobility in Conyers, GA where I bought Christine to have them look at the problems I continue to have. VMI from Phoenix who does the mod developed a new circuit card for the computer to fix these know ailments but have not distributed them to the field yet, however they are delivering new vehicles with these cards already installed. The service manager authorized the cannibalization of a new van computer to fix mine. To date I haven’t had any more problems. Knock on wood! The past several nights I have been sleeping relatively well however at 3:30 am I still begin the spasm dance. By about 5:30 am the legs begin to get as stiff as iron pipes. Recall a 1½ months before my accident I had knee surgery on my right knee. When my right leg spasms still, my right knee has been popping. The other night it actually made a crunch and shortly afterward felt really warm. I thought maybe I ruptured something or had water on the knee or something but there was no outward evidence of damage. Osteoporosis is a condition that will eventually catch up to me and my bones will become more prone to fracture easily. I don’t know how soon it will become a factor but I will certainly have to aggressively fight the spasms before they start breaking my legs apart on the inside so it looks like the Baclofen pump is inevitable. My weekend was very nice and Melissa and I went to dinner with Curtis and Melisa Saturday night to Bonefish Grill. Curtis is still having pain management issues but has returned to work full-time and otherwise seems to be doing well in his continued recovery. On Sunday, Melissa and I steamed crabs and they turned out really good but then again, anything dipped in butter and sprinkled with Old Bay seasoning is a delicacy to the palate. My IC’s seem to have stabilized and are more predictable now that my legs returned to a more normal state of appearance. I’ve even begun drinking Colombian coffee in the mornings once again. Gotta run…Phillip | ||||
Friday Night, July 25th (Visit to the VA) |
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| Written by Phillip Sherwood | ||||
| Friday, 25 July 2008 | ||||
| I just got back last night from my 6-month since discharge follow-up medical appointment at the VA Hospital in Augusta, GA. The drive there was really bad because we had to drive through four major storm cells and it took us about eight hours to get there. My butt was hurting something fierce by the time we arrived. The Comfort Inn hotel we stayed at was across the street from the hospital and the room was not only wheelchair accessible but it was wheelchair friendly. The bed was really nice and had a pressure relief mattress. I had to fast for my ultrasound in the morning. At about 3:30 am, my leg began to spasm uncontrollably for the third night in a row that only could be neutralized by a stretch session. This is getting real old! The morning started with an appointment with the imagery clinic to get a sonogram of my liver, spleen and gall bladder. All were good. Next I went to the SCI outpatient section to process in where they took my blood pressure 121/72 and temp 98.2 degrees. These are great for me and the temp shows some resemblance of normalcy in my autonomic control of the body temperature. My night sweats and chills have pretty much gone away now thank goodness. Melissa and I met with the PA and began a rundown of my ailments I’m now under treatment for since my last visit three months ago. Next was a review of my medicines and prescriptions. All good here and minor adjustments are made. I explained about the nocturnal spasm attacks and since I am already at the max med amount now, she recommended I return to taking the Tramadol muscle relaxer at night before going to bed and possibly putting me on a low dose of valium to supplement my night meds. The only other option next would be too surgically implant the baclofen pump that sticks out of my side like a hockey puck. I’m not quite down with that yet. I also reported about my three right hand fingers going numb and the tennis elbow I now have. The numbness could be carpal-tunnel or an irritated nerve in the neck and/or shoulder. She scheduled me an EMG test to be taken sometime within the next couple of weeks to be done here locally. Next I told her of the heightened sensory reception I have in my butt where she responded with, “does it feel like it’s on fire?” I said oh yes! There is a medicine she could prescribe to help deaden that but I requested possibly a different seat cushion that offers more comfort before resorting to a chemical solution. Next I went to the wheelchair clinic to get some maintenance done while I met with physical therapy. They adjusted my “bat wings” carbon fiber pant protectors, cleaned the cat hair out of my casters, and adjusted the brakes. Carl the wheelchair maintenance guru told me the brakes with the grade A cams that Curtis and Melisa gave me were not made for my brand of chair that I will keep having problems with the screws backing out. While at PT, we ordered a new set of brakes made for the TiLite chair, ordered a new “sensitive” seat cushion and silicon leg rail protectors, and last but not least… a new backup wheelchair. When I asked about a beach wheelchair, they recommended to just rent one from a beach equipment rental company. I never thought about that. Great idea so I ordered the same chair I have now but one that folds up to facilitate travel and with high pressure rubber tires. I then was visited by a specialist to take leg measurements for a more restrictive type of compression stockings that doesn’t bind behind the knees. These are a grade 20/30 that are more difficult to put on than the lighter grade 10 ted hoses. Next stop was prosthetics where they issued me a replacement transfer board because the tips of the one I got from Shepherd are all chewed up now. This was all for the day and we left to look for a place to get dinner. We found a neat little Mexican restaurant down Grant Street called Nacho Mommas that was really good. The next morning we went back to file the travel claim for mileage and tie up some loose ends. When we arrived, there was a recent amputee laying face down on a gurney with big wheels who was wheeling himself to what looked like the smoking area. While I was an inpatient here, I saw folks barely hanging on to life expend nearly all their remaining energy to get to the designated smoking area outside. While I was offloading out of Christine, I noticed the amputee on the gurney coming back and heading down the other way down the sidewalk. I was wondering to myself what he was doing. I figured it out as I saw him turn around and head back in the original direction. He was working out! It totally blew me away. The best part of the trip was when the PA told me I don’t have to process in next time for my annual for a colonostemy. I don’t have to do that for five more years J Next post will pickup with the departure from the VA and stopover at R&R Mobility of Conyers, GA where I bought Christine to perform a séance…Phillip | ||||
Monday Night, July 21st (Good Weekend) |
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| Written by Phillip Sherwood | ||||
| Monday, 21 July 2008 | ||||
| Thursday, Friday and Saturday nights were good sleep nights. I felt much better after some decent rest. This past weekend was a very nice one. I had a visit from a long time Night Stalker friend Steve Lapping and his son. I hadn’t seen Steve or his family since leaving Panama. We had a real nice lunch together at PF Changs and luckily Christine behaved. The first photo is a scuba diving trip we took on my boat when in Panama in 1998 and the other is of yesterday. Thanks for coming Steve. It was great seeing you again. Today was a 100 degree day and as I was leaving work this afternoon, Christine decided not to let me in again. Luckily my supervisor Steve Low wandered by and helped me to open the door and crank 94 times to get the ramp down…Phillip | ||||
Thursday Night, July 17th (No Rest for the Weary) |
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| Written by Phillip Sherwood | |||||
| Thursday, 17 July 2008 | |||||
| These past several nights I have been waking up to strong left leg spasms around 3:30 am and they haven’t been allowing me to fall back asleep. I am hanging on until the weekend so I can slip into a self-induced coma to catch back up on my rest. Fatigue brings on higher levels of pain and I’m really feeling it tonight. The other day I was rounding a corner in a hallway by sliding my hand along the wall to maintain my forward momentum and slipped causing me to take out a water fountain. I don’t have any plans for this weekend except to get ready for the upcoming trip to the VA Hospital in Augusta, GA. The cam lock brakes Curtis & Melisa got me for my wheelchair work great for going up steep grades. They lock the wheels in place allowing me to let go momentarily to regrip. I am starting to see double so I need to hit the sack…Phillip | |||||
Tuesday Night, July 15th (More Doctors) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 15 July 2008 | ||||
| Yesterday and today I had follow-up doctor’s appointments concerning my legs. Yesterday was with the vascular surgeon and he did an intense Doppler sonogram of both legs and although the swelling has gone way down, the clot in the left leg was worse than he probably expected and was not a candidate for a stint. I was not able to transfer to the examining table because it was so tall so we had to improvise but it worked. Today was my appointment with the hematologist after a quick stick at the lab to draw blood. My blood results looked good and my anemia is much better. After both doctors conferred with one another, it was suggested that I remain on the Lovenox injectables for another five months and come back for a reevaluation. Neither was ready to discuss with me at this time alternative options should my deep vein clots not improve. I’m not too sure how to interpret this yet at this time. My right shoulder (rotator cuff) is killing me today so I just stretched real good tonight and laid off the weights. I found an interesting all terrain & beach wheelchair with big giant fat tires on the internet that looks like it may work. I am going to pass this to the VA to see if they will accept this as my alternate wheelchair. It also has an optional umbrella clamp! Gotta get some rest for tomorrow. Gonna be a long day…Phillip | ||||
Sunday Night, July 13th (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Sunday, 13 July 2008 | ||||
| This past week was one of rest, relaxation, and returning to where I enjoy the most… besides a motocross track. I decided to take off and get away from everything for a bit and went to Gulf Shores/Orange Beach. I always enjoy the sounds of the surf pounding on the sand and feel of cool ocean breezes smelling of sea salts reminding me of one of the best times of my life living in Panama, Central America. By this time next year when my family goes on its bi-yearly joint vacation, I will have a better idea of what I can and cannot do. I need to devise a way to be able to get out across the sand in my wheelchair to the surf and feel the ocean run through my toes. To get into the water, I can wear a water ski flotation belt or crawl into a tire tube. Unfortunately my Buda belly doesn’t work very well as a flotation device. Overall the trip was great; drive was long, ate my fill of oysters, didn’t get sunburned and recharged my batteries. We spent a nice afternoon today with Curtis and Melisa over at Bridgestreet Plaza. Curtis and I fine tuned our brakes and compared wellness notes while the ladies tended to the crumb snatchers. This week I have several visits to doctors lined up. One is the hematologist and the other is the vascular surgeon. The work calendar is also pretty full for the week as well. I look at my cat Bob to see how he paces himself since he seems to have it pretty well figured out. Maybe he’ll share some of his catnip with me. Health wise I am feeling less bothered by events and situations I find myself in and pain levels are down. Spasms are up due to less focus on stretching. I had one spasm the other night so strong that it cracked the vertebrae throughout my spine as if I were on a chiropractic table. My IC outputs vary widely as the fluid retention in my lower extremities and nocturnal draining makes it difficult to adequately manage. This I am sure is a result from the twice daily Lovenox injectable blood thinners I am on now. I also find that it takes approximately 5-6 hours to process whatever fluid I drink and I am virtually dehydrating during the day as my legs basically “refill”. It’s late and I need to get some rest. I appreciate all the continued support I receive everyday…Phillip | ||||
Monday Night, July 7th (Good, Bad & the Ugly) |
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| Written by Phillip Sherwood | ||||
| Monday, 07 July 2008 | ||||
| “Nothing is ever as it appears…” This was running through my mind as I listened to the vascular surgeon describe the condition I am eternally faced with now. For those of you who maybe have not been following along, I have a common condition accompanied with paralysis called Deep Vein Thrombosis (DVT). These are blood clots in the deep femoral veins throughout the entire leg and both of my legs are affected. I was first diagnosed with bilateral DVT’s during the beginning stage of my recuperation while at Shepherd Center in Atlanta after noticing my legs were beginning to swell. A Doppler ultrasound confirmed the onset of DVT’s and I was immediately put on an anti-coagulant therapy of Coumadin. I called this rat poison. The irony of this my Latino friends pointed out was how can they give rat poison to the “Flying Cat” (aka El Gato Volador) my racing nickname given me when I lived in Bolivia. Since the initial diagnosis, the swelling in my extremities never went away and were always worse at night evident by removing my socks revealing legs and feet that resembled link sausage. After six months, I was scripted to do a follow-up ultrasound and reevaluation which I did in April. If the clots dissipated, I could come off the Coumadin but if they didn’t, I would have to remain on the “rat-poison” indefinitely. The exam in May revealed not only did I still have clots, they were worse! My left leg femoral vein was completely blocked while the right was partially blocked. The Coumadin was virtually ineffective; a dilemma that occurs in less than 5% of patients. I was really concerned now because my superficial veins were having to carry the load and if they too should became blocked, I would run the risk of gangrene and amputation. My local VA doctor referred me to a hematologist since I am now outside his area of expertise. During my appointment, the hematologist took me off the oral Coumadin and changed me to an injectable called lovenox that I inject into my belly twice daily. That reminds me, it’s time to do my evening injection. One moment please… I’m back. It doesn’t hurt or take very long J Returning to the subject. After a few weeks, I began to notice the nightly swelling subside and my ankles returning to public viewing. This looked to be positive but there’s more going on below the surface. What I did not know is that the anti-coagulants will not reduce an already developed clot but are supposed to inhibit clots from forming or worsening. When asked why the doctor’s didn’t do this in the beginning if they knew this was a common paralytic condition, the doctor responded that it’s a catch-22 call where the lesser of two evils is chosen. If given the anti-coagulant in the beginning, required initial corrective surgeries would be extremely risky so a sub-vena cava filter is installed to prevent clots from reaching the heart and being pumped into the lungs and eventually the brain. After examination today, the doctor is convinced my filter has become occluded and that the valves in my veins are permanently damaged. Furthermore, a common complication is the vein begins to narrow the diameter around the filter making blood flow output from the extremities even more difficult. I am scheduled a follow-up ultrasound for next week. Next to follow is a venous flow test where a dye is injected in my groin to check the pathway and returning blood flow to see if I’m a candidate for a venous blood stint. An additional long term complication is the likelihood of non-healing ulcerations on the insides of my shins because of blood flow restrictions so it’s a race against time. Other surgeries to replace veins are an extreme high risk. I’m ok with low to moderate but anything more is non-negotiable in my book. This is the gist of my appointment today. Next week I have more appointments with the hematologist and the vascular surgeon. It seems like if it’s not one thing it’s another but I learned long ago if you just roll with the punches, it won’t hurt as bad. Next tidbit is the continued curse of the unevenly broken chopstick. Last time if you recall, my unevenly broken chopstick (like a chicken wishbone) resulted in a tip over in the restaurant parking lot. Today it wasn’t so bad. We went to dinner with my dear friends the Huff’s where sushi is always on the menu. When I split my wooden chopsticks, it was grossly uneven causing me to be on guard. When I needed to go to the bathroom, the door was too small to enter. This was the first inaccessible public place I have experienced so far. I ended up going out to the van and doing a sterile IC. Last night I woke up at 4 am to a left leg spasm that felt like a bear tugging on a drumstick that lasted for the next two hours so I’m beat and going to call it an early night…Phillip | ||||
Friday, July 4th (Independence Day) |
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| Written by Phillip Sherwood | ||||
| Friday, 04 July 2008 | ||||
| This day holds a duel meaning for me. Obviously the first is our nation becoming independent from England but the other is my own personal independence; both being a struggle for one’s own personal freedom. We take a lot for granted for the sacrifices made by Americans in the past who’ve given us the quality of life we all enjoy today. Likewise as a paraplegic, I am reaping the benefits of personal independence from others before me who didn’t have the luxuries I enjoy today but paved the way so that my life can be made better by them. Today is a great day…Phillip | ||||
Thursday, July 3rd (Rigor Mortis) |
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| Written by Phillip Sherwood | ||||
| Thursday, 03 July 2008 | ||||
| I’ve been gradually increasing the intensity and duration of my workouts being careful not to overdo it and it seems to be having a positive effect all around. I begin my routine with about 45 minutes of stretching. It’s really difficult at first because the initial manipulation of my legs provoke very hard spasms. When the spasms subside, the initial stretch feels like trying to work out rigor mortis. My flexibility has really improved but the legs are incredibly stiff in the beginning. For my 30 minute aerobic routine last night, I did laps around the little indoor running track while alternating every other lap by going backwards. I only ran over two people and one stationary machine J Going backwards was a killer and I could really feel my heart rate increase. One light-heartening moment was when I was coming around the bend where the water fountain is, a little sweet old lady was there with her arm reaching out towards me with a half a cup of water as if I were in a triathlon or endurance event. The next lap she handed me another and said, “here’s the other half of that cup of water” and put her hand on my shoulder and told me congratulations. Truly a priceless and uplifting moment. These past twelve hours have been met with unusually high IC outputs. Last night my “smurfs” I wear on my feet fell off because the Velcro is at the end of its lifecycle. I decided to double my body pillow and prop my feet up which resulted in some serious drainage. Today is my day off of work so I took a mid-morning nap and propped my feet up again and voila, another high drainage output. On another subject, I saw on the news about the American hostages that were freed yesterday from Colombia in a remarkably successful rescue orchestrated by the Colombian Military Intelligence agency. This is the same group that gave me the pseudo-name and credentials of “Felipe Gomez” to race under. One of the hostages, Thomas Howe, worked as our fixed-wing standardization pilot when I worked as an advisor to the U.S. Department of State in Bolivia, South America. He was just recently captured when I reported for duty in Colombia. He’s a good man and I wish him the best as he resumes his life. This afternoon I have an appointment with a local mobility specialist to have a different brake system installed with a camber-locking system that prevents rollback when engaged. This is coming to me as a gift from Curtis & Melisa…Phillip | ||||
Sunday Night, June 29th (Weekend Update) |
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| Written by Phillip Sherwood | |||||
| Monday, 30 June 2008 | |||||
| The past several days have been restful and rejuvenating. I was at the gym Friday getting a great workout in when I decided to transfer to the upright bench press machine. I was having a difficult time trying to maneuver my wheelchair into position to facilitate a transfer but the machine next to me was really close and getting in my way. I was thinking to myself that yesterday when I did this with the instructor it wasn’t difficult at all. This sweet little old lady walked up to me and asked me if I needed a hand but I said no thanks that I’ve just about got it licked. She told me that she had recently lost her husband who was bound to a wheelchair for the past nine years. Finally after transferring, I went to unlock the brakes to my chair and move it away when again that dang machine next to me was getting in my way. I took a good look at what that machine was causing me so much difficulty when I suddenly realized… that was the machine I was supposed to be using that I transferred to the other day. Whoops?! On Saturday we all went to watch the Blue Angels air show at the Huntsville Airport and it was a great show. I watched it from inside the air conditioned confines of my beloved Honda “Christine” Odyssey while listening to NASCAR. I found that by taking Tramadol to help relieve my back pain has a side effect not worth the price. Although it takes the bite away from the immediate discomfort, it also “numbs” the bladder and I can’t tell when it gets full thus making it harder to judge my self-catheterization (IC) intervals if/when needed prior to the timed event. There is a very nice article in today’s Huntsville Times newspaper about the courtship and wedding of Curtis and Melisa last weekend. | |||||
| I’ve still had no luck in selling either of my two houses so I’ve decided to renew my apartment lease another six months. I have faith that something will happen soon…Phillip | |||||
Wednesday Night, June 25th |
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| Written by Phillip Sherwood | ||||
| Thursday, 26 June 2008 | ||||
| Yesterday afternoon I went to the gym (HHWC) and got a great stretch and worked out on the hand ergo-cycle for 27 minutes. Afterwards I went to Curtis & Melisa’s for dinner and they are doing great. I’m not sure but I suspect that I may be getting a kidney stone on my left side. I’ve had one once before in 1990 but never again since. It’s a little different now because I can only feel the top part of the renal track. IC times have come down from 45 to 10 minutes as has my anxiety and frustration level. Christine acted up again with the ramp yesterday but today it was fine. It’s like a computer virus that’s embedded itself into the BIOS. You have to kill the host to clear the virus. The weather here is getting hotter by the day so my outdoor activities during the day are becoming very limited. I still prefer to be in the south because I couldn’t imagine having to push a wheelchair with snow tires or chains on it. I was paid a visit by the DPW folks at work to assess my ability to seek an area of “refuge” in case there were an emergency at work. It looks like I will need to head to a nearby stairwell. My work purchased an emergency evacuation chair I can transfer to that has a sled type bottom to allow for an easy descent down. My leg girth measured on Monday was within ¼ of an inch of each other and they look to be quite a bit more reduced below the knees. I’ve stopped wearing the ted hose stockings and am back to regular socks. It seems that my spasms have not been as bad lately either. I had my part 2 of the Wellness checkup tonight and the trainer found more equipment I can transfer to and especially one for the legs that pumps them like a bicycle as I move the hand controls. I’m excited about this machine. We also looked at some additional exercises to help strengthen the rotator cuffs. Gotta run…Phillip | ||||
Tuesday, June 24th |
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| Written by Phillip Sherwood | ||||
| Tuesday, 24 June 2008 | ||||
| Yesterday I went to the urologist to get checked out and the good news is that all is fine with the system. The reason for my difficulties is apparently the outer sphincter is beginning to spasm and closing shut. This may be in part because the spinal cord continues to slowly come out of shock as I noticed with the onset of more upper abdominal muscle control and better upper torso balance. My legs are beginning to drain down a bit more and I am becoming reacquainted with my ankles on a more frequent basis now. I went in for my wellness checkup and goal setting yesterday afternoon and all went relatively well. I was shown some new pieces of exercise equipment I can safely transfer on and off of to add to my repertoire of work out tools. Cholesterol was a little on the high side but should be easily manageable with a consistent diet and exercise routine. Tonight I am having dinner with the newlyweds Curtis & Melisa…Phillip | ||||
Sunday Night, June 22nd (Weekend Update) |
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| Written by Phillip Sherwood | ||||
| Monday, 23 June 2008 | ||||
| On Friday I took Christine in to have the demon exorcised once and for all after going in for some more blood work to be drawn. After dropping it off at the van repair facility in Huntsville, Curtis came to pick me up in his new van. His ramp is different than mine and his van doesn’t squat. I can’t get into his without a turbo push from behind because the ramp angle is too steep for me. He gets up there by using his long orangutan reach. It was difficult to say the least in fitting the both of us in his van. There wasn’t quite enough space for both chairs so I had to partially disassemble his to make enough room for mine and to be able to transfer onto his rear bench seat. It took some imagination but we got the job done. Later that night, we went to the rehearsal dinner at Rosies Cantina – South for Curtis and Melisa. It was very nice. The news was threatening rain for Saturday’s wedding but luckily it held off and the wedding and reception was awesome. I met a guy who has on video tape of my crash but never revealed it until now because he thought it may freak me out. He said he has me going off the jump and the next thing there is a big ball of dust. I told him I’d like to get a copy of it so I will post it when I get a copy of it. I spent the rest of the weekend resting pretty much with my feet elevated. I was really tired and slept most of it. Monday is my appointment with the Urologist to find out what is going on with why my catheters are almost no longer able to pass through. The mornings are getting tougher as they are filled with more pain above the spinal transition line mostly in my upper back and shoulders. I’m also having a tough time getting back to sleep again after my 3 AM self-catheterization making me sleepy the rest of the day. So far the Honda Odyssey (aka Christine) has not acted up. It goes back into the shop when the new computer arrives in August…Phillip | ||||
Wednesday, June 18th |
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| Written by Phillip Sherwood | ||||
| Thursday, 19 June 2008 | ||||
| My appointment on Tuesday afternoon was to draw blood… a bunch of it. I go back to see the hematologist on July 15th to discuss the results of this and the Doppler ultrasound results. Last night, Melissa worked out the “lumps” in my upper back and gave me a good stretch and this morning I didn’t wake up in excruciating pain like I normally do. Usually every part of my body where I have sensation still hurts, even my hair, making it a major challenge to get out of bed. Often I just lay there putting off the inevitable until I muster up the strength to dig down deep and grit my teeth like a quarterback getting sacked by the entire Raider’s defensive front line. I didn’t have any wakening spasms last night either and today the legs have been cooperative. I forgot to add the other day that I was talking to my Dad on the Bluetooth while transferring from the driver’s seat to the wheelchair when I realized I left the keys in the ignition. To avoid another transfer back, I reached way over forward to get them like I’ve done several times in the past but this time I slid forward out of the chair and onto the floor between the driver’s and shotgun seat. Dad was asking me what was going on and I gave him a play-by-play account of what was going on. With some moderate effort, I did a modified “weight shift” using the seats to push upward on like a set of parallel bars and got back into the driver’s seat easy enough. So between that, extending the ramp out manually with 94 turns of the winch, and the push across the parking lot in 94 degree weather, I looked as if I just finished an Olympic marathon. Supposedly I should be getting the van demon(s) exercised tomorrow or Friday. I also got a call from my past from some very long lost friends from back in my early Army days I had first met in 1985 who tracked me down via my Mom. This just made my day…Phillip | ||||
Monday June 16th |
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| Written by Phillip Sherwood | ||||
| Monday, 16 June 2008 | ||||
| Everything is going relatively well despite the return of Christine once again. I have an SOS out to the dealer to get the ramp looked at. When I press the remote button unlock twice then press the button to open the back, door opens, Slight hesitation (No Ramp Extension), Vehicle Kneels, Loud grinding, heard, Vehicle Unkneels automatically, Vehicle sits up, no ramp, door open. I then have to manually lower the ramp and get in or out of the vehicle. I then press the remote button unlock twice then press the button to close the back and the ramp retracts automatically and door closes. Found out that I need to get new optical and kneeling sensors. The Lovenox blood thinners seem to be having an effect. I’m beginning to become reacquainted with my ankles once again. For now, there is no more need to have my INR checked while using this new treatment. I have a doctor’s appointment tomorrow for more blood work. The legs have gone back to being difficult to work with again because of their stiffness and spasms. Although I am still stretching them vigorously daily, the left leg is particularly not a team player. I got a good stretch at the gym after work tonight and also built up to 25 minutes on the hand pedal bike. The IC’s are once again getting more difficult to complete. I will need to search out a local SCI doctor and begin getting some of these things looked at sooner rather than waiting for my biannual VA appointments. Last night about 4:30 am, my legs started to spasm enough to wake me up. When I put my hand on my mid-thigh the skin felt cold so I pulled a blanket over to warm them and the spasms went away. I guess this was a way they were trying to tell me something. It’s like now when I have a headache, I need to find out what is going on with my body that it’s trying to tell me something so it can’t be ignored or take a Tylenol to make it go away…Phillip | ||||
Wednesday Night, June 11th (Doctor, doctor) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 11 June 2008 | ||||
| My appointment on Tuesday afternoon went as I expected it would with the hematologist. He agreed with the assumption that the Coumadin was not working and changed me to lovenox injectable twice daily. This stuff leaves a nasty bruise and I have to be on this for the next three months. He is consulting with a radiologist to go over all of the Doppler sonograms and has also referred me to a vascular specialist. One thing he told me is that even if the clot in the deep femoral vein is cleared out, there’s a high probability that the mineral deposits have damaged the valves rendering the vein ineffective but we’ll see once the analysis is complete. I have now stopped taking the Coumadin, prilosec and naproxen. For my shoulder pain and onset of tennis elbow on my right side, I am trying an analgesic balm called ketoprophen supplemented with tiger balm. On the way to a meeting today, I got into the Odyssey and went to close it up and transfer when the ramp and door wouldn’t work. I tried the sequential steps like I was taught but nothing. Christine was back! To get to my meeting, I had to manually crank the ramp up and drive on with the door open and back end squatted. While driving, it reminded me of my old Airborne days when the door of the C-130 opened prior to being given the command to jump. I was burning up by now because the AC was out too. I went to the meeting leaving the door open and ramp out. Afterwards, I returned to Christine and thought about provoking a spasm so I could give it a stern kick in its arse. I tried a couple of computer resets and low and behold, the demon was exercised Yippie kayey. I head off to the dealership to get it looked at but found out they were already closed. I called a Honda dealer in Florence, AL and they had no idea why the door lock function failed. Anyhoo, I went to the gym for a good workout. After my ½ of stretching, terrible 3’s and 15 minutes on the hand bike, I was done. I went to the van to open it up and all worked as advertised so I got a running start to the ramp to use the momentum to propel me inside. This technique works well if the vehicle is not parked on a fore or aft slope. As I built up speed, I popped a little front wheelie to get over the gap between the ramp edge and pavement but this time I mistimed it by a fraction of a second and the front wheelchair casters hit right at the ramp-pavement gap and it stopped the forward momentum of the chair dead however my body still lurched forward. I flying forward and landed on the palms of my hands and luckily my seat belt still held me into the chair. I did a power push-up and was able to right myself easily enough. I looked around and again luck was on my side because nobody saw my little extreme adventure so really it doesn’t count as a wheelchair dump since there were no witnesses. I decided to call it a day and head to the house. As I was driving, I reflected on the time at the VA when I asked the marine with the funny grin about his experience(s) of falling to the ground from his chair and his response’ “Don’t worry, you’ll figure it out” My life is all about the poem finale I’ve held onto for so long over the years from Gaining Through Losing. “I asked for all things, that I might enjoy all things, I got nothing that I asked for, but everything I had hoped for, Almost despite myself, my unspoken prayers were answered, I am, among all, most richly blessed!”…Phillip | ||||
Monday Night, June 9th (Whoops I did It Again) |
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| Written by Phillip Sherwood | ||||
| Monday, 09 June 2008 | ||||
| On Saturday, Melissa and I were running some errands when I felt a strong urge to pee only two hours after my last IC. I was thinking this can’t be. I thought I’d just go into the restaurant bathroom when we got there but it was closed when we arrived so I decided to pull off the road and jump in the back of the Odyssey and knock it out real quick. While doing this, Melissa asked me if I wish I could just go without having to use a catheter in which I first thought “of course” but then I quickly realized, “but I’d have to stand up to do it” so I just as well just do an IC. Then I wondered to myself if it would be painful inserting the 14g or 16g tube if I were ambulatory with normal sensation. Buy the time all this thinking was done, I’d accumulated 700 cc! This never happened to me before and certainly warrants a topic of conversation with the SCI doc on my six month follow-up next month. Later that afternoon, we went over to visit Curtis and Melisa at Curtis’s house and they were doing well. We compared notes on things we’ve learned then ate a wonderful dinner provided by members of their church. Sunday was spent going through the race trailer looking to see what was being stored in there from the house and garage and throwing a lot of stuff out. We spent the rest of the day watching NASCAR and relaxing. I haven’t felt the need to sleep until noon on the weekends lately and have been getting up at 8 am. This morning I went to my appointment at the Clearwater Cancer Institute to see the hematologist about my clotting issues and while I was sitting in the lobby filling out the pages and pages of info, they wheeled a guy out on a stretcher in front of me with a guy on top of him doing CPR chest compressions as they loaded him into an ambulance. Immediately this place began to creep me out. I went to the lab next to donate my blood to Dracula and returned to the waiting area. Figuring it would be a long wait based on all the people in front of me, I decided to transfer to a comfy looking couch and answer some work emails on my Blackberry. No sooner did I enter the password an attendant called my name. While they were taking my vitals, the nursing assistant came in to inform me the doctor just left on an emergency and that I’d need to reschedule my appointment. I saw a wheelchair accessible scale and decided to weigh myself since I haven’t been able to do that since February. Like my blood pressure, so too was elevated my weight. The diet started immediately. I was able to reschedule my appointment for tomorrow afternoon. Melissa and I decided to get some sushi for lunch before I needed to head out for my meeting at work. After lunch, I proceeded to push myself up the ramp but the van was parked on a negative slope and the ramp angle was too steep so I backed down however my wheelie bars caught the rough pavement creating a pivot point and rolling moment causing a helicopter-like dynamic rollover backwards onto the pavement! Dang, I did it again! Luckily my Shepherd training kicked in again and I didn’t hit my head nor did my legs come down crashing into my face. We were both very calm and began the sequential steps to right myself however the wheels were sliding on the ramp making it impossible for one person to right the chair with me in it although she came close. She went into the restaurant to get some help and the folks started freaking out. Probably thought they were going to get sued or something. They got me up and back into the van and all was good. The irony of the situation was as we were waiting for lunch to be served, I split apart my wooden chopsticks and they didn’t part evenly so I picked up another set because I said it was bad luck. The next set did the same thing so I just went on and used them but little did I know…Phillip | ||||
Thursday Night, June 5th (A Little Worried) |
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| Written by Phillip Sherwood | ||||
| Thursday, 05 June 2008 | ||||
| I was called today by the imagery center of Huntsville Hospital to come in and pick up my sonogram analysis report. The radiologist did the comparison between the blood clots found in my legs in November at Shepherd and the Doppler Ultrasound follow-up done on April 25th. The news was not good but confirmed what I expected. The blood clots in my legs are in fact getting worse instead of better and the Coumadin treatment is not having a positive effect. In November the clotting in the left leg was pronounced but at least some blood was getting through but now the deep femoral vein is completely blocked causing the superficial veins to have to pick up the load. The danger here is that if these veins also clot, I run the risk of gangrene and amputation. My next step is to get a referral to a vascular surgeon or a hematologist to see what can be done. This really sucks. On the brighter side, I got a really good workout at the gym this afternoon and found more accessible equipment I can use. One of the staff workers even helped me with some of the stretches I can’t do by myself. I am also finding out quickly with the temperatures we are having here in Alabama that I am not able to tolerate the heat very well due to my inability to effectively perspire and keep my body cool. Only approximately 15-20% of my body can perspire to compensate for higher ambient temperatures therefore my body core temp begins to rise as if I have the flu causing me to have to seek a cool climate quickly. Things with my health are beginning to get complicated and I need to be really careful about situations I may get myself into by disregarding the signals my body tries to send me. I found out the VA hospital in Birmingham has a spinal cord unit on the eighth floor and there is always the Neurological ICU at Huntsville Hospital in case things get bad real quick. One of our classes at Shepherd taught us about the effects of alcohol while taking certain medications but the bigger message is how it may impair your judgment on the basics of self care like ICs, weight shifts, etc. That’s why if/when I go out by myself, I won’t drink alcohol. One thing Melissa will do for me is to call me at night when it’s time for my 10 pm meds and IC in case I fall asleep and blow past my time. It’s almost like having Onstar and I really appreciate it. My next visit to the Augusta VA will be near the end of July for my six month follow-up. Today was a work from home day but I had to go in for a management meeting. Tomorrow is my AWS (Alternate Work Schedule) day off so I’m looking forward to sleeping in a little. Curtis comes home from Shepherd tomorrow and Dad returns to his home in North Carolina to tend to his garden and catch blue crabs from his pier. He and Melisa are getting married on June 21st so he is really happy to be finally leaving the hospital environment. Gotta go take care of my 10 pm duties before Onstar calls. I really appreciate the little details that make such a BIG difference…Phillip | ||||
Monday Night June 2nd (Moving Forward) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 03 June 2008 | ||||
| This weekend was nice as I returned back to the gym finally on Saturday. I’ve looked all over for a decent gym with accessible equipment and I finally found a really nice one. The Huntsville Hospital Wellness Center a couple blocks away from the hospital. I like it so much that I would probably have gone to this gym before my accident. The have three table mats set at wheelchair height that are easy to transfer on and off the wheelchair to do my stretching. They also have personal trainers and a masseuse. Since Friday, I’ve had pain in my upper back muscles that are gradually worsening. Melissa found a muscle below my right shoulder blade (scapula) that was knotted up like a ball. It will take some serious kneading as if making a pizza. Curtis and Dad are doing well at Shepherd. Curtis has about reached his therapeutic peak based on the level of healing in his wrist and shoulder therefore after his driver’s training, he will be coming back home on Friday and Dad will go back to his garden and catching crabs off his pier. Tomorrow are my visits to the doctors to evaluate my deep vein thrombosis (blood clots) and shoulders. I picked up the report from the imagery center at the Huntsville Hospital and it doesn’t compare the difference between the April 25th Doppler sonogram to the November 7th study. Interestingly enough there was a test done on November 2nd and there were no signs of clots in either leg. My right thumb, forefinger, and middle finger have been gradually going numb. At first I thought it was carpal tunnel or something but I am beginning to suspect the cause may be from doing my weight shifts on the hard slim wheels of my chair. I may need to go to a pneumatic wheel instead. I will have to consult with my physical therapist as I get ready to order my spare chair. Well, it’s late and I need to get a good night’s sleep. Tomorrow promises to be a very long day… Phillip | ||||
Wednesday Night, May 28th |
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| Written by Phillip Sherwood | ||||
| Wednesday, 28 May 2008 | ||||
| Just a quick note to say hello to all and thanks for the continued support. Dad and Curtis are solving problems and it looks like he will end his day program rehab in about 8-9 days to come home. All is going well today at work as I had a marathon program design review briefing to attend that ran nearly nine hours. I like the new contractor’s facility not only because it’s closer to my home but it’s very wheelchair accessible and their handicap bathroom is never busy. I’m glad tomorrow is a work at home day and I can get that extra hour of sleep in the morning. I’m looking forward to the weekend already. Melisa came over to stretch me after work and my flexibility continues to improve and the spasms are more tolerable however the swelling in my left leg makes it very difficult for me to control due to the increased stiffness. It seems to be immune to the blood thinning rat poison and I go to bed every night with “chubby” feet. Sometimes in the morning I can actually see the bones in my feet but by the afternoon, it already looks like it has been victimized by a multitude of bee stings that’s how puffy it gets. At my six month check up at the VA in Augusta, I will be placing my order for my back-up wheelchair. I’m also going to ask for a seat cushion that is just a little thicker than this one. My butt gets sore by lunch causing me to have to contort myself to relieve some of the pressure. Gotta get ready for bed. I’m hoping it will be a good peaceful night of rest…Phillip | ||||
Tuesday Night, May 27th (Atlanta) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 27 May 2008 | ||||
| Got back from Atlanta from visiting Dad, Curtis and Melisa. Melissa and I delivered to Dad a load of shrimp, cherries, grapes, laptop and a little something to cover his expenses while there. For Curtis I brought him a bunch of extra medical supplies I had and my travel toilet/shower bench. I called Dad today and he went to Shepherd with Curtis this morning and retraced his steps and said hello to all of the folks who helped me and they were really pleased to see him and hear how I am doing. The stay in the hotel Sunday night was horrible because the room wasn’t cleaned by the time we checked in at 8 pm and there was some kind of event where the entire floor was full of adolescent girls who fought ALL night long so I didn’t get much sleep at all. Then in the morning, the water was cut off because of a renovation project that started at about 6 am. It was a good thing I was able to work from home today because I was really dragging. Curtis continues to progress and Dad is helping him refine his apartment transition techniques based on his experience with me I imagine. Dad is all about problem solving as well and has lots of patience. Mom, Dad, and Melissa are great in the fact that I can go on for an hour babbling about something seemingly inconsequential that may be getting under my skin and they’ll listen to every word until the weight is lifted from my chest. Whatever was bothering me to go on a rant may not get solved but I feel sooooo much better afterwards. A friend of my father’s and mine from North Carolina stopped by today who was in BHM and Cullman visiting who I haven’t seen for years and it was great seeing and talking to him. He’s quite old but has a mind sharper than a razor. We got a good laugh talking about how worked up Dad gets over politics. I still get calls and messages from friends in Central & South America who are just finding out about my injury wishing me well. I think one of the best things that happened to me during my military career is all the lifelong friends I made throughout my travels. I’ve contacted several of the people I went through rehab with and most of them seem to have gotten bitter and angry. It makes me wonder if that is an initial phase because a lot of the vets I met at the VA seem pretty happy go lucky. Maybe it’s because half of them smoke pot. I’m just glad I never felt this way. I have bad days too but so does everybody else. It’s called life. My worse day now is still better than my best day while in ICU. I see people who are grossly obese and diabetic or someone blind and I think I would much rather be without legs than suffer the many afflictions available on the menu. Even if my condition never improves I will be happy with what I have gained back so far. I still have the best family, girlfriend, friends, career and an even better appreciation for the little things in life to keep me strong enough to get out of bed every morning to see what the new day may bring… not take away…Phillip | ||||
Friday Night May 25th (All Is Well) |
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| Written by Phillip Sherwood | ||||
| Friday, 23 May 2008 | ||||
| This has been a very good week for me. It’s Friday and I don’t feel run into the ground and I’ve been sleeping much better during the night. Nick and Tom from work brought my grill over from the house so I can get back into barbecuing. They also brought some awesome BBQ! Today was a day of errands but I didn’t get much done. I went to Wal-Mart to pick up some things but there were no hand baskets anywhere to be found. Sunday Melissa and I will be going to Shepherd to see Curtis and his fiancée Melisa. My father should be arriving around the same time and they’ll be staying in the room right next to where I was. We’ll be coming back on Monday. Next week at work promises to be a high pace action packed week along with several doctor’s appointments here local and in Birmingham. All is well at the home front…Phillip | ||||
Wednesday Afternoon May 21st, 2008 |
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| Written by Phillip Sherwood | ||||
| Wednesday, 21 May 2008 | ||||
| This past Sunday, we went to the house to mow the yard and water plants when I got a wild hair and tried to ascend the stairwell to the second floor. I got as far as the third step before stopping and getting back into the chair to reassess how I was to solve this problem. When Melissa came in from the rain, she grabbed my legs from behind the knees while I grabbed the next higher step and we both lifted simultaneously and voila, it worked! We did this for all twenty stairs until I was at the top and we both were pretty tired. She then carried the chair to the top and luckily the titanium alloy made it easier to carry. The next dilemma was how to get into the chair from the floor without my paraladder stairs. I reached into my bag of Shepherd tricks and pulled out the one from the day program and with lots of “shoulder-saving”, I got into the chair. It was like reaching the summit of Pike’s Peak and all I needed was the S.N.A.G. flag to plant! This was the first time I’ve been upstairs since I left the house at 6 am on October 20th. It was a bit surreal and I missed the upstairs because that is where Kari & I spent most of our time when I was at home. I fit into all the rooms but not the walk-in closets. Getting back down the steps was much easier. I did the stop-drop-roll out of the chair to the floor then the butt skootin’ boogie down the stairwell. Thank goodness for carpet. I was leaving the post office the other day and had an opportunity to hold the door open for the FedEx man whose hands were full carrying boxes. I felt really good that for once I could return this favor to someone else who needed a hand. I went through the Burger King drive-through the other day en route to a meeting and bought one of those new Angus Beef Whoppers. While driving down the road, I quickly realized this would be a two‑handed operation. It was this moment I really wished I had a functional left leg to help steer the car with so I could eat. I had to make a left turn so I set it on my lap and made a slow careful turn so it wouldn’t go flying off my leg like my cell phone did the other day. When, I negotiated this with Nightstalker precision and just as I was about to pat myself on the back, I went over a set of railroad tracks and it bounced off my leg and landed upside down on the carpeted floor of the van. Dang! The left leg is giving me fits when it comes to having to lift it to position it for transfer or getting into the bath tub. It must have something to do with the swelling from the clot. My right leg is much more pliable and easier to work with…Phillip | ||||
Wednesday Morning May 21st: Quick Update |
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| Written by Phillip Sherwood | ||||
| Wednesday, 21 May 2008 | ||||
| Everything is going well this week. Much has been going on that I’ll write about soon. Yesterday I went to the clinic to have my INR blood thinning level checked and it was off the chart so they drew a vial of my blood and sent it to the Birmingham VA to have analyzed. I should find out the result today. Sleep has been getting better although I can’t sleep very well anymore on my back. I wake up after about 1 1/2 hours with my butt on fire making me have to seek relief by turning | ||||
Saturday Morning, May 17th |
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| Written by Phillip Sherwood | ||||
| Friday, 16 May 2008 | ||||
| I just wanted to say this AM that last night I had an awesome night’s rest! This is the 4th night in a row now having slept well. | ||||
Friday Night, May 16th (T.G.I.F.) |
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| Written by Phillip Sherwood | ||||
| Friday, 16 May 2008 | ||||
| I wrote a while back about the one thing that can bring one down harder and faster than anything else is an INVOL (involuntary defecation). While in Shepherd, it happened a couple of times but they were always real small but when I was home in February for a stopover, I had a really bad one that took me down the mental stairwell faster than a New York minute. Luckily I wasn’t alone in the apartment and I was back up and fully mission capable in no time. Everything has been going good until last night when something from the depth of my bowels wanted out at all cost. It was the mother of all INVOLs and I was flying solo. The mess was unfathomable and I spent half the night and a good part of the next morning doing OT (cleaning). I looked at my cat during all this and I could see on his face the look of poetic justice for allowing his litter box to go too long before cleaning it out. I thought to myself that I am just so fortunate that it didn’t happen during a meeting at work. I must have eaten something bad a couple days before since it takes about 2-3 days for food to process through the bowels vs. 8-12 hours ambulatory. I thought about it later in the day that if I had the choice, I would rather have the mother lode spread far apart than a bunch of little no-notice percolators throughout. On a brighter note, I have slept relatively well this week. Since I am getting more feeling in my buttocks now, I get more uncomfortable and have to move around more in the chair and increase the frequency of my weight shifts. I can only explain that it feels like a hot spot caused by a new helmet liner. Older aviators know what I’m talking about here. After beginning my sleep on my back at night, I wake up after 1-2 hours instead of 4-5 hours having to rotate to my side. The M&M girls (Melissa & Melisa) have been tag teaming my legs by stretching them into submission and compliance. It has really helped to calm the spasms down some. Curtis is getting closer to leaving Shepherd as an in-patient and beginning the Day Program transition during Memorial Day weekend. I don’t understand why they are discharging him before he is completely independent but that is something between Curtis and his case manager to discuss. I fear he will find it’s going to be a lot tougher than he thinks not having a staff to help him at the press of a call button. I’ve included a picture of Curtis & Melisa that webmaster Mike Magee took during his visit to Shepherd a few weeks ago. Since this was taken, his upper body brace has come off. Well, it’s getting past my IC time and biological necessities wait for no man. I had a nice cap to a good week…Phillip | ||||
Wednesday, May 14th (A Word of Thanks) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 14 May 2008 | ||||
| Today’s blog is about giving thanks to those in my life that refuse to let me fall. Like Curtis, we both have very strong women in our lives whose mission it seems to be there for us when the chips are down and to stack the deck in our favor so not to throw the cards on the table and fold. I’m not a poker player by any means but I’ve seen enough movies to understand the parallels. J For those out there who read my life’s events as they unfold and give me thanks to me for giving them strength, please keep in mind that my strength comes more from my family, Melissa, and my friends than my own internal fortitude. I left out co-workers because I consider them all as my friends. Like my friend Curtis is about to find out soon enough, no days are easy, just some aren’t as hard as others. He has been having a tough time in his recuperation and painfully slow progress. His autonomic nervous system is still out if whack and trying to find that harmonic sweet spot. His sleep is continually impaired in which I told him he will never get a good night’s rest until he leaves hospital in-patient status and is in control of his own nocturnal environment. I have volunteered to be his fiancée’s “Crash Test Dummy” in helping to prepare for his arrival that actually is mutually beneficial. Yesterday I worked from home and the extra hour of sleep in the morning is such a blessing. To all you out there, thanks for the boost because your words of encouragement really go a long way as well. I don’t know if things will get better or worse as time goes on but for now, every new day presents new opportunities and new hope… I’ve posted some of the original CT scans done when I first arrived to the Huntsville Hospital ER after being lifeflighted on October 20th. The entire T-5 vertebrae was later removed because it was crushed so badly and a cage was put in its place…Phillip | ||||
Monday May 12th (Lesson the Lasts a Lifetime) |
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| Written by Phillip Sherwood | ||||
| Monday, 12 May 2008 | ||||
| Even as a young boy, I was never the type to quit a game and take my ball and go home when the chips were down. Last week was a very difficult week for me on many levels. It made me reflect on another moment in my life that happened about 26 years ago when I was a young paratrooper. We were getting drilled by our sergeant as ordered to by our old and crusty first sergeant in preparation to go to combat. This 1ST SGT had a poster on the wall at the top of the stairwell that said “The more You Sweat in Peacetime, The Less You’ll Bleed in Combat”. The sergeant was really working us over and many of my compadres were falling out of ranks and quitting. This sergeant then spit out a dissertation that has stuck with me still to this day. He told us with all the passion and fury of a southern Baptist preacher that if we quit now, it will just keep getting easier to quit whatever we do that is tough for the rest of our lives and that each time you quit, your resistance lowers and you quit even easier the next time. Some guys came back into the ranks however many did not. I myself never took a step out although my feet sure thought coffee and donuts were worth the price of quitting. All this came back to me about Wednesday of last week. The fatigue and pain levels were getting the best of me due to the continual inability of getting a decent night’s rest. The mental stress of work accompanied by the longer than desired hours I was putting in trying to keep several programs from falling apart to include myself was overwhelming. I woke Wednesday morning with lots of pain in my shoulders, both arms asleep, my back on fire, and a 3:30 IC amount that really worried me. I really felt like quitting at this moment but I was unsure what I was going to quit. I lay there wondering how long can I endure this when the sergeant popped into my head. Despite the spasm trying to send my body erect to keep me in bed and the fire in my shoulders that screamed for me to release my ladder and lay back down, I fought through it all and got out of bed. I also remember from Shepherd that it’s times like this that you have to work the hardest! Was this therapist in the same formation as I when the sergeant was giving us the quitter speech? Certainly not I thought. I’m glad I fought through this and got out of bed that day because I had a really good day despite my head spinning from fatigue and back screaming for pain meds. Friday was supposed to be my day off of work but I had to go in for a series of meetings to address critical program dilemmas. Come Saturday, I felt like a vegetable. I slept until noon yesterday and I feel refreshed to start the week again. Time for breakfast and start my day…Phillip | ||||
Tuesday Night, May 6th (Having Fun) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 06 May 2008 | ||||
| Lately my shoulders have been hurting after sleeping on my sides and not able to fall back asleep after waking at 3:30 am for my IC but last night was an exception. I woke up this morning refreshed and happy however I had a terrible pain in my back as if it were broken. By noon, I decided to take a Tramadol & Tylenol cocktail to get through the rest of the day. Melisa came over in the morning and gave me an awesome stretch that left me spasmless for the rest of the day. One thing that I had to get over real quick from the beginning is embarrassment and shame. I am talking about passing gas in this case. Sometimes you just have to have fun with the difficulties that this injury presents. Some may dwell on it but there’s no point beating oneself up over something you cannot control. I saw Lex Lugar at Shepherd over the weekend and was amazed at how skinny he’s become. His body is just withering away. He works at Shepherd as a volunteer bringing hope to the new inpatients. Yesterday my friend LTC Kevin Mobley was in town and we went to Rosie’s Cantina for Cinco de Mayo and the place was packed. I was really tempted to have a margarita or two but I refrained. I am looking forward to him and his family moving to Huntsville this summer. I went to an “All Hands” meeting yesterday for work and the parking lot was so full (even the handicap spaces) that I had to park in the street on the outer ring. This was a challenge I am glad not to be faced with on a daily basis. For lunch today I had beef stew that my coworker Teddy made for me and it was delicious. I spoke with Curtis tonight and he was in really good spirits despite the difficulties his autonomic nervous system is giving him. Yesterday was the first day without the turtle shell brace for him and today he received a shower for the first time in the shower chair. Unfortunately his BP took a nose dive and they had to rush him back to put him back in his bed to elevate his feet. So far this week has started out great and I hope it continues like this. I am still looking for activities or new hobbies that interest me but I am certainly not bored yet during my time off. I posted the pix of my left wrist showing the hardware I still carry with me that sometimes make pushing the wheelchair difficult and tiresome…Phillip | ||||
Sunday PM, May 4, (PT & OT Never Stops) |
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| Written by Phillip Sherwood | ||||
| Sunday, 04 May 2008 | ||||
| This has been a super busy week and one of the busiest since leaving the hospital. By Saturday, I was cooked! Friday after work, Melissa and I stopped by Guntersville, AL for a dinner social for the local hospice organization. There were quite a number of folks there and the music was great although a bit loud for many of the patrons. From there, we took off to Atlanta for Shepherd. We arrived at 1 am to the hotel and I will say was not only handicap accessible but wheelchair accessible too! It was great and everything seemed to be the right size, height, and easy to reach. The next morning, we proceeded onto Shepherd and caught a session of physical therapy with Curtis. It was like old school week. After PT, we went to the rec room downstairs where I played ping pong with his son Austin. This was really fun and I actually did better than I thought I would. It really helps to have somebody chasing after the ball when it goes out of play. Next was a BBQ cookout with all the hot dogs and hamburgers one could eat. After lunch. Curtis and I went back up to the gym for an hour long stretch session. After all the stretching I’ve done this week, my spasms have really gotten so much better. I met the young boy who was hurt at the Loretta Lynn qualifier racing with DJ Brazelton in the schoolboy class. He too was wearing a LEATT brace and suffered a thoracic fracture rated complete. Both he and Curtis were upbeat. Curtis looked very good and in great spirits although tired and fatigued. After leaving Shepherd later that afternoon, we began the long drive back home. I was really tired and ended up not getting out of bed this morning until 10:30 am. My batteries felt really charged. I had some really intense dreams last night. I don’t remember what they were except they were disturbing. My 3:30 am IC was excessively large and I’m not sure why. Must have been from extra draining from my legs. They actually looked normal when I woke up. This afternoon we went over to the house and cut the grass and weedeated the mulch bed. My OT job was to spray the residual weeds with Round-Up. I got to thinking later about my house in Texas going on the market and with the house in Alabama already having been on the market for nearly six months and having to pay rent for this apartment. If the house in Alabama doesn’t sell by this fall, I will probably just have it modified and move back into it. Two mortgages, apartment rent, and two vehicle payments is a bit much to chew on. I’m keeping my fingers crossed that something positive will happen. All is all this was a great weekend and I’m ready for an even better week ahead…Phillip | ||||
Friday Morning, May 2nd |
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| Written by Phillip Sherwood | ||||
| Friday, 02 May 2008 | ||||
| Just wanted to let everyone know real quick I am doing ok. This has been the busiest week yet since being released from the hospital. I haven’t been sleeping very well and am having major night sweats again… until last night. I had a good night’s sleep. Everyone from work has been great and my support network has been there for me 110%. Bob the cat is keeping me well entertained after he takes a hit of his Kitty Crack. I’ve been neglecting my daily stretching and had to get back on course. Gotta run but I’ll be back up hopefully more regularly…Phillip | ||||
Saturday Night, April 26th (Alibis) |
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| Written by Phillip Sherwood | ||||
| Saturday, 26 April 2008 | ||||
| I forgot to mention in yesterday’s post about the spasm I had while getting my ultrasound. As I was midway through my transfer to the table from my chair, I felt a really weird tangle in both of my feet. I knew something was about to happen but I didn’t know when or what. As soon as my legs reached the table, I was thrown back like a switchblade opening. It was fast and furious similar to when I was thrown into the back of the toilet bowl that jacked my back all up. After the procedure was over, Melissa and the tech noticed I had broken skin beneath both knees. I’m not sure what caused this yet. Most likely are the TED hose stockings binding and cutting into the skin. I am treating the broken skin with Neosporin and have gone back to the shorter TED hoses temporarily. Today after sleeping in until nearly 12 noon, I went to Panapoly Arts & Crafts exhibition in downtown Huntsville. It was a beautiful day and the rain held off. I met an interesting individual in a wheelchair too while waiting in the funnel cake line. He was in an automobile accident in 1998 and had a C-4, 5, 6 injury. My wheelchair caught his attention and we began talking. I asked him if he had spasms and he responded with a profound “yes” but doesn’t take any medication to reduce or block them. He can stop them by hitting himself in the knees like the doctor does when checking for reflexes. He also uses them to help his stand and reach for things or to take a couple of steps. I was surprised to hear that he never heard of Shepherd. He told me that he started gaining feeling back around his second year and for to never give up hope and emphasized how important it was not to lose flexibility. It was a brief and interesting meeting. It’s interesting who and what God puts in our path. I’ve enclosed some pictures of my new wheelchair and some of ancient chairs. You just gotta love technology. The VA has really done me right. They also changed out my 16f rubber catheters for 14f plastic ones that work great. These are very difficult to get and civilian insurance will only give the patient four per month that you have to clean after each use. The VA gives me 200 per month plus 50 sterile kits. I received another three strips of chicken fat to put on the wheelchair wheels to protect my butt against scraping against the tires during a transfer. You’d be amazed at the amount of severe skin damage this can do.…Phillip | ||||
Friday Night, April 25th (Setback) |
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| Written by Phillip Sherwood | ||||
| Friday, 25 April 2008 | ||||
| One step forward-two steps back. Today was my day off work that comes around every other week but unfortunately I rarely get to enjoy this opportunity due to demands from work. Today was an exception to the norm. I was able to sleep a couple hours later and recharge my depleted Energizers. I was on a nothing by mouth (NPO) order since midnight last night in prep for my ultrasound/sonogram today. I went to the Huntsville Hospital Medical Mall in lieu of going to the Birmingham VA Hospital. I figured if they are going to charge their services against my private insurance, why inconvenience myself so I requested a local consult. I have never been to this facility before. When I arrived to sign in at reception, they were running behind. I was finally seen at 12:30 and was starving by now. The tech did an entire scan of my abdomen then proceeded to my legs. The entire procedure took about 1½ hours. The report from the radiologist revealed that I continue to have bilateral blood clots in my legs. The right leg has a small clot behind the knee but the left leg had clots throughout the femoral artery down to the ankle. This is exactly what I was hoping NOT to hear. Since we didn’t have the report from Shepherd when the original clots were found in November last year, there’s no telling if these clots are new or the same one gone wild. I’ve requested all my records from Shepherd to be released and they should be here by Monday. I wonder now if my legs are maintaining their muscle mass because of the spasms or if it’s because of fluid retention due to the clots. It looks to be a long road of ingesting more rat poison. Afterwards, I went and checked out their wellness center and it was nice. They have a pool with a chair lift but it’s not therapeutic and the water temp is kept between 84-86 degrees. They gave me a week long free pass to try it out…Phillip | ||||
Thursday Night, April 24th (Altered States) |
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| Written by Phillip Sherwood | ||||
| Thursday, 24 April 2008 | ||||
| I met a man yesterday leaving a meeting at work that has MS and was in a motorized wheelchair. We got to talking about our cars when he told me there was a local rep here in Huntsville for VMI. They are the company from Phoenix, AZ that does the accessibility modifications to the vehicles. This is good to know. I would much rather be in my condition than to have MS. His spinal cord is dying. My new spaz med Tanzinine seems to be working better as my dosage gradually increases. By this time next week, I’ll be at the full dosage rate. On another note, my right finger and thumb are going numb and it’s been gradually increasing for the past couple of months. Could be anything. Something that is getting increasingly frustrating are things I place in my lap while moving from point A to Point B keep falling to the floor. It may be because I am getting careless or that my foot plate on this new chair sits lower than the other chair creating a downward slope angle. Either way I need to come up with a fix. I was talking to a friend the other day who admitted to me that they just don’t know what to do or how to react around handicapped people. A little while ago I posted some do’s & don’ts but I left out a couple of things. I never noticed this happening while at Shepherd or at the VA SCI unit but most people are relatively good hearted inside. Their first instinct is to help the invalid by opening a door for them or pick up from the floor something they have dropped. Some handicapped people, children, independent women look at this as demeaning because they want society to know they are capable of doing the task themselves. We received classes on this at Shepherd during rehab and they never really offered an iron-clad way to handle this kind of situation because everyone is so different. I think that the best way to handle the situation when it appears apparent that the invalid needs help is to ask them if they would like a hand and then intervene and assist if they respond favorably. Likewise the invalid should not be afraid to ask for help when the task is very difficult and they are in public in order to avoid looks of pity from the public that may feed the already present fear and anxiety of public perception. Many handicap individuals become bitter in time and I hope and pray I don’t succumb to this fate as well. With all the love and support I have from such an awesome family, Melissa, and all my many friends here in the USA and on foreign soil, my bet is that they won’t let this happen to me. There are so many people out there with full functionality that are in far worse shape than I am. I wouldn’t trade legs for happiness for all the tea in China. I’m a lucky guy to have so much… Phillip | ||||
Tuesday Night, April 22nd (Dancing with the Star) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 22 April 2008 | ||||
| I sit here tonight on the couch watching Dancing With The Stars and my right leg is trying to keep up. The spasm tonight feels different than ever before. Not sure what to make of it yet. Today I had my lab appointment at the VA clinic and my INR reading was a little high but still within limits. I suspect it’s because I’m in the process of changing medications. I was scheduled for an ultrasound for this Friday to check the status of the blood clots in my legs that appeared last November that caused me to have to start on the rat poison blood thinners. If there is no trace of clots, I come off the Coumadin for as long as the clots don’t return. If they return and my legs begin to swell back up, I will go back on the blood thinners indefinitely. My friend Curtis called tonight from Shepherd and he is in surprisingly good spirits despite the multitude of difficulties his autonomic nervous system is giving him. Shepherd plans to discharge him from in-patient status and start him on the day program immediately following. I do not see how that can be possible because he is so far behind the 8-ball in his therapy. Unfortunately the decision is driven more by insurance HMO’s than by patient need in civilian medicine. The VA fortunately is just the opposite. My opinion I shared with Curtis is to request from his medical team to keep him in in-patient status until he is moderately independent with supervision only as necessary. This is where I was at when I was discharged to the VA. One of the requirements of the Shepherd day program is that you must have a Shepherd certified caregiver stay with you at the apartment they provide because they don’t have the staff to support this phase. My father has volunteered to be that designated representative for Curtis like he did for me. This is so great and I am proud of him for volunteering to step up to the plate like this to help him out. Today was a good day. Time to perform mission prep for bed… Phillip | ||||
Weekend Update, April 20th (6 Months Post-Accident) |
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| Written by Phillip Sherwood | ||||
| Sunday, 20 April 2008 | ||||
| Today marks the sixth month since my accident and so far so good. I am very fortunate to have made it as far as I have in so little time. I have recovered a little more feeling in my lower extremities however I have not recovered any voluntary movement to date. Because of the spasms, I have been able to maintain the muscle mass in my legs. I will be going in soon for an updated sonogram to see if I can come off the blood thinners. My autonomic nervous system is regulating the bowels, bladder and core temperature pretty well. I’ve had a few falls but luckily none very tragic. To date, I’ve had no UTI’s and only one fever. My overall body weight has increased some but my blood pressure has come down probably due to the reduced intake of caffeine. Work is going very well and my morale is high. This weekend I chipped away a bunch at the accumulated sleep deprivation and feel more refreshed than ever. My next follow-up at the VA will be in July. Time to hit the sack… Phillip | ||||
Thursday Night, April 17h (Trials and Tribulations) |
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| Written by Phillip Sherwood | ||||
| Thursday, 17 April 2008 | ||||
| Last night I finally had a good night’s rest. Bob seems to have taken a liking to sleeping in my chair while I’m not in it. I don’t mind sharing it with him. Yesterday was my day in the office however my coworker called me early to tell me it was a balmy 52 degrees so I worked from the house. I went in to work today to do the final prep for a meeting I had with members from the Colombian Minister of Defense and other military Generals and Colonels. When they arrived, I recognized all three of the military representatives from the Army, Air Force and National Police. I had trained their Maintenance Test Pilots while working on special assignment to Colombia between 2003-2005 prior to my retirement. It was a nice reunion. I gave the presentation and follow-on briefing in Spanish and luckily it went well and I hadn’t lost much. Afterwards I went to a new car wash and got the supreme package but couldn’t really take advantage of the free vacuum afterwards. While driving down the road, I noticed a yellow bag flopping in the rear view mirror. Apparently they had put it over the rear window windshield wiper to protect it so I continued driving home like a goon as if someone walking out of the bathroom with toilet paper stuck to the bottom of their foot. When I got home, I wrote my executive summary then ate some dinner. At some point I fell asleep on the couch. I really enjoy my job and the challenges that come with it. It’s all about time management and problem solving with a little bit of common sense thrown in for good measure. I called Melisa to see how Curtis is doing at Shepherd and unfortunately he is still suffering from the initial stages of spinal shock awakening and having difficulties with bowel and temperature regulation. So much that it is impairing his ability to rest and participate in therapy so I have cancelled the weekend trip to see him so that he can rest and get his strength. This is probably one of the most difficult phases in the healing process. As he graduates to the next phase of healing, he will be met by more difficulties and frustrations but only different. Today was a good day for me…Phillip | ||||
Tuesday Night, April 15th (Recovering) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 15 April 2008 | ||||
| Today was my workday from home and I am recovering my strength and stamina. My back is not hurting as bad and things are falling in line. My friend Curtis is going through the struggles dealing with the medical aspects of the initial stages of spinal shock playing havoc with the autonomic nervous system that throws the bowels and body temp regulation out of whack. He is experiencing the onset of spasms. I feel really bad for him because I know what is coming for him. There were many things I never posted on this public forum because they were too personal so I am trying my best to coach him through and plan on taking a road trip to Atlanta this Friday after work. Since Melissa is Shepherd “push” qualified, we hope to get him out and take him somewhere I went when he came to visit me on a weekend push. The irony of the situation is very tough and he looks at me as his guiding light through a rough storm. I hope in the end that he gets through this ok. I had a lot of exposure to very difficult situations throughout my 23-year military career to help me to compartmentalize and even sub compartmentalize psychologically painful life events that Curtis has not had. That was my survival/self-preservation mode that got me through the adversity and continue on with the “mission”. I wish I had a chip I could take out and download onto him to help him deal with the pain because this is the first really bad day of more to follow. I went by my race sponsors’ shop at LocoMoto MX today to deliver Curtis’s LEATT neck brace to the owner who has now made it his mission in life to see that the maker of this piece of safety equipment take notice of the collateral damage it is causing and hopefully will change the design. His two sons have voluntarily quit the sport of motocross since they both know personally other riders who have been killed or maimed in the sport within the last six months. Ironically, the Swiss company Alpinestars has just come out with a new prototype neck brace where the back support brace is designed to flex at several locations based on the degree of stress during impact. This brace should be available in August 2008. On another health note, I took the vaccine to prevent pneumonia back in October before my accident but refused the flu shot like I have done since working as a medic in 1984. The flu virus is derived for the previous years’ strain however the virus itself mutates several times by the time the next flu season comes along and the chances the vaccine makers isolated the strain is about 1,000,000:1. My congestion kept to my upper respitory tract luckily and is almost gone completely. The PA at the Augusta VA substituted my Dantrium anti-spasm medication for another called Tizanidine Hcl that I will start taking on Friday. Dantrium is mostly used for brain injury that I don’t argue I’ve suffered in the past that women I have dated will probably attest to however it caused spasms of the tongue in cheek and not the legs. We’ll see what this new med does or doesn’t do for me. …Phillip | ||||
Monday Morning Update, April 14th |
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| Written by Phillip Sherwood | ||||
| Monday, 14 April 2008 | ||||
| Just a quick update to start the day. My fever finally broke Saturday afternoon around 1:30 pm. It had gotten up to 101.8 but went back down to its normal 97 degrees. It was a miserable ride but I’m glad to be through it now. I suspect it was a mild sinus infection I must have caught while in Augusta, GA while the pollen counts there were out of the roof. My autonomic nervous system is out of whack once more where I am sweating profusely at night in my sleep. I was able to get some good rest in preparation for work this week. The pain levels are back down and I feel more refreshed. I look forward to a great week! PhillipMy sympathies go out to my friend Mile “Scooter” Magee and his family for the passing of his mother last week | ||||
Friday Night, April 11th (Spiked a Fever) |
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| Written by Phillip Sherwood | ||||
| Friday, 11 April 2008 | ||||
| Today was my AWS (Alternate Work Schedule) day off which worked out in my favor because this morning I woke up with an excruciating pain in my upper back & shoulders so I stayed in bed a little longer. I actually slept pretty well and Bob pretty much left me alone. Although this was a day off for me, I had a lot of due outs I needed to send off. Around 2 PM, we were getting hit with some really bad weather then a tornado warning was issued for our area. I decided to lay in bed and rest while watching the weather reports. After a couple of hours, I got up and felt even worse and spiked a fever to 100.5. When it reaches 101.5, that’s the point where I have to get to an emergency room. I will try to get some good rest this weekend to recharge my batteries in prep for the upcoming week. My friend Isaiah Ray aka Flato Gato is doing some Army training in Sacramento, CA this week and went down to Monterey to visit the Flyin’ Brazilian Otavio Bernardo. Both met each other at Shepherd while visiting me and formed a great bond. Both guys are great people and I am blessed to be in their lives. Well, the fever has not broken yet so I am heading to bed…Phillip | ||||
Wednesday Night, April 9th (Ups & Downs) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 09 April 2008 | ||||
| The nights are not getting any better as I hoped they would by now. For some reason I keep waking up various times looking at the alarm clock to either see if it’s time to do an IC or how much time I have left until it’s time to get up. I went in to work to first get my post decal for the vehicle and that went well. For some reason this afternoon my right leg was kicking up violently which is unusual. My right leg normally spasms at night but this was during the day. The other was that I have never had spasms like this before. I don’t know what to make of it except that it is what it is. Maybe it’s because I have a new chair and the ergos are different but my back has really been sore these past couple of days. Daily frustrations continue to grow and my physical health is questionable at times. However I am winning some little battles like retrieving my keys from the ignition because I forgot to pull them out before transferring by using my grabber from the back while sitting in my wheelchair. I had several good transfers and Christine has been working flawlessly allowing me to get in and out much easier. The friends and those I haven’t met yet who lend their support or words of encouragement at the right moment are priceless. I know God will not give me more than he thinks I can handle at any given time. I have always welcomed the “PEPSI challenges” in my life despite the grim odds of success at times. Others take life for granted while I take nothing for granted. If I were to count my blessings, I would need one of those scientific calculators to add them up. My friend Curtis is having some tough times right now and I remind him they will pass but never totally go away. What is more important is how to find a way to get through the doldrums even if you have to dig down deep and find the strength to blow wind into your own sails. If you don’t have it in your lungs, maybe the strength can be found in your arms so pick up an oar and paddle; just keep going forward and don’t drift back. I didn’t say this all at the time while speaking to Curtis but this is the metaphor that works for me and the basis for the philosophy at Shepherd. “It’s all about problem solving.” Although some days may be worse than others, I always appreciate seeing the sunrise and knowing that Pandora’s Box was not empty. I hold onto what was left in it after it was opened…Phillip | ||||
Tuesday Night, April 8th (A Day at Home) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 08 April 2008 | ||||
| Today was my workday from home, which was good because I was able to go over to Curtis’s house at lunch and get my race trailer. It also allows me to be more productive. We met Melisa and Eric Cathcart at the house to pull all the bikes out to dust them off and take some digital photos to post in preparation to sell. I have a 1991 Honda CBR1000F, 2000 Harley Softtail Std FXST and my 2006 Honda CRF450R race bike. This was the first time I’d seen the trailer and my race bike since the accident and I will admit that when I saw the bike all cleaned and ready to ride, the reality of my condition really sunk in. I can only explain the feeling as like seeing your girl in the arms of another man because she thought you weren’t good enough. That’s how strong and overwhelming it felt. I wished so bad I could throw my leg over the saddle and take a “hot lap” around the block but today was not that day. Afterwards, the gang loaded everything back up and delivered the trailer to the apartment where Melissa and I will go through everything to either throw away or inventory to sell. Everything will go. We then went to return the wheelchair I was renting to Kustom Kinetics. When the tech saw my chair, he was really impressed with my “ride”. Apparently the VA really hooked me up. I then went by the tax office to sign my taxes. I was raped by Uncle Sam and didn’t even get a kiss. I suppose it must have something to do with global warming. I learned today about a young boy having crashed at a Loretta Lynn qualifier that raced our local series and is reporting he has no movement in his legs but has some feeling. His injury is right below the shoulder blades and he too was wearing the Leatt protective brace from http://www.leatt-brace.com/ I am seriously getting more and more convinced that due to the inflexibility of the aft support, it is pressing against the backbone like a bottle opener in a crash and popping the spinal cord like a shrimp tail. I don’t argue the fact that it does protect the neck but I thing further research, design, test and reevaluation is in order to better design this piece of protector to not be such a contributing factor in thoracic spinal cord injuries. More to come on this later. I spoke to Curtis last night and he is beginning to experience higher pain levels and fatigue. This is to be expected at this stage. He is in great spirits but can’t wait to come back home. I told him not to rush it and take advantage of as much therapy as he can get. There’s no other place on this planet he needs to be right now more than at Shepherd Center. Tonight I dropped my dinner on the floor as I was carrying it on my lap to the living room. It wasn’t a matter of if I was going to do it but when. To make matters worse, Bob the cat didn’t eat any of it up. I have some OT to do so gotta get going…Phillip | ||||
Sunday Night, April 6th (This Too Shall Pass) |
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| Written by Phillip Sherwood | ||||
| Sunday, 06 April 2008 | ||||
| Curtis Report: He is doing well dealing with the fatigue and a productive cough that requires the use of suction to get it all out. He feels cold during the end of the day and the pain level is proportionate to the fatigue he feels. I did not like this phase at all and was glad to get through it. I recommended he go sit by the pool when he can because it’s hot and humid.Melissa and I drove to the VA Hospital in Augusta, Georgia early Thursday morning. It’s a six hour trip and thankfully she did 5/6th of the driving there. I met first thing with OT Melanie to pick up my new wheelchair. It’s made of titanium and composites and is really nice. It’s mostly black with Honda red racing spokes. I took it for a short test flight and brought it back to make a few adjustments. The Comfort Inn hotel was very wheelchair accessible but the heater really dried my sinuses. On Friday, I arrived to the Spinal Cord Injury Outpatient floor early to get a head start on my 3-month physical. Everything went really well and my prostate wasn’t enlarged more than normal for my age. My INR for blood clotting levels were spot on and they fine tuned my prescriptions. Physician’s Assistant Pam Snowden is great and very thorough. Next I was seen by the psychologist for a follow-up then on to PT Amanda (Santa’s Lil’ Helper). I had to get the wheelchair fine tuned before I left there. All in all it was a very good visit and am happy to have been seen by the A-team. On the way back, we stopped by Shepherd to see Curtis. He has a good room with older and respectful roommates. By the time we got back to Huntsville, this ended a very long and fatiguing week for me. Saturday morning I woke up to a terrible cough and very tired. I ended up staying in bed until early that afternoon. This was the worse I have felt since leaving the hospital. I woke up at 8 am this morning to a dry hacking cough but at least I felt more rested. My friend Tom Huff and his family are in town this weekend so we went over to see carpenter Dave. After we came to the apartment and prepared the ultimate Japanese dinner of edamame, gyoza, sushi and egg rolls. It was great seeing all of them again. The demons possessing Christine have been exorcised. This morning when I went out to the car, the door opened up but the ramp would only come out about three inches and stop. I was thinking, oh no! Not again! I tried this several times but result continued being the same. After lowering the ramp manually, I went inside and tried the remote start to watch the electronic gauges go haywire. I quickly realized the battery was nearly dead. I found the map light I used Friday night was never turned off in the back. After a jump start, all was well once more and I began rolling. These last several days have been very full but exhausting as well. I am glad my friend Curtis is being well looked after and is mentally prepared to endure the long and difficult journey that lies ahead. I am very fortunate to have Melissa to help me through these difficult times. I know Curtis will be ok because he has his fiancée Melisa who will also take great care of him as well. Overall I am doing well and the tough times will come and go. I am happy that I will not have to go through them alone…Phillip | ||||
Wednesday Night, April 2nd (Road Trip) |
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| Written by Phillip Sherwood | ||||
| Wednesday, 02 April 2008 | ||||
| Curtis Report: I talked to Curtis tonight and he is doing relatively well at Shepherd and both he and Melisa really like the staff and appreciate the excellent care he is receiving. His Foley was removed today and he is being fitted for a temporary electric wheelchair. As for me, my back is really hurting from the spasm last week while on the commode driving me back really hard. I took some tramadol and Tylenol today to get some relief from the pain for the meetings I had to attend for work. I had a nice lunch today at Nothin’ but Noodles with one of my old 160th buddies Shady. He and I go back many years to the old Green Platoon days. The van is working great so far and I am getting up the ramp much easier now that the aft end kneels as it should. Tomorrow will be a long day at the VA after a long road trip to get there. I was lucky to find a hotel this weekend because next weekend the Masters Golf Tournament and there won’t be any rooms available for a 100-mile radius. On the way back from there, I will be stopping by to visit Curtis and breaking in my new wheelchair on the blue carpeted tunnel…Phillip | ||||
Tuesday Night, April 1st (Finding Inner Peace) |
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| Written by Phillip Sherwood | ||||
| Tuesday, 01 April 2008 | ||||
| Curtis Report: He is doing great and arrived at the Shepherd Center today. His pain level is heightened so the doctors upped his Lortab dosage that has him pretty much knocked out. He is up on the 3rd floor where the majority of patients are older and the ones with skin issues are treated. I was down on the second floor. His fractures are more severe than Huntsville Hospital reported and he is not able to bear his weight on them until they are healed. This will really detract from his ability to perform much OT & PT. He will do things like shave, brush teeth, and put on shirts. His doctor is the same as the one I had during the Day Program. Dr. Lin is also a paraplegic and probably the most overextended there but he is extremely competent and speaks with authority and from personal experience. His sore on the backside is also deeper into the tissue than Huntsville Hospital alluded and he is on an aggressive skin care & weight shift program now. The attending nurse performed an ASIA test on him upon admission. He is scheduled for an initial family conference tomorrow. The care at Huntsville Hospital in the Neuro ICU is excellent however when you leave, the attention to detail goes down. Like his fiancée Melisa, I am glad he is there now where I know he will receive the best care known to man. I look forward to visiting him and the staff on Friday. I was remiss to explain how Curtis was hurt. Last Saturday, he was with his son and Melisa with her children at Pleasant Hill motocross track for a practice day. He went off a tabletop jump that had a slight kicker on the takeoff and he landed too nose low and basically face planted the landing. It was almost five months to the day of my accident at the same racetrack but different section. He was flown out by life flight after complaining of the inability to feel his legs. This was the last recollection of his injury until he came out of ICU. This morning I woke at 3:30 am to a crash of lightning in Dolby Stereo with surround sound. So I decided to do my IC and it went very well. I was so relieved. Yesterday, the technician from R&R Mobility arrived and exorcised the demons from “Christine” while I went on to work. For those of you who wonder where the name “Christine” came from, it is from the Steven King movie where the car was possessed. Angela shuttled me back and forth in her Honda Fit and I tell you that is the easiest vehicle to transfer in and out of that I have experienced to date. The wheelchair fit in the back and didn’t even need to be broken down. Taylor the tech ended up having to realign the optical sensor for the ramp. Replace the computer module and swapping out the ramp crank handle for one that fits properly. When I came home from work, I ran it through multiple MOC’s (Maintenance Operational Checks). I then went to the hospital to see Curtis when I encountered a room full of SNAGs. It was a great reunion for us all! After my visit, I stopped by the NICU to speak with the Head Nurse about my difficulties with catheterizations. After giving me his best guess of a possible enlargement of the prostrate, he gave me the office number of the neuro surgeons in Huntsville that specialize in spinal cord injuries and associated difficulties. The NICU is great at acute trauma but not setup for chronic problems. On the way out I talked with one of my several favorite nurses, Denise, who looked after me during the night shift when Minta was off duty. She is an exceptionally talented nurse and we spoke about several experiences I’ve had during my rehab. She told me of some of the events that took place with me that for the life of me I can’t remember. This morning Taylor came back to do some system rechecks and look at the wheelchair restraints to see how to best optimize them. The system seems to work flawlessly. Today is normally my day off but I had to go in for a meeting and decided to stay to continue working. I came home to find the title to the Odyssey had finally arrived. I was pretty fatigued but needed to spend some time in the stander and no more than 15 minutes had passed and I fell asleep standing up. Tomorrow I go into work for more meetings then come home to prepare for my trip Thursday to the VA. I have been doing relatively well so far with my transition from the hospital except for the frustrations with people who abuse handicap services who are not in need of them. Besides my vehicle acting up, this is about the only other thing that gets under my skin but all is good. I would need a calculator to be able to count all my blessings. I am at peace with my injury and have found most people are good hearted if given the opportunity. Well, I need to start my night routine to get ready for bed…Phillip | ||||
Sunday Night, March 30th (A Weekend of Peace) |
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| Written by Phillip Sherwood | ||||
| Sunday, 30 March 2008 | ||||
| This was a great weekend of peaceful rest. The biggest thing I had on my agenda was an appointment with my lovely hair engineer. I have found myself waking up several times at various hours throughout the night the last two months preparing to do my IC and not sure why. I am really concerned that one day I will sleep through one and possibly damage my bladder. Another strange anomaly now is that my butt feels more sensation now, which is great however when sitting or sleeping, it feels like its on fire and I am real restless in the chair and I sleep mostly on my sides. The problem with sleeping on the side is that it stresses my shoulders and causes my hands to go numb. Also the 16f rubber catheter no longer wants to pass through making my IC’s very difficult. I had a severe spasm while getting on the toilet that threw me back against the porcelain so hard that it felt like it broke my back! Things are a little medically tough right now but I leave for the Augusta VA this Thursday to get fitted for my new high-speed, low-drag, wind tunnel tested, titanium wheelchair. Friday will be my 2-month since VA discharge follow-up medical exams. Supposedly tomorrow there will be a technician from the minivan vendor coming to work on the Honda Odyssey. He has his work cut out for him. I’ve visited Curtis everyday since his accident except for today. I had to get some long rest and gather my files together to get my taxes done. Curtis continues to improve remarkably every time I see him. I understand he was even transferred into a wheelchair. Like I said before, he is way ahead of the game and he will be able to really benefit from the Physical & Occupational Therapy that awaits him. Melissa and I will stop by to see him and Melisa on our way back from the VA in Augusta. I am going to try and post some x-ray images of the hardware holding my spine together but not sure how it will turn out. It’s late and I need to get some rest. This will be a very busy week…Phillip
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Friday Night, March 28th (TGIF) |
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| Written by Phillip Sherwood | ||||
| Friday, 28 March 2008 | ||||
| Curtis Report: He is doing great and in very good spirits. He has a strong appetite and a forceful cough. He still has no feeling below the chest however he is still in the beginning stages of spinal shock. It looks as if he will be going to Shep | ||||